Vai al contenuto principale della pagina

Genetic data and the law : a critical perspective on privacy protection / / Mark Taylor



(Visualizza in formato marc)    (Visualizza in BIBFRAME)

Autore: Taylor Mark <1973 Mar. 26-> Visualizza persona
Titolo: Genetic data and the law : a critical perspective on privacy protection / / Mark Taylor Visualizza cluster
Pubblicazione: Cambridge ; ; New York, : Cambridge University Press, 2012
Edizione: 1st ed.
Descrizione fisica: 1 online resource (xiii, 232 pages) : digital, PDF file(s)
Disciplina: 344.04/196
Soggetto topico: Medical genetics - Law and legislation
Medical records - Access control
Genetic engineering - Law and legislation
Biotechnology - Law and legislation
Human chromosome abnormalities - Diagnosis - Law and legislation
Human genetics - Government policy
Privacy, Right of
Data protection - Law and legislation
Classificazione: LAW093000
Note generali: Title from publisher's bibliographic system (viewed on 05 Oct 2015).
Nota di bibliografia: Includes bibliographical references and index.
Nota di contenuto: Introduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility.
Sommario/riassunto: Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.
Titolo autorizzato: Genetic data and the law  Visualizza cluster
ISBN: 1-139-33418-2
1-107-22764-X
1-280-39393-9
9786613571854
1-139-33757-2
1-139-34002-6
1-139-34160-X
1-139-33670-3
1-139-33844-7
0-511-91012-6
Formato: Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione: Inglese
Record Nr.: 9910807635903321
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Serie: Cambridge bioethics and law.