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Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910458020103321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910781943703321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]]
| The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]] |
| Autore | Widdows Heather <1972-> |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2013 |
| Descrizione fisica | 1 online resource (xiv, 205 pages) : digital, PDF file(s) |
| Disciplina | 174.2/8 |
| Collana | Cambridge bioethics and law |
| Soggetto topico |
Medical ethics
Human genetics - Research - Moral and ethical aspects |
| ISBN |
1-107-23446-8
1-139-61012-0 1-139-61198-4 1-139-62128-9 1-283-94316-6 1-139-62500-4 1-139-60856-8 1-139-61570-X 1-139-05179-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The individual self and its critics -- The individualist assumptions of bioethical frameworks -- The genetic self is the connected self -- The failures of individual ethics in the genetic era -- The communal turn -- Developing alternatives: benefit sharing -- Developing alternatives: trust -- The ethical toolbox part one: recognising goods and harms -- The ethical toolbox part two: applying appropriate practices -- Possible futures. |
| Record Nr. | UNINA-9910462846803321 |
Widdows Heather <1972->
|
||
| Cambridge : , : Cambridge University Press, , 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]]
| The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]] |
| Autore | Widdows Heather <1972-> |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2013 |
| Descrizione fisica | 1 online resource (xiv, 205 pages) : digital, PDF file(s) |
| Disciplina | 174.2/8 |
| Collana | Cambridge bioethics and law |
| Soggetto topico |
Medical ethics
Human genetics - Research - Moral and ethical aspects |
| ISBN |
1-107-23446-8
1-139-61012-0 1-139-61198-4 1-139-62128-9 1-283-94316-6 1-139-62500-4 1-139-60856-8 1-139-61570-X 1-139-05179-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The individual self and its critics -- The individualist assumptions of bioethical frameworks -- The genetic self is the connected self -- The failures of individual ethics in the genetic era -- The communal turn -- Developing alternatives: benefit sharing -- Developing alternatives: trust -- The ethical toolbox part one: recognising goods and harms -- The ethical toolbox part two: applying appropriate practices -- Possible futures. |
| Record Nr. | UNINA-9910786031203321 |
|
Widdows Heather <1972->
|
||
| Cambridge : , : Cambridge University Press, , 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]]
| The connected self : the ethics and governance of the genetic individual / / Heather Widdows [[electronic resource]] |
| Autore | Widdows Heather <1972-> |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2013 |
| Descrizione fisica | 1 online resource (xiv, 205 pages) : digital, PDF file(s) |
| Disciplina | 174.2/8 |
| Collana | Cambridge bioethics and law |
| Soggetto topico |
Medical ethics
Human genetics - Research - Moral and ethical aspects |
| ISBN |
1-107-23446-8
1-139-61012-0 1-139-61198-4 1-139-62128-9 1-283-94316-6 1-139-62500-4 1-139-60856-8 1-139-61570-X 1-139-05179-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The individual self and its critics -- The individualist assumptions of bioethical frameworks -- The genetic self is the connected self -- The failures of individual ethics in the genetic era -- The communal turn -- Developing alternatives: benefit sharing -- Developing alternatives: trust -- The ethical toolbox part one: recognising goods and harms -- The ethical toolbox part two: applying appropriate practices -- Possible futures. |
| Record Nr. | UNINA-9910814057403321 |
|
Widdows Heather <1972->
|
||
| Cambridge : , : Cambridge University Press, , 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour
| Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour |
| Autore | Monsour H. Daniel |
| Pubbl/distr/stampa | Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 |
| Descrizione fisica | 1 online resource (xi, 198 p.) : digital file |
| Disciplina | 241/.649599935 |
| Collana | Lonergan Studies |
| Soggetto topico |
Human genetics - Moral and ethical aspects
Bioethics - Religious aspects - Catholic Church Human genetics - Research - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN | 1-4426-8432-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Frontmatter -- Contents -- Preface -- Introduction. Employing Functional Specialization: Overview of a Group Experiment -- Part One. Some Bioethical Issues in Human Genetics: Delineating the Opposed Stances -- 1. Research in Human Genetics: Technology, Information, Therapeutic Promise, and Challenge / Allore, Robert -- 2. Clinical Applications of Research in Human Genetics / Jamieson, Christine E. -- 3. Genetics in Health Care / Summers, Anne -- 4. Commercialization of Human Genetic Research / Farrell, David Blake / Neeve, Eileen De -- Part Two. Differentiating the Pre-Empirical Components of the Opposed Stances -- 5. The Character of Moral Value, Moral Knowledge, and Moral Debate / Crysdale, Cynthia -- 6. Religion as the Dynamic Horizon of Moral Discernment / Rixon, Gordon -- 7. Discerning Catholic Positions on Particular Ethical Issues / Dool, John -- Part Three. Toward Determining the Normative Stances -- 8. Who Owns the Human Genome? / Sulmasy, Daniel P. -- 9. Genetics, Medicine, and the Human Person: The Papal Theology / Boyle, Joseph -- 10. Key Issues in Genetic Research, Testing, and Patenting / Brown, Barry F. / Sawa, Russell J. -- 11. Expanding Horizons for Moral Discernment: A Retrospective Synthesis / Sullivan, William F. -- Index -- Contributors |
| Record Nr. | UNINA-9910456387803321 |
|
Monsour H. Daniel
|
||
| Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour
| Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour |
| Autore | Monsour H. Daniel |
| Pubbl/distr/stampa | Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 |
| Descrizione fisica | 1 online resource (xi, 198 p.) : digital file |
| Disciplina | 241/.649599935 |
| Collana | Lonergan Studies |
| Soggetto topico |
Human genetics - Moral and ethical aspects
Bioethics - Religious aspects - Catholic Church Human genetics - Research - Moral and ethical aspects |
| Soggetto genere / forma |
Conference papers and proceedings.
Electronic books. |
| ISBN |
1-4426-3962-8
1-4426-8432-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Preface""; ""INTRODUCTION: Employing Functional Specialization: Overview of a Group Experiment""; ""PART ONE: SOME BIOETHICAL ISSUES IN HUMAN GENETICS: DELINEATING THE OPPOSED STANCES""; ""1 Research in Human Genetics: Technology, Information, Therapeutic Promise, and Challenge""; ""Response: Anne Summers""; ""2 Clinical Applications of Research in Human Genetics""; ""Response: Jaro Kotalik""; ""3 Genetics in Health Care""; ""4 Commercialization of Human Genetic Research""; ""Response: Peter Ibbott""
""PART TWO: DIFFERENTIATING THE PRE-EMPIRICAL COMPONENTS OF THE OPPOSED STANCES""""5 The Character of Moral Value, Moral Knowledge, and Moral Debate""; ""Response: Moira McQueen""; ""6 Religion as the Dynamic Horizon of Moral Discernment""; ""Response: Leo Walsh""; ""7 Discerning Catholic Positions on Particular Ethical Issues""; ""Response: Albert Moraczewski""; ""PART THREE: TOWARD DETERMINING THE NORMATIVE STANCES""; ""8 Who Owns the Human Genome?""; ""9 Genetics, Medicine, and the Human Person: The Papal Theology""; ""10 Key Issues in Genetic Research, Testing, and Patenting"" ""11 Expanding Horizons for Moral Discernment: A Retrospective Synthesis""""Index""; ""A""; ""B""; ""C""; ""D""; ""E""; ""F""; ""G""; ""H""; ""I""; ""J""; ""K""; ""L""; ""M""; ""N""; ""O""; ""P""; ""Q""; ""R""; ""S""; ""T""; ""U""; ""V""; ""W""; ""Y""; ""Z""; ""Contributors"" |
| Record Nr. | UNINA-9910780506803321 |
|
Monsour H. Daniel
|
||
| Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour
| Ethics and the new genetics : an integrated approach / / edited by H. Daniel Monsour |
| Autore | Monsour H. Daniel |
| Pubbl/distr/stampa | Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 |
| Descrizione fisica | 1 online resource (xi, 198 p.) : digital file |
| Disciplina | 241/.649599935 |
| Collana | Lonergan Studies |
| Soggetto topico |
Human genetics - Moral and ethical aspects
Bioethics - Religious aspects - Catholic Church Human genetics - Research - Moral and ethical aspects |
| Soggetto genere / forma |
Conference papers and proceedings.
Electronic books. |
| ISBN |
1-4426-3962-8
1-4426-8432-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Contents""; ""Preface""; ""INTRODUCTION: Employing Functional Specialization: Overview of a Group Experiment""; ""PART ONE: SOME BIOETHICAL ISSUES IN HUMAN GENETICS: DELINEATING THE OPPOSED STANCES""; ""1 Research in Human Genetics: Technology, Information, Therapeutic Promise, and Challenge""; ""Response: Anne Summers""; ""2 Clinical Applications of Research in Human Genetics""; ""Response: Jaro Kotalik""; ""3 Genetics in Health Care""; ""4 Commercialization of Human Genetic Research""; ""Response: Peter Ibbott""
""PART TWO: DIFFERENTIATING THE PRE-EMPIRICAL COMPONENTS OF THE OPPOSED STANCES""""5 The Character of Moral Value, Moral Knowledge, and Moral Debate""; ""Response: Moira McQueen""; ""6 Religion as the Dynamic Horizon of Moral Discernment""; ""Response: Leo Walsh""; ""7 Discerning Catholic Positions on Particular Ethical Issues""; ""Response: Albert Moraczewski""; ""PART THREE: TOWARD DETERMINING THE NORMATIVE STANCES""; ""8 Who Owns the Human Genome?""; ""9 Genetics, Medicine, and the Human Person: The Papal Theology""; ""10 Key Issues in Genetic Research, Testing, and Patenting"" ""11 Expanding Horizons for Moral Discernment: A Retrospective Synthesis""""Index""; ""A""; ""B""; ""C""; ""D""; ""E""; ""F""; ""G""; ""H""; ""I""; ""J""; ""K""; ""L""; ""M""; ""N""; ""O""; ""P""; ""Q""; ""R""; ""S""; ""T""; ""U""; ""V""; ""W""; ""Y""; ""Z""; ""Contributors"" |
| Record Nr. | UNINA-9910826468603321 |
|
Monsour H. Daniel
|
||
| Toronto, [Ontario] ; ; Buffalo, [New York] ; ; London, [England] : , : University of Toronto Press, , 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
