The match : "savior siblings" and one family's battle to heal their daughter / / Beth Whitehouse

• Autore: Whitehouse Beth <1961->
• Pubblicazione: Boston, : Beacon Press, c2010
• Descrizione fisica: 1 online resource (267 p.)
• Disciplina: 362.198/921520092
• Soggetto topico: Anemia in children - Patients - New York (State) - New York; Bone marrow - Transplantation - Patients - New York (State) - New York; Pure red cell aplasia - Patients - New York (State) - New York; Fertilization in vitro, Human; Procurement of organs, tissues, etc
• Note generali: Bibliographic Level Mode of Issuance: Monograph
• Nota di contenuto: Intro -- The Match"Savior Siblings" and One Family's Battle to Heal Their Daughter -- Prelude -- 1: "Mind If I Take One Last Ski Run?" -- 2: "What Do You Think It Is?" -- 3: "Never in a Million Years" -- 4: "This Is a Beautiful Embryo" -- 5: "For Them, the Dice Are a Bit Loaded" -- 6: "This Is for Desperate Couples" -- 7: "We Have Incomplete Information" -- 8: "I Could Never Do That" -- 9: "Why Me? Why This?" -- 10: "I Wish We Hadn't Done It" -- 11: "The Easter Bunny Would Be Jealous" -- 12: "Come On, Baby" -- 13: "Take an Additional Folic Acid, in Case It's Twins" -- 14: "Things Look Really Good" -- 15: "So Much of Who We Are Happens at the Beginning" -- 16: "It's Hard to Tell Parents, 'Don't Do This' " -- 17: "There's No Black-and-White Answer" -- 18: "We're Not Going to Stop the Future" -- 19: "It's a Boy!" -- 20: "I Like This Place a Lot" -- 21: "Now It's Crunch Time" -- 22: "You Conceived Your Son for This?" -- 23: "Will I Get Handcuffed with My Kids?" -- 24: "This Is Mind-Boggling" -- 25: "Being a Mom Is the Coolest Gift" -- 26: "It's Now or Never" -- 27: "Bubba's My Brother" -- 28: "Good Luck" -- 29: "Her Body Is Healing" -- 30: "Why Are You Taking the Lights Down?" -- 31: "Back Up and Bling-Bling" -- 32: "It Goes So Fast" -- Acknowledgments.
• Sommario/riassunto: My Sister's Keeper in nonfiction: a family's real-life struggle to cure their daughter by creating her genetic match Katie Trebing was diagnosed at three months old with Diamond Blackfan anemia, a rare form of anemia that prevents bone marrow from producing red blood cells. Even with a lifetime of monthly blood transfusions, she faced a poor prognosis. Pulitzer Prize-winning journalist Beth Whitehouse follows the Trebings as they make the decision to create a genetically matched sibling using preimplantation genetic diagnosis (PGD) and in vitro fertilization, and proceed with a risky bone-marrow transplant that could kill their daughter rather than save her. The Match is a timely and provocative look at urgent issues that can only become more complex and pressing as genetic and reproductive technologies advance.
• Titolo autorizzato: The match
• ISBN: 0-8070-9775-6
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Lingua di pubblicazione: Inglese
• Record Nr.: 9910975038303321
• Lo trovi qui: Univ. Federico II