Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors

• Pubblicazione: New York, New York : , : Springer Publishing Company, , [2020]; ©2020
• Descrizione fisica: 1 online resource (xxiv, 440 pages)
• Disciplina: 616.029
• Soggetto topico: Terminally ill children - Care; Palliative treatment; Newborn infants - Medical care; Neonatology; Perinatology; Palliative Care; Infant Health; Perinatal Care; Grief
• Soggetto genere / forma: Electronic books.
• Persona (resp. second.): LimboRana K (Rana Kristina); WoolCharlotte; CarterBrian S. <1957->
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: Understanding palliative care. Advancing palliative care to perinatal and neonatal settings / Charlotte Wool and Beth Perry Black ; Neonatal and perinatal palliative care services and programs / Steven R. Leuthner and Emilie Lamberg Jones ; Creating seamlessness in palliative care services / Sara Muñoz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson -- Caring for the whole family in palliative care. Comfort in perinatal and neonatal palliative care: an innovative plan of care focused on relational elements / Elvira Parravicini and Francis T. McCarthy ; Suspending judgment: being with and knowing the family / Terri Major-Kincade, Leslie L. Harris, and Stacy C. Smith ; Helping siblings connect, relate, and say goodbye / Meghaan R. Nguyen ; Barriers to referring patients for perinatal palliative care / Barthélémy Tosello and Marie-Ange Einaudi -- Planning and decision-making. Communicating devastating news / Steven R. Leuthner, Renee D. Boss, and Brian S. Carter ; Grief and memories begin with diagnosis / Rana Limbo and Marie A. Walter ; Anticipatory guidance: birth and advance care planning / Jessica T. Fry, Natalia Henner, and Andrea Caruso ; Difficulty in predicting survival: genetics and genetic counseling / Martha Dudek and Rebecca D. Carter ; "Compatible with love": qualitative analysis of decision-making rationale of parents who continue pregnancy affected by a life-limiting fetal condition / Jesse Wool and Charlotte Wool ; Perinatal regoaling in the face of serious illness: hopeful thinking, good-parent beliefs, and uncertainty / Douglas L. Hill, Jackelyn Y. Boyden, Christ Feudtner, and David A. Munson ; Building and sustaining relationships during pregnancy / Amy Kuebelbeck -- Physical aspects of palliative care: diagnosis, treatment, and outcomes. Attending to pain and suffering in palliative care / Marc-Antoine Marquis and Antaione Payot ; Managing pain and discomfort in the mother / Steven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelley L. Sharp ; Perinatal palliative care in the context of fetal or neonatal surgery / David A. Munson ; Palliative care at the time of unexpected premature delivery / Lezlie H. Andersen, Bethany D. Kaemingk, and Christopher A. Collura ; Compassionate extubation and withdrawal of life-sustaining therapies / Jennifer S. Linebarger and Meghan Tracewski -- Supporting families and care providers through the nuances of palliative care. Lactation and breastfeeding in the context of perinatal palliative care / Diane L. Spatz and Joanna C. M. Cole ; Ten ethical principles for neonatal palliative care / Franco A. Carnevale, Jacqueline van Wijlen, and Brian S. Carter ; Spirituality: the effects of another's pain and suffering on care providers / Darryl I. Owens and Hadley Kifner ; Assessing perinatal grief intensity in the palliative care setting / Marianne H. Hutti and Lela A. Baker ; Strategies to honor professional well-being in perinatal and neonatal care / Kathie Kobler.
• Sommario/riassunto: "The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidence based reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words."
• Titolo autorizzato: Handbook of perinatal and neonatal palliative care
• ISBN: 0-8261-3842-X
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Lingua di pubblicazione: Inglese
• Record Nr.: 9910480634803321
• Lo trovi qui: Univ. Federico II