LEADER 06439nam 2200637 450 001 9910480634803321 005 20210818030756.0 010 $a0-8261-3842-X 035 $a(CKB)4100000009823003 035 $a(MiAaPQ)EBC5970792 035 $a(EXLCZ)994100000009823003 100 $a20191204d2020 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 00$aHandbook of perinatal and neonatal palliative care $ea guide for nurses, physicians, and other health professionals /$fRana Limbo, Charlotte Wool, Brian S. Carter, editors 210 1$aNew York, New York :$cSpringer Publishing Company,$d[2020] 210 4$dİ2020 215 $a1 online resource (xxiv, 440 pages) 311 $a0-8261-3839-X 320 $aIncludes bibliographical references and index. 327 $tUnderstanding palliative care.$tAdvancing palliative care to perinatal and neonatal settings /$rCharlotte Wool and Beth Perry Black ;$tNeonatal and perinatal palliative care services and programs /$rSteven R. Leuthner and Emilie Lamberg Jones ;$tCreating seamlessness in palliative care services /$rSara Mun?oz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson --$tCaring for the whole family in palliative care.$tComfort in perinatal and neonatal palliative care: an innovative plan of care focused on relational elements /$rElvira Parravicini and Francis T. McCarthy ;$tSuspending judgment: being with and knowing the family /$rTerri Major-Kincade, Leslie L. Harris, and Stacy C. Smith ;$tHelping siblings connect, relate, and say goodbye /$rMeghaan R. Nguyen ;$tBarriers to referring patients for perinatal palliative care /$rBarthe?le?my Tosello and Marie-Ange Einaudi --$tPlanning and decision-making.$tCommunicating devastating news /$rSteven R. Leuthner, Renee D. Boss, and Brian S. Carter ;$tGrief and memories begin with diagnosis /$rRana Limbo and Marie A. Walter ;$tAnticipatory guidance: birth and advance care planning /$rJessica T. Fry, Natalia Henner, and Andrea Caruso ;$tDifficulty in predicting survival: genetics and genetic counseling /$rMartha Dudek and Rebecca D. Carter ;$t"Compatible with love": qualitative analysis of decision-making rationale of parents who continue pregnancy affected by a life-limiting fetal condition /$rJesse Wool and Charlotte Wool ;$tPerinatal regoaling in the face of serious illness: hopeful thinking, good-parent beliefs, and uncertainty /$rDouglas L. Hill, Jackelyn Y. Boyden, Christ Feudtner, and David A. Munson ;$tBuilding and sustaining relationships during pregnancy /$rAmy Kuebelbeck --$tPhysical aspects of palliative care: diagnosis, treatment, and outcomes.$tAttending to pain and suffering in palliative care /$rMarc-Antoine Marquis and Antaione Payot ;$tManaging pain and discomfort in the mother /$rSteven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelley L. Sharp ;$tPerinatal palliative care in the context of fetal or neonatal surgery /$rDavid A. Munson ;$tPalliative care at the time of unexpected premature delivery /$rLezlie H. Andersen, Bethany D. Kaemingk, and Christopher A. Collura ;$tCompassionate extubation and withdrawal of life-sustaining therapies /$rJennifer S. Linebarger and Meghan Tracewski --$tSupporting families and care providers through the nuances of palliative care.$tLactation and breastfeeding in the context of perinatal palliative care /$rDiane L. Spatz and Joanna C. M. Cole ;$tTen ethical principles for neonatal palliative care /$rFranco A. Carnevale, Jacqueline van Wijlen, and Brian S. Carter ;$tSpirituality: the effects of another's pain and suffering on care providers /$rDarryl I. Owens and Hadley Kifner ;$tAssessing perinatal grief intensity in the palliative care setting /$rMarianne H. Hutti and Lela A. Baker ;$tStrategies to honor professional well-being in perinatal and neonatal care /$rKathie Kobler. 330 $a"The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidence based reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words."$c--Provided by vendor. 606 $aTerminally ill children$xCare 606 $aPalliative treatment 606 $aNewborn infants$xMedical care 606 $aNeonatology 606 $aPerinatology 606 $aPalliative Care 606 $aInfant Health 606 $aPerinatal Care 606 $aGrief 608 $aElectronic books. 615 0$aTerminally ill children$xCare. 615 0$aPalliative treatment. 615 0$aNewborn infants$xMedical care. 615 0$aNeonatology. 615 0$aPerinatology. 615 12$aPalliative Care. 615 12$aInfant Health. 615 22$aPerinatal Care. 615 22$aGrief. 676 $a616.029 702 $aLimbo$b Rana K$g(Rana Kristina), 702 $aWool$b Charlotte 702 $aCarter$b Brian S.$f1957- 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 801 2$bCaOLU 906 $aBOOK 912 $a9910480634803321 996 $aHandbook of perinatal and neonatal palliative care$91950610 997 $aUNINA