1.

Record Nr.

UNINA9910807635903321

Autore

Taylor Mark <1973 Mar. 26->

Titolo

Genetic data and the law : a critical perspective on privacy protection / / Mark Taylor

Pubbl/distr/stampa

Cambridge ; ; New York, : Cambridge University Press, 2012

ISBN

1-139-33418-2

1-107-22764-X

1-280-39393-9

9786613571854

1-139-33757-2

1-139-34002-6

1-139-34160-X

1-139-33670-3

1-139-33844-7

0-511-91012-6

Edizione

[1st ed.]

Descrizione fisica

1 online resource (xiii, 232 pages) : digital, PDF file(s)

Collana

Cambridge bioethics and law

Classificazione

LAW093000

Disciplina

344.04/196

Soggetti

Medical genetics - Law and legislation

Medical records - Access control

Genetic engineering - Law and legislation

Biotechnology - Law and legislation

Human chromosome abnormalities - Diagnosis - Law and legislation

Human genetics - Government policy

Privacy, Right of

Data protection - Law and legislation

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Title from publisher's bibliographic system (viewed on 05 Oct 2015).

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

Introduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility.

Sommario/riassunto

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses



other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.