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Intro -- Foreword 1 -- Foreword 2 -- Preface -- Acknowledgments -- About the Book -- Contents -- Editor and Contributors -- About the Editor -- Contributors -- Abbreviations -- Part I: Intervention I: Acknowledge the Family Caregiver -- 1: Who Is the Family Caregiver? -- Introduction -- Timing and Family Caregiving -- Research on Nursing Interventions for Family Caregivers -- Nursing Diagnosis: Caregiver Role Strain -- Role as an APRN-CNS -- Being a Family Caregiver -- Being a Family Caregiver Nurse Scientist -- How Should the Nursing Profession Respond? -- Recommended Websites -- Recommended Books -- Conclusion -- References -- Glossary -- Part II: Intervention II: Listen to the Family Caregiver -- 2: When the Family Caregiver Knows Best -- Progressive Supranuclear Palsy -- Dad's Got PSP -- Journey into the Unknown -- Being Invisible -- The Lens of a Clinical Nurse Specialist -- Finding Solutions: Advanced Practice Nursing Support -- If I Could Rewrite Dad's Story -- Being an Advocate -- Symptom Management -- Need to Thrive -- Conclusion -- References -- Glossary -- 3: Caregiver Burnout Is Real -- Introduction -- Dementia and Alzheimer's Disease Statistics -- Dementia and Alzheimer's Disease Caregiving Statistics -- One Caregiver's Story to Another -- Nursing Interventions for Each Stage of Dementia or Alzheimer's -- Tips for Effective Communication -- Key Active Listening Skills -- Coping with Agitation or Aggression Tips -- Self-Care Family Caregiver Tips -- A Family Caregiver Workshop -- Conclusion -- References -- Glossary -- Part III: Intervention III: Diagnose and Prescribe Family Caregiver Care -- 4: Family Caregiving 101 -- Meet Mrs. T and Her Family -- Family Involvement Is Crucial -- Family as Patient -- Implementing Family Caregiving 101 -- Stoma Care -- Three Days Before Discharge -- Conclusion -- Glossary -- References.
5: Family Caregiver Stress in Critical Care -- Introduction -- Greggy's Story -- Brain Death Studies -- Greggy's Story: The Parents -- Nursing During COVID-19 -- Greggy's Story: First Impressions -- Natural Stress of Critical Care Environments -- Greggy's Story: Meeting Mary and Joe -- Personal Reflection -- Greggy's Story: Self-Care Prescriptions All Around -- Rendering Nursing Support -- Conclusion -- References -- Glossary -- 6: Unique Needs of Family Caregiver Immigrants -- Introduction -- Culturally Appropriate Assessments and Health Literacy -- Partnering with Immigrant Family Caregivers -- Nurse Immigrant Care -- Immigrant Care Examples -- Scenario # 1: Identifying the Designated Family Caregiver -- Scenario # 2: Use Teach-Back -- Scenario # 3: Have Written and Oral Communication in Different Languages -- Scenario # 4: Eye Contact or No Eye Contact? -- Scenario # 5: Food Is Often a Family Affair -- Scenario # 6: Respect for Elders -- Scenario # 7: Extended Family Members Under One Roof -- Scenario # 8: Do Not Call Patients by Their First Names -- Scenario # 9: Nursing Home and Hospice Care Is a BIG "No" -- Conclusion -- References -- Glossary -- Part IV: Intervention IV: Educate, Coach, and Role Model Patient Care -- 7: Teaching Family Caregiver Care for the Patient with COPD -- Introduction -- First Contact -- Effective Communication -- Nurse Coaching -- COPD Self-Management Strategies -- Early Discharge Planning -- Pursed-Lip Breathing Technique -- COPD and Physical Activity -- Other Important COPD Cares -- Readiness to Learn -- COPD and Nutrition -- Final Touches -- Conclusion -- Glossary -- References -- 8: When Care Goes Wrong -- Introduction -- Step 1: Move to Memory Care -- Step 2: Improve Communication -- Step 3: Red Flags in Care -- Step 4: The Last Straw -- Step 5: Act -- Step 6: Moving Dad Again -- Step 7: Dad's Done.
Step 8: Dad's Gone -- Elder Neglect and Exploitation -- Conclusion -- References -- Glossary -- 9: Teaching to Speak Up -- Introduction -- Caregiving Challenges -- Breast Biopsy -- Receiving Bad News (Our Story) -- Tips on Delivering Bad News -- Tips on Receiving Bad News -- Tips Before Calling an HCP -- Follow-Up Care -- Treatment Options -- Treatment Options: Our Story -- Know All Options and Possible Consequences of Each -- Tips for FCs on Caring for Loved Ones with Breast Cancer -- Communication Tips for FCs of Cancer Patients -- "Speak Up" Campaigns -- Speaking Up! -- Conclusion -- References -- Glossary -- 10: Teaching Family Caregivers About Cancer Treatments -- Introduction -- A Cancer Diagnosis -- The Oncology Nurse Navigator -- Acute Myeloid Leukemia (Audrey, Allen, and Their Unborn) -- Educate, Advocate, and Coordinate -- Safe Delivery -- Preparing for Chemotherapy -- Printed Materials -- Induction Chemotherapy -- Role Reversal and Burnout -- Additional Resources -- Home Together -- Ring the Bell -- Getting to Complete Remission -- Gratitude -- Conclusion -- References -- Glossary -- 11: Managing Symptoms During End-of-Life Care -- Introduction -- EOL Care Challenges -- Pain Management -- Caring for Grandma (My Story) -- Managing Breathing Problems -- Managing Skin Integrity Issues -- Oral Care -- Managing Digestive Issues -- Managing Emotional Needs -- Spiritual Needs at EOL -- Saying "Goodbye" After a Traumatic, Unexpected Injury -- Conversation Starters to Understand Wishes -- EOL Care Options -- Palliative Care -- Hospice Care -- Conclusion -- References -- Glossary -- 12: The Dying Process -- Introduction -- COVID-19 Impact on Dying -- Jane's Angels -- Family Support and EOL Services Team -- Active Dying Process and Family Caregiver Support -- Honoring After Death -- Conclusion -- References -- Glossary.
Part V: Intervention V: Coach on Self-Care for Positive Caregiver Experiences -- 13: Keeping Family Caregiver Self-Care at the Forefront -- Introduction -- Self-Care Needs Among Family Caregivers -- A CNS Student's Project: Family Caregiver Self-Care -- Strategy 1: Getting to Know the FC -- Strategy 2: Assessment -- Strategy 3: Coaching on Self-Care -- Strategy 4: Goal Setting -- Strategy 5: Evaluation (Remarkable Transformations) -- Nurse Self-Care -- Conclusion -- Glossary -- References -- 14: Rural Family Caregiving: When Resources Are Scarce -- Introduction to Homecare Nursing -- Patient Self-Care: Meet Chief -- Urban Vs. Rural Homecare Nursing -- Urban Homecare -- Rural Homecare -- Dan and Ruth's Homecare Experience -- First Contact -- Seeking Options for More Support -- Option #4: Move in with Family -- Being with Family -- Maintaining Quality of Life to the Very End -- Symptom Management -- Adding Home Hospice Care -- Giving Dan All the Control Possible -- Dan Is Gone -- Yes, He Went with the Angels -- Conclusion -- References -- Glossary -- Part VI: Intervention VI: Support Critical Family Caregiver Decisions -- 15: Family Caregiver Support with Advance Care Planning -- Introduction: The Morbid Conversation -- Understanding Advance Care Planning -- Steps for Nurses in the ACP Process -- Knowledge Is Power -- Booklet or Guide -- Meaningful Discussions -- Copies of Documents -- The Nurse's Role in Supporting Critical Decisions -- Educating on ACP -- Making Medical Decisions -- Creating a Supportive Environment -- Support Through Communication -- Family Meetings -- The Power of Listening -- Conclusion -- References -- Glossary -- 16: The Move from Home to Alternative Living -- Introduction -- Mr. and Mrs. B -- Temporary Use of an ALF -- Nurse's Role in Transitions to an ALF -- When Patients Refuse to Go: Mrs. Parks -- Education on DPOAs.
Balancing Opposing Decisions -- Patience -- Overview of Housing Options -- Older Adult Housing -- ALF -- SNFs -- Other Factors to Consider -- Financial Considerations -- Emotional Adjustment -- Loss of Independence -- Benefits of Transitioning to Alternative Living -- Personalized Care and Support -- Social Engagement -- Safety and Accessibility -- Complex Decisions Require Nursing Support -- Nurse as Housing Expert and FC Coach -- Conclusion -- References -- Glossary -- Part VII: Intervention VII: Evaluate Effectiveness of Family Caregiver Care on Patient Outcomes -- 17: Family Caregiver Cancer Care -- Introduction -- Case Study #1: George and Irene -- Case Study #2: Mark and Lisa -- Case Study #3: John and Sarah -- Conclusion -- Glossary -- References -- 18: Family Caregiver Veteran Care -- Introduction -- Qualitative Research (Methods) -- Interview Guide Questions -- The Findings -- Care at the VA -- Typical Day as a Veteran FC -- Outside Help -- Guilt and Lack of Support -- Important Considerations -- Dad's Daughter Again -- Current VA Structure and Support of FCs -- Veteran FC Benefits -- Bridging the Gaps in Veteran FC Care -- Potential Consequences of Caregiver Role -- VA Benefit Barriers -- The Nurses' Role -- Individualized Training -- Care Coordination -- Educate on Benefits and Services -- Self-Care Advocacy -- Transitional Care -- Conclusion -- Glossary -- References -- 19: Family Caregiver Dementia Care -- Introduction -- Patience Is Vital -- Catherine and Anne (Mom and Daughter) -- Elder Abuse -- My Experience -- Empathy Is Key -- Identifying Resources -- Conclusion -- References -- Glossary -- Part VIII: Intervention VIII: Evaluate Outcomes of Family Caregiver Self-Care -- 20: Markers of Successful Family Caregiver Self-Care -- Introduction -- Typical Adult Child Caregiver Experience (Pre-Intervention).
Markers of an Effective Caregiving Experience.
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10 Nursing Interventions for Family Caregivers : Guide to Best Practices in Adult-Gerontology Patient Care
