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An Act to Direct the Secretary of Health and Human Services to Support Research on, and Expanded Access to Investigational Drugs for Amyotrophic Lateral Sclerosis, and for Other Purposes
| An Act to Direct the Secretary of Health and Human Services to Support Research on, and Expanded Access to Investigational Drugs for Amyotrophic Lateral Sclerosis, and for Other Purposes |
| Pubbl/distr/stampa | [Washington, D.C.] : , : [U.S. Government Publishing Office], , [2021] |
| Descrizione fisica | 1 online resource (6 unnumbered pages) |
| Soggetto topico |
Amyotrophic lateral sclerosis
Federal aid to medical care research - United States |
| Soggetto genere / forma | Statutes and codes. |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910717006103321 |
| [Washington, D.C.] : , : [U.S. Government Publishing Office], , [2021] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis [[electronic resource] /] / Robert G. Miller, Deborah Gelinas, Patricia O'Connor
| Amyotrophic lateral sclerosis [[electronic resource] /] / Robert G. Miller, Deborah Gelinas, Patricia O'Connor |
| Autore | Miller Robert G (Robert Gordon), <1942-> |
| Pubbl/distr/stampa | New York, : Demos Medical Pub., c2005 |
| Descrizione fisica | 1 online resource (280 p.) |
| Disciplina | 616.8/3 |
| Altri autori (Persone) |
GelinasDeborah F <1956-> (Deborah Faith)
O'ConnorPatricia <1954-> |
| Soggetto topico | Amyotrophic lateral sclerosis |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-934559-06-7
9786611974879 1-281-97487-0 1-61705-083-0 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Title; Copyright; Contents; Preface; Contributors; Chapter 1: What Is ALS?; Definitions; Motor Neuron System and Motor Neurons; ALS and Frontotemporal Dementia; ALS Lookalikes: Differential Diagnosis; Sporadic, Familial, and Western Pacific ALS; Familial ALS; Western Pacific ALS/PDC; Clinical Phenomenology: Onset and Spread; Pathophysiology at Tissue and Cellular Level; Descriptive Epidemiology of Sporadic ALS/MND; Environmental Risk Factors: Analytic Epidemiology; ALS as One of the System Degeneration Diseases; References; Chapter 2: Neurological Assessment and Medical Management
When to Suspect ALSHow to Diagnose ALS; ALS Mimics; Breaking the News; Assessments That are Important for Patient Care; Predicting Progression; Caring for Patients with ALS; Managing Common Symptoms; Pros and Cons of Specific ALS Therapies; Alternative and Off-Label Treatments; Resources Available to ALS Patients and Their Families; References; Chapter 3: Nursing: Care and Coordination; A Lasting Impression: The Day of Diagnosis; Coordination of the Multidisciplinary Clinic; The Nurse as the Glue that Holds It All Together; Preparing for Clinic Day Essential Patient Evaluations at Every ClinicKeeping the Day Organized; Communication Between Team Members on Clinic Day; Take-Home Messages for Patients; Post-Clinic Meeting; A Little Bit of Everything: Essentials of Each Discipline That the Nurse Must Know; Social Work; Speech and Swallowing; Patient Education; Special Issues; Resources for Professional Development; Visiting Established ALS Centers; Research Opportunities for Patients; Caring for the Caregiver; References; Chapter 4: Speech and Swallowing Interventions; Speech Features of ALS; Motor Speech/Dysarthria; Voice Speaking Rate and IntelligibilityCommunication Effectiveness; Assessments; Dysarthria; Voice; Intelligibility; Communication Effectiveness; Speech Staging; Interventions; Compensatory Strategies; Voice Banking; Timing Referrals for AAC; Patient and Caregiver Education; Swallowing Features of ALS; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Sensory Differences for ALS; Swallowing Assessment; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Time to Consume Meals; MBSS/FEES; Timing Referrals for Percutaneous Endoscopic Gastrostomy (PEG); Interventions; Exercises; Swallowing Safety Conserving EnergyManaging Secretions; References; Chapter 5: Nutrition and Nutrition Therapy; A Well-Balanced Diet; Nutritional Challenges in ALS; Integrated Approach to Nutritional Management in ALS; Diet Modification and Eating Strategies; Problems with Self Feeding; Chewing and Swallowing Difficulties; Diet Modification to Increase Calories; Hydration; Constipation; Determine if a Patient Is in Positive or Negative Energy Balance; Recommending a G-Tube as an Alternative Route for Nutritional Intake if EI < TDEE; Risk Stratification for G-Tube Insertion Based on %FVC; Dietary Supplements Resources for People with ALS and Caregivers |
| Record Nr. | UNINA-9910462987003321 |
Miller Robert G (Robert Gordon), <1942->
|
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| New York, : Demos Medical Pub., c2005 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis [[electronic resource] /] / Robert G. Miller, Deborah Gelinas, Patricia O'Connor
| Amyotrophic lateral sclerosis [[electronic resource] /] / Robert G. Miller, Deborah Gelinas, Patricia O'Connor |
| Autore | Miller Robert G (Robert Gordon), <1942-> |
| Pubbl/distr/stampa | New York, : Demos Medical Pub., c2005 |
| Descrizione fisica | 1 online resource (280 p.) |
| Disciplina | 616.8/3 |
| Altri autori (Persone) |
GelinasDeborah F <1956-> (Deborah Faith)
O'ConnorPatricia <1954-> |
| Soggetto topico | Amyotrophic lateral sclerosis |
| ISBN |
1-934559-06-7
9786611974879 1-281-97487-0 1417554126 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Title; Copyright; Contents; Preface; Contributors; Chapter 1: What Is ALS?; Definitions; Motor Neuron System and Motor Neurons; ALS and Frontotemporal Dementia; ALS Lookalikes: Differential Diagnosis; Sporadic, Familial, and Western Pacific ALS; Familial ALS; Western Pacific ALS/PDC; Clinical Phenomenology: Onset and Spread; Pathophysiology at Tissue and Cellular Level; Descriptive Epidemiology of Sporadic ALS/MND; Environmental Risk Factors: Analytic Epidemiology; ALS as One of the System Degeneration Diseases; References; Chapter 2: Neurological Assessment and Medical Management
When to Suspect ALSHow to Diagnose ALS; ALS Mimics; Breaking the News; Assessments That are Important for Patient Care; Predicting Progression; Caring for Patients with ALS; Managing Common Symptoms; Pros and Cons of Specific ALS Therapies; Alternative and Off-Label Treatments; Resources Available to ALS Patients and Their Families; References; Chapter 3: Nursing: Care and Coordination; A Lasting Impression: The Day of Diagnosis; Coordination of the Multidisciplinary Clinic; The Nurse as the Glue that Holds It All Together; Preparing for Clinic Day Essential Patient Evaluations at Every ClinicKeeping the Day Organized; Communication Between Team Members on Clinic Day; Take-Home Messages for Patients; Post-Clinic Meeting; A Little Bit of Everything: Essentials of Each Discipline That the Nurse Must Know; Social Work; Speech and Swallowing; Patient Education; Special Issues; Resources for Professional Development; Visiting Established ALS Centers; Research Opportunities for Patients; Caring for the Caregiver; References; Chapter 4: Speech and Swallowing Interventions; Speech Features of ALS; Motor Speech/Dysarthria; Voice Speaking Rate and IntelligibilityCommunication Effectiveness; Assessments; Dysarthria; Voice; Intelligibility; Communication Effectiveness; Speech Staging; Interventions; Compensatory Strategies; Voice Banking; Timing Referrals for AAC; Patient and Caregiver Education; Swallowing Features of ALS; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Sensory Differences for ALS; Swallowing Assessment; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Time to Consume Meals; MBSS/FEES; Timing Referrals for Percutaneous Endoscopic Gastrostomy (PEG); Interventions; Exercises; Swallowing Safety Conserving EnergyManaging Secretions; References; Chapter 5: Nutrition and Nutrition Therapy; A Well-Balanced Diet; Nutritional Challenges in ALS; Integrated Approach to Nutritional Management in ALS; Diet Modification and Eating Strategies; Problems with Self Feeding; Chewing and Swallowing Difficulties; Diet Modification to Increase Calories; Hydration; Constipation; Determine if a Patient Is in Positive or Negative Energy Balance; Recommending a G-Tube as an Alternative Route for Nutritional Intake if EI < TDEE; Risk Stratification for G-Tube Insertion Based on %FVC; Dietary Supplements Resources for People with ALS and Caregivers |
| Record Nr. | UNINA-9910786065403321 |
|
Miller Robert G (Robert Gordon), <1942->
|
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| New York, : Demos Medical Pub., c2005 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic Lateral Sclerosis : Recent Advances and Therapeutic Challenges / / Muralidhar L. Hegde, editor
| Amyotrophic Lateral Sclerosis : Recent Advances and Therapeutic Challenges / / Muralidhar L. Hegde, editor |
| Pubbl/distr/stampa | [Place of publication not identified] : , : IntechOpen, , [2020] |
| Descrizione fisica | 1 online resource (160 pages) : illustrations |
| Disciplina | 616.83 |
| Soggetto topico |
Amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis - Treatment |
| ISBN | 1-83880-581-8 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910417994103321 |
| [Place of publication not identified] : , : IntechOpen, , [2020] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic Lateral Sclerosis / / edited by Muralidhar L. Hegde
| Amyotrophic Lateral Sclerosis / / edited by Muralidhar L. Hegde |
| Pubbl/distr/stampa | London, United Kingdom : , : IntechOpen, , 2020 |
| Descrizione fisica | 1 online resource (160 pages) : illustrations |
| Disciplina | 616.83 |
| Soggetto topico |
Amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis - Treatment |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Altri titoli varianti | Amyotrophic Lateral Sclerosis |
| Record Nr. | UNINA-9910688418103321 |
| London, United Kingdom : , : IntechOpen, , 2020 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis : understanding and optimizing quality of life and psychological well-being / / edited by Francesco Pagnini, Zachary Simmons
| Amyotrophic lateral sclerosis : understanding and optimizing quality of life and psychological well-being / / edited by Francesco Pagnini, Zachary Simmons |
| Edizione | [First edition.] |
| Pubbl/distr/stampa | New York, New York : , : Oxford University Press, , 2018 |
| Descrizione fisica | 1 online resource (288 pages) : illustrations |
| Disciplina | 616.83 |
| Collana | NIH publication |
| Soggetto topico |
Amyotrophic lateral sclerosis
Amyotrophic lateral sclerosis - Psychological aspects |
| ISBN |
0-19-107514-0
0-19-181761-9 0-19-107513-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910714378403321 |
| New York, New York : , : Oxford University Press, , 2018 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis : a patient care guide for clinicians / / editors, Richard S. Bedlack, Hiroshi Mitsumoto
| Amyotrophic lateral sclerosis : a patient care guide for clinicians / / editors, Richard S. Bedlack, Hiroshi Mitsumoto |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | New York, NY, : Demos Medical Publishing, LLC, 2013 |
| Descrizione fisica | 1 online resource (280 p.) |
| Disciplina | 616.8/3 |
| Altri autori (Persone) |
BedlackRichard S
MitsumotoHiroshi |
| Soggetto topico |
Amyotrophic lateral sclerosis
Motor neurons - Diseases |
| ISBN |
1417554126
1-934559-06-7 9786611974879 1-281-97487-0 1-61705-083-0 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Title; Copyright; Contents; Preface; Contributors; Chapter 1: What Is ALS?; Definitions; Motor Neuron System and Motor Neurons; ALS and Frontotemporal Dementia; ALS Lookalikes: Differential Diagnosis; Sporadic, Familial, and Western Pacific ALS; Familial ALS; Western Pacific ALS/PDC; Clinical Phenomenology: Onset and Spread; Pathophysiology at Tissue and Cellular Level; Descriptive Epidemiology of Sporadic ALS/MND; Environmental Risk Factors: Analytic Epidemiology; ALS as One of the System Degeneration Diseases; References; Chapter 2: Neurological Assessment and Medical Management
When to Suspect ALSHow to Diagnose ALS; ALS Mimics; Breaking the News; Assessments That are Important for Patient Care; Predicting Progression; Caring for Patients with ALS; Managing Common Symptoms; Pros and Cons of Specific ALS Therapies; Alternative and Off-Label Treatments; Resources Available to ALS Patients and Their Families; References; Chapter 3: Nursing: Care and Coordination; A Lasting Impression: The Day of Diagnosis; Coordination of the Multidisciplinary Clinic; The Nurse as the Glue that Holds It All Together; Preparing for Clinic Day Essential Patient Evaluations at Every ClinicKeeping the Day Organized; Communication Between Team Members on Clinic Day; Take-Home Messages for Patients; Post-Clinic Meeting; A Little Bit of Everything: Essentials of Each Discipline That the Nurse Must Know; Social Work; Speech and Swallowing; Patient Education; Special Issues; Resources for Professional Development; Visiting Established ALS Centers; Research Opportunities for Patients; Caring for the Caregiver; References; Chapter 4: Speech and Swallowing Interventions; Speech Features of ALS; Motor Speech/Dysarthria; Voice Speaking Rate and IntelligibilityCommunication Effectiveness; Assessments; Dysarthria; Voice; Intelligibility; Communication Effectiveness; Speech Staging; Interventions; Compensatory Strategies; Voice Banking; Timing Referrals for AAC; Patient and Caregiver Education; Swallowing Features of ALS; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Sensory Differences for ALS; Swallowing Assessment; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Time to Consume Meals; MBSS/FEES; Timing Referrals for Percutaneous Endoscopic Gastrostomy (PEG); Interventions; Exercises; Swallowing Safety Conserving EnergyManaging Secretions; References; Chapter 5: Nutrition and Nutrition Therapy; A Well-Balanced Diet; Nutritional Challenges in ALS; Integrated Approach to Nutritional Management in ALS; Diet Modification and Eating Strategies; Problems with Self Feeding; Chewing and Swallowing Difficulties; Diet Modification to Increase Calories; Hydration; Constipation; Determine if a Patient Is in Positive or Negative Energy Balance; Recommending a G-Tube as an Alternative Route for Nutritional Intake if EI < TDEE; Risk Stratification for G-Tube Insertion Based on %FVC; Dietary Supplements Resources for People with ALS and Caregivers |
| Record Nr. | UNINA-9910970430803321 |
| New York, NY, : Demos Medical Publishing, LLC, 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis / / edited by Martin Henrik Maurer
| Amyotrophic lateral sclerosis / / edited by Martin Henrik Maurer |
| Pubbl/distr/stampa | Rijeka, Croatia : , : IntechOpen, , [2011] |
| Descrizione fisica | 1 online resource (740 pages) |
| Disciplina | 616.83 |
| Soggetto topico | Amyotrophic lateral sclerosis |
| ISBN | 953-51-4379-4 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910138154403321 |
| Rijeka, Croatia : , : IntechOpen, , [2011] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases
| Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases |
| Pubbl/distr/stampa | Basingtoke, Hampshire, U.K., : Taylor & Francis |
| Soggetto topico |
Amyotrophic lateral sclerosis
Motor neurons - Diseases Amyotrophic Lateral Sclerosis Motor Neurons Sclérose latérale amyotrophique |
| Soggetto genere / forma | Periodicals. |
| ISSN | 1471-180X |
| Formato | Materiale a stampa |
| Livello bibliografico | Periodico |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910154542703321 |
| Basingtoke, Hampshire, U.K., : Taylor & Francis | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Amyotrophic lateral sclerosis and frontotemporal degeneration
| Amyotrophic lateral sclerosis and frontotemporal degeneration |
| Pubbl/distr/stampa | [London, England], : [Informa Healthcare], 2000- |
| Descrizione fisica | 1 online resource |
| Disciplina | 616.839 |
| Soggetto topico |
Amyotrophic lateral sclerosis
Frontotemporal Lobar Degeneration Esclerosi lateral amiotròfica |
| Soggetto genere / forma |
Periodicals.
Revistes electròniques. |
| ISSN | 2167-9223 |
| Formato | Materiale a stampa |
| Livello bibliografico | Periodico |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910154544503321 |
| [London, England], : [Informa Healthcare], 2000- | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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