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Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors
| Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors |
| Pubbl/distr/stampa | New York, New York : , : Springer Publishing Company, , [2020] |
| Descrizione fisica | 1 online resource (xxiv, 440 pages) |
| Disciplina | 616.029 |
| Soggetto topico |
Terminally ill children - Care
Palliative treatment Newborn infants - Medical care Neonatology Perinatology Palliative Care Infant Health Perinatal Care Grief |
| Soggetto genere / forma | Electronic books. |
| ISBN | 0-8261-3842-X |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Understanding palliative care. Advancing palliative care to perinatal and neonatal settings / Charlotte Wool and Beth Perry Black ; Neonatal and perinatal palliative care services and programs / Steven R. Leuthner and Emilie Lamberg Jones ; Creating seamlessness in palliative care services / Sara Muñoz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson -- Caring for the whole family in palliative care. Comfort in perinatal and neonatal palliative care: an innovative plan of care focused on relational elements / Elvira Parravicini and Francis T. McCarthy ; Suspending judgment: being with and knowing the family / Terri Major-Kincade, Leslie L. Harris, and Stacy C. Smith ; Helping siblings connect, relate, and say goodbye / Meghaan R. Nguyen ; Barriers to referring patients for perinatal palliative care / Barthélémy Tosello and Marie-Ange Einaudi -- Planning and decision-making. Communicating devastating news / Steven R. Leuthner, Renee D. Boss, and Brian S. Carter ; Grief and memories begin with diagnosis / Rana Limbo and Marie A. Walter ; Anticipatory guidance: birth and advance care planning / Jessica T. Fry, Natalia Henner, and Andrea Caruso ; Difficulty in predicting survival: genetics and genetic counseling / Martha Dudek and Rebecca D. Carter ; "Compatible with love": qualitative analysis of decision-making rationale of parents who continue pregnancy affected by a life-limiting fetal condition / Jesse Wool and Charlotte Wool ; Perinatal regoaling in the face of serious illness: hopeful thinking, good-parent beliefs, and uncertainty / Douglas L. Hill, Jackelyn Y. Boyden, Christ Feudtner, and David A. Munson ; Building and sustaining relationships during pregnancy / Amy Kuebelbeck -- Physical aspects of palliative care: diagnosis, treatment, and outcomes. Attending to pain and suffering in palliative care / Marc-Antoine Marquis and Antaione Payot ; Managing pain and discomfort in the mother / Steven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelley L. Sharp ; Perinatal palliative care in the context of fetal or neonatal surgery / David A. Munson ; Palliative care at the time of unexpected premature delivery / Lezlie H. Andersen, Bethany D. Kaemingk, and Christopher A. Collura ; Compassionate extubation and withdrawal of life-sustaining therapies / Jennifer S. Linebarger and Meghan Tracewski -- Supporting families and care providers through the nuances of palliative care. Lactation and breastfeeding in the context of perinatal palliative care / Diane L. Spatz and Joanna C. M. Cole ; Ten ethical principles for neonatal palliative care / Franco A. Carnevale, Jacqueline van Wijlen, and Brian S. Carter ; Spirituality: the effects of another's pain and suffering on care providers / Darryl I. Owens and Hadley Kifner ; Assessing perinatal grief intensity in the palliative care setting / Marianne H. Hutti and Lela A. Baker ; Strategies to honor professional well-being in perinatal and neonatal care / Kathie Kobler. |
| Record Nr. | UNINA-9910480634803321 |
| New York, New York : , : Springer Publishing Company, , [2020] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors
| Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors |
| Pubbl/distr/stampa | New York, New York : , : Springer Publishing Company, , [2020] |
| Descrizione fisica | 1 online resource (xxiv, 440 pages) |
| Disciplina | 616.029 |
| Soggetto topico |
Terminally ill children - Care
Palliative treatment Newborn infants - Medical care Neonatology Perinatology Palliative Care Infant Health Perinatal Care Grief |
| Soggetto genere / forma | Electronic books. |
| ISBN | 0-8261-3842-X |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Understanding palliative care. Advancing palliative care to perinatal and neonatal settings / Charlotte Wool and Beth Perry Black ; Neonatal and perinatal palliative care services and programs / Steven R. Leuthner and Emilie Lamberg Jones ; Creating seamlessness in palliative care services / Sara Muñoz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson -- Caring for the whole family in palliative care. Comfort in perinatal and neonatal palliative care: an innovative plan of care focused on relational elements / Elvira Parravicini and Francis T. McCarthy ; Suspending judgment: being with and knowing the family / Terri Major-Kincade, Leslie L. Harris, and Stacy C. Smith ; Helping siblings connect, relate, and say goodbye / Meghaan R. Nguyen ; Barriers to referring patients for perinatal palliative care / Barthélémy Tosello and Marie-Ange Einaudi -- Planning and decision-making. Communicating devastating news / Steven R. Leuthner, Renee D. Boss, and Brian S. Carter ; Grief and memories begin with diagnosis / Rana Limbo and Marie A. Walter ; Anticipatory guidance: birth and advance care planning / Jessica T. Fry, Natalia Henner, and Andrea Caruso ; Difficulty in predicting survival: genetics and genetic counseling / Martha Dudek and Rebecca D. Carter ; "Compatible with love": qualitative analysis of decision-making rationale of parents who continue pregnancy affected by a life-limiting fetal condition / Jesse Wool and Charlotte Wool ; Perinatal regoaling in the face of serious illness: hopeful thinking, good-parent beliefs, and uncertainty / Douglas L. Hill, Jackelyn Y. Boyden, Christ Feudtner, and David A. Munson ; Building and sustaining relationships during pregnancy / Amy Kuebelbeck -- Physical aspects of palliative care: diagnosis, treatment, and outcomes. Attending to pain and suffering in palliative care / Marc-Antoine Marquis and Antaione Payot ; Managing pain and discomfort in the mother / Steven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelley L. Sharp ; Perinatal palliative care in the context of fetal or neonatal surgery / David A. Munson ; Palliative care at the time of unexpected premature delivery / Lezlie H. Andersen, Bethany D. Kaemingk, and Christopher A. Collura ; Compassionate extubation and withdrawal of life-sustaining therapies / Jennifer S. Linebarger and Meghan Tracewski -- Supporting families and care providers through the nuances of palliative care. Lactation and breastfeeding in the context of perinatal palliative care / Diane L. Spatz and Joanna C. M. Cole ; Ten ethical principles for neonatal palliative care / Franco A. Carnevale, Jacqueline van Wijlen, and Brian S. Carter ; Spirituality: the effects of another's pain and suffering on care providers / Darryl I. Owens and Hadley Kifner ; Assessing perinatal grief intensity in the palliative care setting / Marianne H. Hutti and Lela A. Baker ; Strategies to honor professional well-being in perinatal and neonatal care / Kathie Kobler. |
| Record Nr. | UNINA-9910535280303321 |
| New York, New York : , : Springer Publishing Company, , [2020] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children [[electronic resource] /] / edited by Ann Armstrong-Dailey, Sarah Zarbock
| Hospice care for children [[electronic resource] /] / edited by Ann Armstrong-Dailey, Sarah Zarbock |
| Edizione | [2nd ed.] |
| Pubbl/distr/stampa | New York, : Oxford University Press, 2001 |
| Descrizione fisica | 1 online resource (435 p.) |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Hospice care
Terminally ill children - Care Terminally ill children - Family relationships |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-282-54375-X
9786612543753 0-19-974784-9 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Foreword""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Management""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Curse or Challenge?""; ""4. Caring for Children with Life-Limiting Illness and Their Families: Focus on Pediatric Hospice Nursing""; ""5. Neonatal Death""; ""6. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""
""9. Spiritual Care of Children and Parents""""10. Staff Support in Pediatric Hospice Care""; ""11. Unpaid Staff: The Volunteer Component""; ""12. Lessons in Grief: A Practical Look at School Programs""; ""13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death, and Grief""; ""14. The Primary Care Physician's Role""; ""III: Different Contexts, Different Lessons""; ""15. Learning from One Another: Lessons from Pediatrics for Palliative Care""; ""16. Palliative Care in an Inpatient Hospital Setting""; ""17. Ethical Decision Making at the End of Life"" ""18. Incorporating Children in an Adult Hospice Program""""19. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidelines and Resources for Adults""; ""Appendix""; ""Index""; ""A""; ""B""; ""C""; ""D""; ""E""; ""F""; ""G""; ""H""; ""I""; ""K""; ""L""; ""M""; ""N""; ""O""; ""P""; ""R""; ""S""; ""T""; ""V""; ""W"" |
| Record Nr. | UNINA-9910456503803321 |
| New York, : Oxford University Press, 2001 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock
| Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock |
| Edizione | [2nd ed.] |
| Pubbl/distr/stampa | New York : , : Oxford University Press, , 2001 |
| Descrizione fisica | 1 online resource (xviii, 416 pages) |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Hospice care
Terminally ill children - Care Terminally ill children - Family relationships |
| ISBN |
1-282-54375-X
9786612543753 0-19-974784-9 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Foreword""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Management""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Curse or Challenge?""; ""4. Caring for Children with Life-Limiting Illness and Their Families: Focus on Pediatric Hospice Nursing""; ""5. Neonatal Death""; ""6. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""
""9. Spiritual Care of Children and Parents"" ""10. Staff Support in Pediatric Hospice Care""; ""11. Unpaid Staff: The Volunteer Component""; ""12. Lessons in Grief: A Practical Look at School Programs""; ""13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death, and Grief""; ""14. The Primary Care Physician's Role""; ""III: Different Contexts, Different Lessons""; ""15. Learning from One Another: Lessons from Pediatrics for Palliative Care""; ""16. Palliative Care in an Inpatient Hospital Setting""; ""17. Ethical Decision Making at the End of Life"" ""18. Incorporating Children in an Adult Hospice Program"" ""19. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidelines and Resources for Adults""; ""Appendix""; ""Index"" |
| Record Nr. | UNINA-9910781185503321 |
| New York : , : Oxford University Press, , 2001 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock
| Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock |
| Edizione | [2nd ed.] |
| Pubbl/distr/stampa | New York, : Oxford University Press, 2001 |
| Descrizione fisica | 1 online resource (xviii, 416 pages) |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Hospice care
Terminally ill children - Care Terminally ill children - Family relationships |
| ISBN |
1-282-54375-X
9786612543753 0-19-974784-9 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Foreword""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Management""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence: Curse or Challenge?""; ""4. Caring for Children with Life-Limiting Illness and Their Families: Focus on Pediatric Hospice Nursing""; ""5. Neonatal Death""; ""6. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""
""9. Spiritual Care of Children and Parents"" ""10. Staff Support in Pediatric Hospice Care""; ""11. Unpaid Staff: The Volunteer Component""; ""12. Lessons in Grief: A Practical Look at School Programs""; ""13. Therapeutic Play and Creative Arts: Helping Children Cope with Illness, Death, and Grief""; ""14. The Primary Care Physician's Role""; ""III: Different Contexts, Different Lessons""; ""15. Learning from One Another: Lessons from Pediatrics for Palliative Care""; ""16. Palliative Care in an Inpatient Hospital Setting""; ""17. Ethical Decision Making at the End of Life"" ""18. Incorporating Children in an Adult Hospice Program"" ""19. Death-Related Literature for Children and Adolescents: Selected, Annotated, and with Guidelines and Resources for Adults""; ""Appendix""; ""Index"" |
| Record Nr. | UNINA-9910823405903321 |
| New York, : Oxford University Press, 2001 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children [[electronic resource] /] / edited by Ann Armstrong-Dailey, Sarah Zarbock Goltzer
| Hospice care for children [[electronic resource] /] / edited by Ann Armstrong-Dailey, Sarah Zarbock Goltzer |
| Pubbl/distr/stampa | New York, : Oxford University Press, 1993 |
| Descrizione fisica | 1 online resource (311 p.) |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Terminally ill children - Care
Hospice care Terminally ill children - Family relationships |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-280-44143-7
9786610441433 0-19-802372-3 1-4237-3755-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Control""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence""; ""4. Neonatal Death""; ""5. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""6. Family Dynamics""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""; ""9. Lessons in Grief: A Practical Look at School Programs""; ""10. Role of the Primary Physician""; ""11. Staff Support""
""12. The Volunteer Component""""III: Appendix""; ""An Early Model of Care""; ""A Home Care Program""; ""Palliative Care in an Inpatient Hospital Setting""; ""Children's Literature on Death""; ""Additional Resources""; ""Index""; ""A""; ""B""; ""C""; ""D""; ""E""; ""F""; ""G""; ""H""; ""I""; ""K""; ""L""; ""M""; ""N""; ""O""; ""P""; ""R""; ""S""; ""T""; ""U""; ""V""; ""W"" |
| Record Nr. | UNINA-9910450443303321 |
| New York, : Oxford University Press, 1993 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children / / editors, Ann Armstrong-Dailey, Sarah Zarbock Goltzer
| Hospice care for children / / editors, Ann Armstrong-Dailey, Sarah Zarbock Goltzer |
| Pubbl/distr/stampa | New York : , : Oxford University Press, , 1993 |
| Descrizione fisica | 1 online resource (xvi, 294 pages) : illustrations |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Terminally ill children - Care
Hospice care Terminally ill children - Family relationships |
| ISBN |
1-280-44143-7
9786610441433 0-19-802372-3 1-4237-3755-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Control""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence""; ""4. Neonatal Death""; ""5. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""6. Family Dynamics""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""; ""9. Lessons in Grief: A Practical Look at School Programs""; ""10. Role of the Primary Physician""; ""11. Staff Support""
""12. The Volunteer Component"" ""III: Appendix""; ""An Early Model of Care""; ""A Home Care Program""; ""Palliative Care in an Inpatient Hospital Setting""; ""Children's Literature on Death""; ""Additional Resources""; ""Index"" |
| Record Nr. | UNINA-9910783375603321 |
| New York : , : Oxford University Press, , 1993 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock Goltzer
| Hospice care for children / / edited by Ann Armstrong-Dailey, Sarah Zarbock Goltzer |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | New York, : Oxford University Press, 1993 |
| Descrizione fisica | 1 online resource (xvi, 294 pages) : illustrations |
| Disciplina | 362.1/756/083 |
| Altri autori (Persone) |
Armstrong-DaileyAnn
ZarbockSarah F |
| Soggetto topico |
Terminally ill children - Care
Hospice care Terminally ill children - Family relationships |
| ISBN |
1-280-44143-7
9786610441433 0-19-802372-3 1-4237-3755-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Control""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence""; ""4. Neonatal Death""; ""5. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""6. Family Dynamics""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""; ""9. Lessons in Grief: A Practical Look at School Programs""; ""10. Role of the Primary Physician""; ""11. Staff Support""
""12. The Volunteer Component"" ""III: Appendix""; ""An Early Model of Care""; ""A Home Care Program""; ""Palliative Care in an Inpatient Hospital Setting""; ""Children's Literature on Death""; ""Additional Resources""; ""Index"" |
| Record Nr. | UNINA-9910827325703321 |
| New York, : Oxford University Press, 1993 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
A new holistic-evolutive approach to pediatric palliative care / / Carlo Valerio Bellieni
| A new holistic-evolutive approach to pediatric palliative care / / Carlo Valerio Bellieni |
| Autore | Bellieni Carlo Valerio |
| Pubbl/distr/stampa | Cham, Switzerland : , : Springer International Publishing, , [2022] |
| Descrizione fisica | 1 online resource (194 pages) |
| Disciplina | 618.92 |
| Soggetto topico |
Children - Diseases
Terminally ill children - Care |
| ISBN |
9783030962562
9783030962555 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Intro -- Preface -- Contents -- Part I: Pediatric Palliative Care: "Fundamentalia" -- 1: The First Obstacle Is in the Handle -- 1.1 Team-Hierarchy Responsibilities -- 1.2 Are Doctors Unhappy? -- 1.3 The Conundrum of Motivation -- References -- 2: Palliative Care Is Not a Synonym of End-of-Life Care -- 2.1 What Is Palliative Care? -- 2.2 Cultural Resistances -- 2.3 Heterogeneity of Pediatric Cases -- 2.4 The Prophecy of Florence Nightingale -- References -- 3: Neonatal and Perinatal Care -- 3.1 Three Paradoxes -- 3.1.1 First Paradox: Little Bodies Do Not Mean Little Grief -- 3.1.2 Second Paradox: Little Bodies Do Not Mean Little Pain -- 3.1.3 Third Paradox: Small Age Does Not Mean Small Rights -- 3.2 Perinatal Palliative Care -- References -- Part II: Communication with Children and Their Families -- 4: Words Can Break My Heart -- 4.1 Crucial Importance of the Interview -- 4.2 The False Myth of Empathy -- 4.3 Certain News Is Indelible -- 4.3.1 Silence -- 4.3.2 The Informed Consent -- References -- 5: Managing Grief and Its Phases -- 5.1 The Phases of Grief -- 5.2 The Pathological Grief -- 5.3 Communicating with the Depressed Child or Parent -- 5.4 The Experience of Loss -- 5.5 The Risk of Suicide -- 5.6 Interventions Aimed at the Family -- 5.7 Interventions Aimed at Caregivers -- References -- 6: Challenges in Communication with Parents and Children -- 6.1 It Is Difficult to Use the Word Death… -- 6.2 … Much More That of a Child -- 6.3 Should We Talk of Their Death and Disease? -- 6.4 Speaking According to the Patient's Character -- 6.5 Obstacles to Communication -- 6.6 What Helps in Communicating Bad News on Their Health to the Children? -- 6.7 Special Children -- References -- 7: The Models of Mental Growth -- 7.1 Changes of Comprehension Throughout Children's Growth -- 7.2 Theory of Mind.
7.3 Piaget's Theories -- 7.4 How These Models Can Improve the Dialog with the Child About Illness -- References -- Part III: Advocates of the Child Who Cannot Speak -- 8: The Respect Due and Denied to Those Who Lack Speech -- 8.1 The Human Strength of the Speech -- 8.2 Mentally Impaired Children -- 8.3 Perinatal Patients -- References -- 9: The Communicative Features of Non-verbal Patients -- 9.1 Sensoriality and Pain in the Newborn -- 9.1.1 Sense Development -- 9.1.2 The Sense of Pain -- 9.2 Communication Skills of the Babies -- 9.2.1 The Newborn -- 9.2.2 The Toddler -- 9.3 Communication Strategies for Mentally Disabled Children -- 9.3.1 Pain Assessment in Mentally Disabled Children -- 9.4 Communicating with Children with Disabilities -- 9.5 Hearing and Vision Impairment -- References -- Part IV: What Is a Good Behavior (Aka Ethics) -- Intermezzo -- Protocols and the False Reassurance -- 10: Are You Sure to Know What "Ethics" Really Is? -- 10.1 Ethics, Virtues, and Protocols -- 10.1.1 First Premise: The Nonsensical Adjective "Ethical" -- 10.1.2 Second Premise: Mixing Up Ethics with Rules -- 10.2 A Synoptic Vision -- 10.3 Our Ethical Responsibilities -- 10.4 Children's Ethical Responsibilities -- References -- 11: The Limits of Parental Authority -- 11.1 Parents Applying Ethical Rules -- 11.2 End-of-Life Requests -- References -- 12: To the Depth of Health Care -- 12.1 The Words That Describe Health Care -- 12.2 Health: Satisfaction Socially Supported -- 12.2.1 Health vs. Loneliness in End-of-Life Processes -- 12.3 Supporting Mental Hygiene for a Really Free Choice -- References -- 13: Children and Babies: Decisions on Their Health -- 13.1 Treating Every Newborn at All Costs? -- 13.2 Shifting Too Soon to Palliative Care -- 13.3 Prejudices Against Disabled Children -- References -- 14: The Pain Principle. 14.1 Therapeutic Fury -- 14.2 The Best Interest Principle and Its Limitations -- 14.3 The Probabilistic Criterion -- 14.4 The Double Effect -- 14.5 The Least Harm Criterion -- 14.6 The Pain Principle -- References -- Part V: The Multiple Approach to Suffering -- 15: The Environment: The Base of Analgesic Efforts -- 15.1 Pain Is Not Just "Pain" -- 15.2 The Hospital as an Analgesic Tool -- 15.2.1 Pet-Assisted Therapy -- 15.2.2 Clown Therapy -- 15.2.3 Noise-Free Hospital -- 15.2.4 Meals and Child-Friendly Hospitals -- References -- 16: Assessment of Pain, of Sedation, and of Refractory Symptoms -- 16.1 Pain Assessment -- 16.2 Sedation -- 16.3 Refractory Symptoms -- References -- 17: Pharmacological and Non-Pharmacological Analgesia -- 17.1 Non-Pharmacological Analgesia -- 17.1.1 Rhythmic Patterns -- 17.2 Opioids and Other Analgesics -- 17.2.1 The Earliest Steps of Pharmacological Analgesia -- 17.2.2 Opioids and Opiates -- 17.2.3 Main Opioids Used in Pediatrics -- 17.3 Adjuvant Drugs -- 17.3.1 Steroids -- 17.3.2 Anticonvulsants -- 17.3.3 Antidepressants -- 17.3.4 Neuroleptics -- 17.3.5 Bisphosphonates and Calcitonin -- 17.3.6 Placebo -- 17.3.7 Antineoplastic Drugs -- 17.3.8 The Conundrum of Cannabinoids -- 17.3.9 Off-Label Drugs -- 17.4 Sedation -- References -- 18: Psychological Approach -- 18.1 Meaning-Based Approach -- 18.2 Dignity-Based Approach -- 18.3 Promoting Resilience in Stress Management -- 18.4 Mindfulness -- References -- Part VI: Palliative Care and Our Fears -- Intermezzo -- 19: Children's Pain Scares us -- 19.1 Our Fears -- 19.2 The Three Fearful Paradoxes -- 19.2.1 Paradox of the Simultaneous Blooming and Dying -- 19.2.2 Irrational-Reason Paradox -- 19.2.3 Paradox of the Spectator's Shadow -- References -- 20: Contagious Pains -- 20.1 Burnout -- 20.2 Overcoming Burnout -- References. 21: The Fear of Death and the Errors It Provokes -- 21.1 How Fear Can Overshadow Our Judgment -- 21.2 Balancing Research and Respect -- References -- 22: Overcoming the Fear of Death -- 22.1 The Image of Death -- 22.2 Rituals -- 22.3 Perinatal Mourning -- 22.4 Assistance to the Sacredness of Life -- References -- Part VII: Types of Pediatric Palliative Care -- 23: Territorial Differentiation and Home Care -- 23.1 The Mission of Pediatric Palliative Care -- 23.2 Types of Approach -- 23.3 Home Care -- 23.4 Community-Based Pediatric Palliative Care -- References -- 24: The Pediatric Hospices -- 24.1 The Pediatric Hospice -- 24.2 Perinatal Hospices -- 24.3 Architectural and Structural Guidelines of Pediatric Hospices -- References -- 25: Palliative Care Integrated in the Hospital Ward and the Abundance Medicine -- 25.1 The Limits of Intensive Set for Palliative Care -- 25.2 Pediatric Intensive Care Units: Improvements -- 25.3 The Neonatal Intensive Care Unit -- 25.4 Parents' Advice -- 25.5 Abundance Medicine -- 25.5.1 Healthcare Waste: Defensive Medicine -- 25.5.2 The SUV Effect -- 25.5.3 Abundance Medicine -- References -- 26: Conclusion. |
| Record Nr. | UNINA-9910574069503321 |
Bellieni Carlo Valerio
|
||
| Cham, Switzerland : , : Springer International Publishing, , [2022] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Palliative and end of life care for children and young people : home, hospice and hospital / / Anne Grinyer
| Palliative and end of life care for children and young people : home, hospice and hospital / / Anne Grinyer |
| Autore | Grinyer Anne |
| Pubbl/distr/stampa | West Sussex, England : , : Wiley-Blackwell, , 2012 |
| Descrizione fisica | 1 online resource (202 p.) |
| Disciplina |
616.02/9
616.029 |
| Soggetto topico | Terminally ill children - Care |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-119-96832-1
1-78539-320-0 1-118-70291-3 1-280-58654-0 9786613616371 1-119-96831-3 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Palliative and end of life care for children and young adults -- Home-based palliative and end of life care -- Hospice-based palliative and end of life care -- Hospital-based palliative and end of life care -- Preparation for the end of life, bereavement, and emotional support -- The implications for policy and practice. |
| Record Nr. | UNINA-9910139698403321 |
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Grinyer Anne
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| West Sussex, England : , : Wiley-Blackwell, , 2012 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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