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A multi-disciplinary approach to managing Ehlers-Danlos (type III)--hypermobility syndrome [[electronic resource]] : working with the chronic complex patient / / Isobel Knight
| A multi-disciplinary approach to managing Ehlers-Danlos (type III)--hypermobility syndrome [[electronic resource]] : working with the chronic complex patient / / Isobel Knight |
| Autore | Knight Isobel |
| Pubbl/distr/stampa | London ; ; Philadelphia, Pa., : Singing Dragon, c2013 |
| Descrizione fisica | 1 online resource (364 p.) |
| Disciplina | 616.77062 |
| Soggetto topico |
Ehlers-Danlos Syndrome
Health care teams |
| ISBN |
1-299-31293-4
0-85701-055-7 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
A Multidisciplinary Approach to Managing Ehlers-Danlos (Type III) -Hypermobility Syndrome: Working with theChronic Complex Patient; Foreword; Acknowledgements; Preface; Introduction; PART I: THE BODY AND THE SELF; Chapter 1 The body and the self in illness and health: An autoethnographical approach; Chapter 2 Isobel's story; Chapter 3 Visit to consultant rheumatologist; Chapter 4 Implications of diagnosis; PART II: PHYSIOLOGY; Chapter 5 Maslow's Hierarchy of Needs and homeostasis; Chapter 6 Autonomic dysfunction and postural orthostatic tachycardia syndrome (POTS)
Chapter 7 Digestion and bowel problemsChapter 8 Bladder; Chapter 9 Surgical and nursing implications for EDSIII/chronic complex patients; Chapter 10 Hormonal aspects of hypermobility and living with endometriosis; Chapter 11 Sleep and fatigue; Chapter 12 Fatigue and unexpected responses to treatment and incidents; Chapter 13 Crisis, flare-ups and management; Chapter 14 The chronic complex patient and pain management; PART III: PSYCHOLOGY; Preface to Part III: Psychology; Chapter 15 Isobel's experience of working with EDSIII patients as a Bowen therapist Chapter 16 The physiotherapist and patient relationshipChapter 17 Goal-setting and patient review; Chapter 18 Trust; Chapter 19 The challenging patient; Chapter 20 The doctor/patient relationship and treatment of chronic complex patients; Chapter 21 Learning styles and learning 'difficulties'; Chapter 22 Social media, forums and support groups; Chapter 23 Self-harm, anxiety and depression; Chapter 24 Cognitive analytic therapy (CAT); Chapter 25 Managing complex patients with psychological issues: Isobel's reflection; Chapter 26 Terminating client relationships Chapter 27 I'm not mad: I have EDS so why would I need to see a psychologist?PART IV: EXERCISE AND REHABILITATION; Chapter 28 Exercise and rehabilitation: EDS patient experiences of physiotherapy and Isobel's 'stages' of treatment; Chapter 29 Imaging exercises and 'less is more'; Chapter 30 Pilates, physiolates and core stability; Chapter 31 Movement patterns: Overuse and muscle stiffness; Chapter 32 Neurology and movement disorders; Chapter 33 Measuring treatment outcomes and assessing progress; Chapter 34 Returning to normal life Chapter 35 Speech, swallowing and hearing difficulties, TMJ and eye problemsChapter 36 Cervical spine; Chapter 37 The trauma of birth and post-traumatic stress disorder; Chapter 38 The Bowen technique and working on fascia and connective tissue disorders; Chapter 39 The Feldenkrais Method®; Chapter 40 Cardiovascular and endurance work; Chapter 41 Isobel 'now' and thoracic spine; Chapter 42 Conclusion; Appendix 1: Diagnostic criteria; Appendix 2: Sample forms; Appendix 3: Useful contacts; References; Further reading; List of contributors; Subject Index; Author Index |
| Record Nr. | UNINA-9910792191503321 |
Knight Isobel
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| London ; ; Philadelphia, Pa., : Singing Dragon, c2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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Penser la maladie génétique - Enjeux psychologiques et perspectives
| Penser la maladie génétique - Enjeux psychologiques et perspectives |
| Autore | Hélène CHAUMET |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Paris |
| Descrizione fisica | 1 online resource (196 p.) |
| Collana | Psycho-Logiques Series |
| Soggetto topico |
Ehlers-Danlos Syndrome
Marfan Syndrome Physician-Patient Relations Bone Diseases, Developmental Heart Defects, Congenital Skin Abnormalities Professional-Patient Relations Hemostatic Disorders Skin Diseases, Genetic Collagen Diseases Connective Tissue Diseases Abnormalities, Multiple Genetic Diseases, Inborn Hemorrhagic Disorders Skin and Connective Tissue Diseases Delivery of Health Care Skin Diseases Congenital Abnormalities Interpersonal Relations Bone Diseases Vascular Diseases Cardiovascular Abnormalities Congenital, Hereditary, and Neonatal Diseases and Abnormalities Heart Diseases Hematologic Diseases Cardiovascular Diseases Disease Psychology, Social Musculoskeletal Diseases Health Care Quality, Access, and Evaluation Hemic and Lymphatic Diseases Behavior and Behavior Mechanisms Psychiatry |
| ISBN |
9782336684161
2336684160 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | fre |
| Record Nr. | UNINA-9910150277003321 |
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Hélène CHAUMET
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| Paris | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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