04221nam 2200661Ia 450 991097503830332120251117082356.00-8070-9775-6(CKB)2550000000010618(OCoLC)607553719(CaPaEBR)ebrary10378005(SSID)ssj0000397862(PQKBManifestationID)11278445(PQKBTitleCode)TC0000397862(PQKBWorkID)10361143(PQKB)10144947(MiAaPQ)EBC3118079(MiAaPQ)EBC6077424(Au-PeEL)EBL3118079(CaPaEBR)ebr10378005(CaONFJC)MIL487485(Au-PeEL)EBL6077424(BIP)31427956(BIP)46955227(EXLCZ)99255000000001061820090903d2010 uy 0engurcn|||||||||txtccrThe match "savior siblings" and one family's battle to heal their daughter /Beth WhitehouseBoston Beacon Pressc20101 online resource (267 p.) Bibliographic Level Mode of Issuance: Monograph1-299-56235-3 0-8070-7286-9 Intro -- The Match"Savior Siblings" and One Family's Battle to Heal Their Daughter -- Prelude -- 1: "Mind If I Take One Last Ski Run?" -- 2: "What Do You Think It Is?" -- 3: "Never in a Million Years" -- 4: "This Is a Beautiful Embryo" -- 5: "For Them, the Dice Are a Bit Loaded" -- 6: "This Is for Desperate Couples" -- 7: "We Have Incomplete Information" -- 8: "I Could Never Do That" -- 9: "Why Me? Why This?" -- 10: "I Wish We Hadn't Done It" -- 11: "The Easter Bunny Would Be Jealous" -- 12: "Come On, Baby" -- 13: "Take an Additional Folic Acid, in Case It's Twins" -- 14: "Things Look Really Good" -- 15: "So Much of Who We Are Happens at the Beginning" -- 16: "It's Hard to Tell Parents, 'Don't Do This' " -- 17: "There's No Black-and-White Answer" -- 18: "We're Not Going to Stop the Future" -- 19: "It's a Boy!" -- 20: "I Like This Place a Lot" -- 21: "Now It's Crunch Time" -- 22: "You Conceived Your Son for This?" -- 23: "Will I Get Handcuffed with My Kids?" -- 24: "This Is Mind-Boggling" -- 25: "Being a Mom Is the Coolest Gift" -- 26: "It's Now or Never" -- 27: "Bubba's My Brother" -- 28: "Good Luck" -- 29: "Her Body Is Healing" -- 30: "Why Are You Taking the Lights Down?" -- 31: "Back Up and Bling-Bling" -- 32: "It Goes So Fast" -- Acknowledgments.My Sister's Keeper in nonfiction: a family's real-life struggle to cure their daughter by creating her genetic match   Katie Trebing was diagnosed at three months old with Diamond Blackfan anemia, a rare form of anemia that prevents bone marrow from producing red blood cells. Even with a lifetime of monthly blood transfusions, she faced a poor prognosis. Pulitzer Prize-winning journalist Beth Whitehouse follows the Trebings as they make the decision to create a genetically matched sibling using preimplantation genetic diagnosis (PGD) and in vitro fertilization, and proceed with a risky bone-marrow transplant that could kill their daughter rather than save her. The Match is a timely and provocative look at urgent issues that can only become more complex and pressing as genetic and reproductive technologies advance.Anemia in childrenPatientsNew York (State)New YorkBiographyBone marrowTransplantationPatientsNew York (State)New YorkBiographyPure red cell aplasiaPatientsNew York (State)New YorkBiographyFertilization in vitro, HumanProcurement of organs, tissues, etcAnemia in childrenPatientsBone marrowTransplantationPatientsPure red cell aplasiaPatientsFertilization in vitro, Human.Procurement of organs, tissues, etc.362.198/921520092Whitehouse Beth1961-1868057MiAaPQMiAaPQMiAaPQBOOK9910975038303321The match4475874UNINA