04024nam 2200865Ia 450 991080763590332120200520144314.01-139-33418-21-107-22764-X1-280-39393-997866135718541-139-33757-21-139-34002-61-139-34160-X1-139-33670-31-139-33844-70-511-91012-6(CKB)2670000000172059(EBL)866906(OCoLC)792684528(SSID)ssj0000622502(PQKBManifestationID)11389571(PQKBTitleCode)TC0000622502(PQKBWorkID)10643256(PQKB)10106574(UkCbUP)CR9780511910128(MiAaPQ)EBC866906(Au-PeEL)EBL866906(CaPaEBR)ebr10558214(CaONFJC)MIL357185(PPN)261340204(EXLCZ)99267000000017205920111012d2012 uy 0engur|||||||||||txtrdacontentcrdamediacrrdacarrierGenetic data and the law a critical perspective on privacy protection /Mark Taylor1st ed.Cambridge ;New York Cambridge University Press20121 online resource (xiii, 232 pages) digital, PDF file(s)Cambridge bioethics and lawTitle from publisher's bibliographic system (viewed on 05 Oct 2015).1-107-00711-9 Includes bibliographical references and index.Introduction -- Privacy -- Genetic data -- The law -- Data in common -- Anonymity -- Human tissue -- Genetic discrimination -- Potential, promise and possibility.Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.Cambridge bioethics and law.Medical geneticsLaw and legislationMedical recordsAccess controlGenetic engineeringLaw and legislationBiotechnologyLaw and legislationHuman chromosome abnormalitiesDiagnosisLaw and legislationHuman geneticsGovernment policyPrivacy, Right ofData protectionLaw and legislationMedical geneticsLaw and legislation.Medical recordsAccess control.Genetic engineeringLaw and legislation.BiotechnologyLaw and legislation.Human chromosome abnormalitiesDiagnosisLaw and legislation.Human geneticsGovernment policy.Privacy, Right of.Data protectionLaw and legislation.344.04/196LAW093000bisacshTaylor Mark1973 Mar. 26-1760293MiAaPQMiAaPQMiAaPQBOOK9910807635903321Genetic data and the law4199176UNINA