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"Ethically impossible" [[electronic resource] ] : STD research in Guatemala from 1946 to 1948
"Ethically impossible" [[electronic resource] ] : STD research in Guatemala from 1946 to 1948
Pubbl/distr/stampa Washington, D.C. : , : Presidential Commission for the Study of Bioethical Issues, , [2011]
Descrizione fisica 1 online resource (x, 206 pages) : illustrations (some color), color maps
Soggetto topico Sexually transmitted diseases - Research - Guatemala
Sexually transmitted diseases - Research - Moral and ethical aspects
Human experimentation in medicine - Moral and ethical aspects
Human experimentation in medicine - Moral and ethical aspects - Guatemala
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Altri titoli varianti "Ethically impossible"
Ethically Impossible
Record Nr. UNINA-9910703253803321
Washington, D.C. : , : Presidential Commission for the Study of Bioethical Issues, , [2011]
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond consent : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman [[electronic resource]]
Beyond consent : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman [[electronic resource]]
Pubbl/distr/stampa New York ; , : Oxford University Press, , 2023
Descrizione fisica xii, 190 p
Disciplina 174/.28
Collana Oxford scholarship online
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Clinical trials - Moral and ethical aspects
Social justice
ISBN 0-19-770576-6
1-280-45384-2
9786610453849
1-4237-6359-9
0-19-974881-0
1-60256-189-3
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto Intro -- Contents -- List of Contributors -- 1 Changing Claims About Justice in Research: An Introduction and Overview -- 2 The Evolving Story of Justice in Federal Research Policy -- 3 Research on the Vulnerable Sick -- 4 Children As Research Subjects -- 5 Gender and Research -- 6 Race, Justice, and Research -- 7 Convenient and Captive Populations -- 8 Justice in International Research -- 9 Theories of Justice in the Context of Research -- 10 Implementing Justice in a Changing Research Environment -- Appendix -- Index.
Record Nr. UNINA-9910814168103321
New York ; , : Oxford University Press, , 2023
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond consent [[electronic resource] ] : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman
Beyond consent [[electronic resource] ] : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman
Pubbl/distr/stampa New York, : Oxford University Press, 1998
Descrizione fisica xii, 190 p
Disciplina 174/.28
Altri autori (Persone) KahnJeffrey P
MastroianniAnna C
SugarmanJeremy
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Clinical trials - Moral and ethical aspects
Social justice
Soggetto genere / forma Electronic books.
ISBN 1-280-45384-2
9786610453849
1-4237-6359-9
0-19-974881-0
1-60256-189-3
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto Intro -- Contents -- List of Contributors -- 1 Changing Claims About Justice in Research: An Introduction and Overview -- 2 The Evolving Story of Justice in Federal Research Policy -- 3 Research on the Vulnerable Sick -- 4 Children As Research Subjects -- 5 Gender and Research -- 6 Race, Justice, and Research -- 7 Convenient and Captive Populations -- 8 Justice in International Research -- 9 Theories of Justice in the Context of Research -- 10 Implementing Justice in a Changing Research Environment -- Appendix -- Index.
Record Nr. UNINA-9910457978103321
New York, : Oxford University Press, 1998
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond consent [[electronic resource] ] : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman
Beyond consent [[electronic resource] ] : seeking justice in research / / edited by Jeffrey P. Kahn, Anna C. Mastroianni, Jeremy Sugarman
Pubbl/distr/stampa New York, : Oxford University Press, 1998
Descrizione fisica xii, 190 p
Disciplina 174/.28
Altri autori (Persone) KahnJeffrey P
MastroianniAnna C
SugarmanJeremy
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Clinical trials - Moral and ethical aspects
Social justice
ISBN 0-19-770576-6
1-280-45384-2
9786610453849
1-4237-6359-9
0-19-974881-0
1-60256-189-3
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto Intro -- Contents -- List of Contributors -- 1 Changing Claims About Justice in Research: An Introduction and Overview -- 2 The Evolving Story of Justice in Federal Research Policy -- 3 Research on the Vulnerable Sick -- 4 Children As Research Subjects -- 5 Gender and Research -- 6 Race, Justice, and Research -- 7 Convenient and Captive Populations -- 8 Justice in International Research -- 9 Theories of Justice in the Context of Research -- 10 Implementing Justice in a Changing Research Environment -- Appendix -- Index.
Record Nr. UNINA-9910784557003321
New York, : Oxford University Press, 1998
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Pubbl/distr/stampa Chapel Hill, : University of North Carolina Press, c1999
Descrizione fisica 1 online resource (293 p.)
Disciplina 174/.28
Altri autori (Persone) KingNancy M. P
HendersonGail <1949->
SteinJane
Collana Studies in social medicine
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Medical ethics
Soggetto genere / forma Electronic books.
ISBN 0-8078-7606-2
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Foreword""; ""Acknowledgments""; ""Introduction. Relationships in Research: A New Paradigm""; ""A Brief History: Images and Ethics of Human Subjects Research""; ""Problem Cases""; ""Moral Principles""; ""Domestic and International Research: Do the Regulations Apply?""; ""Policy: The Regulations""; ""CIOMS Guidelines""; ""A Paradigm Shift: Are the Regulations Enough?""; ""Toward a New Analysis""; ""Notes""; ""Keynote Essay""; ""Introduction""; ""Is Ethics Universal?: Gender, Science, and Culture in Reproductive Health Research (Ruth Macklin)""
""The Universality of Ethical Principles Governing Research""""Research Ethics beyond Regulations""; ""Conclusion""; ""Notes""; ""Case 1. Contracts and Covenants""; ""Introduction""; ""Contract and Covenant in Curacao: Reciprocal Relationships in Scholarly Research (Alan F. Benjamin)""; ""Setting""; ""Issues and Motivations""; ""Discussion""; ""Notes""; ""Commentary 1. Contract and Covenant in Ethnographic Research (Renee C. Fox)""; ""Note""; ""Commentary 2. The Gaze of Scholars and Subjects: Roles, Relationships, and Obligations in Ethnographic Research (Sue E. Estroff)""; ""Note""
""Case 2. Community-based HIV Research""""Introduction""; ""Community Assessment and Perceptions: Preparation for HIV Vaccine Efficacy Trials (Lynn Blanchard)""; ""Introduction""; ""Description of Project""; ""Location of Project""; ""Community Advisory Board""; ""Note""; ""Commentary 1. Community Advisory Board-Investigator Relationships in Community-Based HIV/AIDS Research (Ronald P. Strauss)""; ""Introduction""; ""Ethical and Social Issues""; ""The Rationale of Research""; ""The Uses of the Research""
""Commentary 2. Research Partnerships and People ""at Risk"": HIV Vaccine Efficacy Trials and African American Communities (Keith A. Wailoo)""""Note""; ""Case 3. Corporate Sponsorship of Research""; ""Introduction""; ""Truth-in-Funding: Studying the Infant-feeding Controversy with Industry Support (Barry M. Popkin)""; ""Introduction""; ""History of the Infant-Feeding Project at UNC-CH""; ""What Did We Study?""; ""Why Not NIH?""; ""Ethical Implications of the Issues""; ""The Current Situation Regarding Industry Sponsorship of Research""; ""Personal Conclusions""; ""Funding Source Biases""
""Openness about Funding Sources""""Postmortem""; ""Notes""; ""Commentary 1. Bias and Conflicts of Interest in Science: Controversial Industry Funding of Infant-feeding Studies (Loretta M. Kopelman)""; ""The Scientific Framework""; ""The Framework Assumptions of Advocacy""; ""The Framework Assumptions of Business""; ""Multiple Frameworks""; ""Notes""; ""Commentary 2. Context and Community: Assessing the Ethics of Industry-Funded Research (Allan M. Brandt and Laura Freidenfelds)""; ""Contexts""; ""Interests""; ""Policy""; ""Conclusions""; ""Case 4. Risk and Trust in Abortion Research""
""Introduction""
Record Nr. UNINA-9910451981503321
Chapel Hill, : University of North Carolina Press, c1999
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Pubbl/distr/stampa Chapel Hill, : University of North Carolina Press, c1999
Descrizione fisica 1 online resource (293 p.)
Disciplina 174/.28
Altri autori (Persone) KingNancy M. P
HendersonGail <1949->
SteinJane
Collana Studies in social medicine
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Medical ethics
ISBN 979-88-908677-8-0
0-8078-7606-2
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Foreword""; ""Acknowledgments""; ""Introduction. Relationships in Research: A New Paradigm""; ""A Brief History: Images and Ethics of Human Subjects Research""; ""Problem Cases""; ""Moral Principles""; ""Domestic and International Research: Do the Regulations Apply?""; ""Policy: The Regulations""; ""CIOMS Guidelines""; ""A Paradigm Shift: Are the Regulations Enough?""; ""Toward a New Analysis""; ""Notes""; ""Keynote Essay""; ""Introduction""; ""Is Ethics Universal?: Gender, Science, and Culture in Reproductive Health Research (Ruth Macklin)""
""The Universality of Ethical Principles Governing Research""""Research Ethics beyond Regulations""; ""Conclusion""; ""Notes""; ""Case 1. Contracts and Covenants""; ""Introduction""; ""Contract and Covenant in Curacao: Reciprocal Relationships in Scholarly Research (Alan F. Benjamin)""; ""Setting""; ""Issues and Motivations""; ""Discussion""; ""Notes""; ""Commentary 1. Contract and Covenant in Ethnographic Research (Renee C. Fox)""; ""Note""; ""Commentary 2. The Gaze of Scholars and Subjects: Roles, Relationships, and Obligations in Ethnographic Research (Sue E. Estroff)""; ""Note""
""Case 2. Community-based HIV Research""""Introduction""; ""Community Assessment and Perceptions: Preparation for HIV Vaccine Efficacy Trials (Lynn Blanchard)""; ""Introduction""; ""Description of Project""; ""Location of Project""; ""Community Advisory Board""; ""Note""; ""Commentary 1. Community Advisory Board-Investigator Relationships in Community-Based HIV/AIDS Research (Ronald P. Strauss)""; ""Introduction""; ""Ethical and Social Issues""; ""The Rationale of Research""; ""The Uses of the Research""
""Commentary 2. Research Partnerships and People ""at Risk"": HIV Vaccine Efficacy Trials and African American Communities (Keith A. Wailoo)""""Note""; ""Case 3. Corporate Sponsorship of Research""; ""Introduction""; ""Truth-in-Funding: Studying the Infant-feeding Controversy with Industry Support (Barry M. Popkin)""; ""Introduction""; ""History of the Infant-Feeding Project at UNC-CH""; ""What Did We Study?""; ""Why Not NIH?""; ""Ethical Implications of the Issues""; ""The Current Situation Regarding Industry Sponsorship of Research""; ""Personal Conclusions""; ""Funding Source Biases""
""Openness about Funding Sources""""Postmortem""; ""Notes""; ""Commentary 1. Bias and Conflicts of Interest in Science: Controversial Industry Funding of Infant-feeding Studies (Loretta M. Kopelman)""; ""The Scientific Framework""; ""The Framework Assumptions of Advocacy""; ""The Framework Assumptions of Business""; ""Multiple Frameworks""; ""Notes""; ""Commentary 2. Context and Community: Assessing the Ethics of Industry-Funded Research (Allan M. Brandt and Laura Freidenfelds)""; ""Contexts""; ""Interests""; ""Policy""; ""Conclusions""; ""Case 4. Risk and Trust in Abortion Research""
""Introduction""
Record Nr. UNINA-9910777576403321
Chapel Hill, : University of North Carolina Press, c1999
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Beyond regulations [[electronic resource] ] : ethics in human subjects research / / edited by Nancy M.P. King, Gail E. Henderson, Jane Stein
Pubbl/distr/stampa Chapel Hill, : University of North Carolina Press, c1999
Descrizione fisica 1 online resource (293 p.)
Disciplina 174/.28
Altri autori (Persone) KingNancy M. P
HendersonGail <1949->
SteinJane
Collana Studies in social medicine
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Medical ethics
ISBN 979-88-908677-8-0
0-8078-7606-2
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Foreword""; ""Acknowledgments""; ""Introduction. Relationships in Research: A New Paradigm""; ""A Brief History: Images and Ethics of Human Subjects Research""; ""Problem Cases""; ""Moral Principles""; ""Domestic and International Research: Do the Regulations Apply?""; ""Policy: The Regulations""; ""CIOMS Guidelines""; ""A Paradigm Shift: Are the Regulations Enough?""; ""Toward a New Analysis""; ""Notes""; ""Keynote Essay""; ""Introduction""; ""Is Ethics Universal?: Gender, Science, and Culture in Reproductive Health Research (Ruth Macklin)""
""The Universality of Ethical Principles Governing Research""""Research Ethics beyond Regulations""; ""Conclusion""; ""Notes""; ""Case 1. Contracts and Covenants""; ""Introduction""; ""Contract and Covenant in Curacao: Reciprocal Relationships in Scholarly Research (Alan F. Benjamin)""; ""Setting""; ""Issues and Motivations""; ""Discussion""; ""Notes""; ""Commentary 1. Contract and Covenant in Ethnographic Research (Renee C. Fox)""; ""Note""; ""Commentary 2. The Gaze of Scholars and Subjects: Roles, Relationships, and Obligations in Ethnographic Research (Sue E. Estroff)""; ""Note""
""Case 2. Community-based HIV Research""""Introduction""; ""Community Assessment and Perceptions: Preparation for HIV Vaccine Efficacy Trials (Lynn Blanchard)""; ""Introduction""; ""Description of Project""; ""Location of Project""; ""Community Advisory Board""; ""Note""; ""Commentary 1. Community Advisory Board-Investigator Relationships in Community-Based HIV/AIDS Research (Ronald P. Strauss)""; ""Introduction""; ""Ethical and Social Issues""; ""The Rationale of Research""; ""The Uses of the Research""
""Commentary 2. Research Partnerships and People ""at Risk"": HIV Vaccine Efficacy Trials and African American Communities (Keith A. Wailoo)""""Note""; ""Case 3. Corporate Sponsorship of Research""; ""Introduction""; ""Truth-in-Funding: Studying the Infant-feeding Controversy with Industry Support (Barry M. Popkin)""; ""Introduction""; ""History of the Infant-Feeding Project at UNC-CH""; ""What Did We Study?""; ""Why Not NIH?""; ""Ethical Implications of the Issues""; ""The Current Situation Regarding Industry Sponsorship of Research""; ""Personal Conclusions""; ""Funding Source Biases""
""Openness about Funding Sources""""Postmortem""; ""Notes""; ""Commentary 1. Bias and Conflicts of Interest in Science: Controversial Industry Funding of Infant-feeding Studies (Loretta M. Kopelman)""; ""The Scientific Framework""; ""The Framework Assumptions of Advocacy""; ""The Framework Assumptions of Business""; ""Multiple Frameworks""; ""Notes""; ""Commentary 2. Context and Community: Assessing the Ethics of Industry-Funded Research (Allan M. Brandt and Laura Freidenfelds)""; ""Contexts""; ""Interests""; ""Policy""; ""Conclusions""; ""Case 4. Risk and Trust in Abortion Research""
""Introduction""
Record Nr. UNINA-9910816280503321
Chapel Hill, : University of North Carolina Press, c1999
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
Autore Schneider Carl <1948->
Pubbl/distr/stampa Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Descrizione fisica 1 online resource (292 p.)
Disciplina 174.2/8
Collana Basic Bioethics
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Bioethics
Soggetto genere / forma Electronic books.
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Series Foreword""; ""Preface""; ""Acknowledgments""; ""Introduction""; ""Part I: More Good than Harm""; ""1 Research Risk and Regulationist Stereotypes""; ""2 Cost Is No Object""; ""Part II: The Quality of IRB Decisions""; ""3 Arbitrary and Capricious Decisions""; ""4 The Misshapen Ideology of the IRB System""; ""5 The Rule of Law: The Lessons of Due Process""; ""6 Censorship in a System of Free Expression""; ""Conclusion: The Imperial IRB""; ""Notes""; ""Index""; ""Basic Bioethics Series List""
Record Nr. UNINA-9910463609003321
Schneider Carl <1948->  
Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
Autore Schneider Carl <1948->
Pubbl/distr/stampa Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Descrizione fisica 1 online resource (292 p.)
Disciplina 174.2/8
Collana Basic Bioethics
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Bioethics
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Series Foreword""; ""Preface""; ""Acknowledgments""; ""Introduction""; ""Part I: More Good than Harm""; ""1 Research Risk and Regulationist Stereotypes""; ""2 Cost Is No Object""; ""Part II: The Quality of IRB Decisions""; ""3 Arbitrary and Capricious Decisions""; ""4 The Misshapen Ideology of the IRB System""; ""5 The Rule of Law: The Lessons of Due Process""; ""6 Censorship in a System of Free Expression""; ""Conclusion: The Imperial IRB""; ""Notes""; ""Index""; ""Basic Bioethics Series List""
Record Nr. UNINA-9910788111903321
Schneider Carl <1948->  
Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
The censor's hand : the misregulation of human-subject research / / Carl E. Schneider
Autore Schneider Carl <1948->
Pubbl/distr/stampa Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Descrizione fisica 1 online resource (292 p.)
Disciplina 174.2/8
Collana Basic Bioethics
Soggetto topico Human experimentation in medicine - Moral and ethical aspects
Bioethics
Formato Materiale a stampa
Livello bibliografico Monografia
Lingua di pubblicazione eng
Nota di contenuto ""Contents""; ""Series Foreword""; ""Preface""; ""Acknowledgments""; ""Introduction""; ""Part I: More Good than Harm""; ""1 Research Risk and Regulationist Stereotypes""; ""2 Cost Is No Object""; ""Part II: The Quality of IRB Decisions""; ""3 Arbitrary and Capricious Decisions""; ""4 The Misshapen Ideology of the IRB System""; ""5 The Rule of Law: The Lessons of Due Process""; ""6 Censorship in a System of Free Expression""; ""Conclusion: The Imperial IRB""; ""Notes""; ""Index""; ""Basic Bioethics Series List""
Record Nr. UNINA-9910819134803321
Schneider Carl <1948->  
Cambridge, Massachusetts ; ; London, England : , : The MIT Press, , 2015
Materiale a stampa
Lo trovi qui: Univ. Federico II
Opac: Controlla la disponibilità qui