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Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910458020103321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910781943703321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Achieving justice in genomic translation : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910828217803321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The end of genetics : designing humanity's DNA / / David B. Goldstein
| The end of genetics : designing humanity's DNA / / David B. Goldstein |
| Autore | Goldstein David B. |
| Pubbl/distr/stampa | New Haven, CT : , : Yale University Press, , 2021 |
| Descrizione fisica | 1 online resource |
| Disciplina | 174.957 |
| Soggetto topico |
Genetics - Moral and ethical aspects
Genetic screening - Moral and ethical aspects |
| Soggetto non controllato |
Popular medicine
Medical ethics Genetics |
| ISBN |
0-300-26254-X
9780300262544 030026254X 9780300219395 0300219393 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Frontmatter -- Acknowledgments -- Introduction -- Chapter 1. The Future of Reproduction -- Chapter 2. Learning to Read the Human Genome -- Chapter 3. The Nature of Human Genetic Variation -- Chapter 4. DNA and Human Disease -- Chapter 5. Writing the Genomes of Our Children. |
| Record Nr. | UNINA-9910795541803321 |
Goldstein David B.
|
||
| New Haven, CT : , : Yale University Press, , 2021 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The end of genetics : designing humanity's DNA / / David B. Goldstein
| The end of genetics : designing humanity's DNA / / David B. Goldstein |
| Autore | Goldstein David B. |
| Pubbl/distr/stampa | New Haven, CT : , : Yale University Press, , 2021 |
| Descrizione fisica | 1 online resource |
| Disciplina | 174.957 |
| Soggetto topico |
Genetics - Moral and ethical aspects
Genetic screening - Moral and ethical aspects |
| Soggetto non controllato |
Popular medicine
Medical ethics Genetics |
| ISBN |
0-300-26254-X
9780300262544 030026254X 9780300219395 0300219393 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Frontmatter -- Acknowledgments -- Introduction -- Chapter 1. The Future of Reproduction -- Chapter 2. Learning to Read the Human Genome -- Chapter 3. The Nature of Human Genetic Variation -- Chapter 4. DNA and Human Disease -- Chapter 5. Writing the Genomes of Our Children. |
| Record Nr. | UNINA-9910827823603321 |
|
Goldstein David B.
|
||
| New Haven, CT : , : Yale University Press, , 2021 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The ethics of consent and choice in prenatal screening [[electronic resource] /] / by Eleanor Milligan
| The ethics of consent and choice in prenatal screening [[electronic resource] /] / by Eleanor Milligan |
| Autore | Milligan Eleanor |
| Pubbl/distr/stampa | Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 |
| Descrizione fisica | 1 online resource (252 p.) |
| Disciplina |
174.29824
618.32 |
| Soggetto topico |
Prenatal diagnosis - Moral and ethical aspects
Informed consent (Medical law) - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-283-14222-8
1-4438-2768-1 9786613142221 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | TABLE OF CONTENTS; INTRODUCTION; CHAPTER ONE; CHAPTER TWO; CHAPTER THREE; CHAPTER FOUR; CHAPTER FIVE; CHAPTER SIX; CHAPTER SEVEN; CHAPTER EIGHT; CHAPTER NINE; EPILOGUE; REFERENCES; INDEX |
| Record Nr. | UNINA-9910464090603321 |
|
Milligan Eleanor
|
||
| Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The ethics of consent and choice in prenatal screening [[electronic resource] /] / by Eleanor Milligan
| The ethics of consent and choice in prenatal screening [[electronic resource] /] / by Eleanor Milligan |
| Autore | Milligan Eleanor |
| Pubbl/distr/stampa | Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 |
| Descrizione fisica | 1 online resource (252 p.) |
| Disciplina |
174.29824
618.32 |
| Soggetto topico |
Prenatal diagnosis - Moral and ethical aspects
Informed consent (Medical law) - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-14222-8
1-4438-2768-1 9786613142221 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | TABLE OF CONTENTS; INTRODUCTION; CHAPTER ONE; CHAPTER TWO; CHAPTER THREE; CHAPTER FOUR; CHAPTER FIVE; CHAPTER SIX; CHAPTER SEVEN; CHAPTER EIGHT; CHAPTER NINE; EPILOGUE; REFERENCES; INDEX |
| Record Nr. | UNINA-9910788434803321 |
|
Milligan Eleanor
|
||
| Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The ethics of consent and choice in prenatal screening / / by Eleanor Milligan
| The ethics of consent and choice in prenatal screening / / by Eleanor Milligan |
| Autore | Milligan Eleanor |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 |
| Descrizione fisica | 1 online resource (252 p.) |
| Disciplina |
174.29824
618.32 |
| Soggetto topico |
Prenatal diagnosis - Moral and ethical aspects
Informed consent (Medical law) - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-14222-8
1-4438-2768-1 9786613142221 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | TABLE OF CONTENTS; INTRODUCTION; CHAPTER ONE; CHAPTER TWO; CHAPTER THREE; CHAPTER FOUR; CHAPTER FIVE; CHAPTER SIX; CHAPTER SEVEN; CHAPTER EIGHT; CHAPTER NINE; EPILOGUE; REFERENCES; INDEX |
| Record Nr. | UNINA-9910824608703321 |
|
Milligan Eleanor
|
||
| Newcastle upon Tyne, : Cambridge Scholars Pub., 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic privacy : a challenge to medico-legal norms / / Graeme Laurie [[electronic resource]]
| Genetic privacy : a challenge to medico-legal norms / / Graeme Laurie [[electronic resource]] |
| Autore | Laurie G. T (Graeme T.) |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2002 |
| Descrizione fisica | 1 online resource (xxv, 335 pages) : digital, PDF file(s) |
| Disciplina | 344/.04196 |
| Soggetto topico |
Genetic engineering - Law and legislation
Genetic screening - Moral and ethical aspects Privacy, Right of |
| ISBN |
1-107-11777-1
1-280-42077-4 0-511-17651-1 0-511-01969-6 0-511-15739-8 0-511-32556-8 0-511-49534-X 0-511-04848-3 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Privacy: the general part -- 1. Health care, patient rights and privacy -- 2. Privacy: anti-social concept or fundamental right? -- Genetic knowledge: the existing models -- 3. Human genetics and genetic privacy -- 4. Autonomy, confidentiality and privacy -- A new privacy paradigm -- 5. Privacy and the public interest -- 6. Privacy and property? |
| Record Nr. | UNINA-9910450188703321 |
|
Laurie G. T (Graeme T.)
|
||
| Cambridge : , : Cambridge University Press, , 2002 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic privacy : a challenge to medico-legal norms / / Graeme Laurie [[electronic resource]]
| Genetic privacy : a challenge to medico-legal norms / / Graeme Laurie [[electronic resource]] |
| Autore | Laurie G. T (Graeme T.) |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2002 |
| Descrizione fisica | 1 online resource (xxv, 335 pages) : digital, PDF file(s) |
| Disciplina | 344/.04196 |
| Soggetto topico |
Genetic engineering - Law and legislation
Genetic screening - Moral and ethical aspects Privacy, Right of |
| ISBN |
1-107-11777-1
1-280-42077-4 0-511-17651-1 0-511-01969-6 0-511-15739-8 0-511-32556-8 0-511-49534-X 0-511-04848-3 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Privacy: the general part -- 1. Health care, patient rights and privacy -- 2. Privacy: anti-social concept or fundamental right? -- Genetic knowledge: the existing models -- 3. Human genetics and genetic privacy -- 4. Autonomy, confidentiality and privacy -- A new privacy paradigm -- 5. Privacy and the public interest -- 6. Privacy and property? |
| Record Nr. | UNINA-9910783049703321 |
|
Laurie G. T (Graeme T.)
|
||
| Cambridge : , : Cambridge University Press, , 2002 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
