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Introduction; Katherine Runswick-Cole, Tillie Curran and Kirsty Liddiard -- Part 1: Experience and Building Understandings -- 1. The Texting Project; Blair Manns and Sarah Manns -- 2. The Tree of Participation: our thoughts about growing a culture of participation between young people, parents and health team staff; Jennifer McElwee, David Cox, Tony Cox, Rosemary Holland, Thomas Holland, Theresa Mason, Chloe Pearce, Caroline Sobey, Julie Bugler, Andy James and Beverley Pearce -- 3. “What can I say?”; Wendy Merchant and Jamie Merchant -- 4. The Heaviest Burdens and Life’s Most Intense Fulfilment: a retrospective and re-understanding of my experiences with childhood liver disease and transplantation; Sophie Savage -- 5. My Sister, My World: from second Mum to Nurse; Rebecca Whitehead -- 6. Being a Disabled Woman and Mum: my journey from childhood; Jo Skitteral -- 7. Going ‘off grid’: A mother’s account of refusing disability; Kim Davies -- Part 2: Research Studies -- Part 2.1: Research Involving Disabled Children and Young People -- 8. The social relational model of Deaf childhood in action; Kristin Snoddon and Kathryn Underwood -- 9. Shared Perspectives: the embodiment of disabled children and young people’s voices about participating in recreational activities; Dawn Pickering.-10. Making Space for the Embodied Participation of Young Disabled Children in a Sure Start Children's Centre; Heloise Maconochie -- 11. Interrogating the ‘normal’ in the 'inclusive' early childhood classroom: silence, taboo and the ‘elephant in the room’; Karen Watson -- 12. The kids are alright—they have been included for years; Ben Whitburn -- 13. Expressive eyebrows and beautiful bubbles: Playfulness and children with profound impairments; Debby Watson, Alison Jones and Helen Potter -- 14. My Friends and Me. Friendship and identity following acquired brain injury in young people; Sandra Dowling, Roy McConkey, Marlene Sinclair -- 15. Thinking and Doing Consent and Advocacy in Disabled Children’s Childhood Studies Research; Jill C. Smith -- Part 2.2: Research Involving Parents of Disabled Children, Young people and Adult Children -- 16. The Making of a ‘maternal commons;: re-thinking motherhood through disability; Katherine Runswick-Cole and Dan Goodley -- 17. Autism and Gender in Context: intersectionality in research with fathers of children with the label of autism; Joanne Heeney -- 18. The construction of life trajectories: reflections, research and resolutions for young people with behavioural disabilities;Tania Watson -- 19. Personalisation and Parents: the formalisation of family care for adult children with learning disabilities in England ; Barbara Coles -- Part 3: Ethics and values -- 20. Anonymity, Confidentiality and Informed Consent: exploring ethical quandaries and dilemmas in Research with and about disabled children’s childhoods; Liz Thackray -- 21. Supporting Families in Raising Disabled Children to Enhance African Child Development; Judith McKenzie and Tsitsi Chataika -- 22. Normalcy, Intersectionality and Ableism: teaching about and around ‘inclusion’ to future educators; Jenny Slater and Elizabeth Chapman -- 23. “Just Sumaira: Not Her, Them or It”; Sumaira Nasseem -- Part 4: Theory and Critical Ways of Thinking -- 24. What’s wrong with ‘special’? Thinking differently in New Zealand teacher education about disabled children and their lives; Gill Rutherford and Jude MacArthur -- 25. A Diversity of Crip Childhoods: Considering the Looked After Childhood; Luke Jones and Kirsty Liddiard -- 26. A Relational Understanding of Language Impairment - children's experiences in the context of their social worlds; Helen Hambly -- 27. Resilience in the Lives of Disabled Children: a Many Splendoured Thing; Katherine Runswick-Cole, Dan Goodley and Rebecca Lawthom -- 28. Growing up disabled: Impairment, familial relationships and identity; Brian Watermeyer -- 29. Autistic development, trauma and personhood: beyond the frame of the neoliberal individual; Damian Milton -- Part 5: Changing Practice and Policy -- 30. Making policy for whom? The significance of the ‘psychoanalytic medical humanities’ for policy and practice that affects the lives of disabled children;Harriet Cooper -- 31. Disabled Children’s Childhood Studies and Leadership as Experts by Experience: the case for learning activism in health and social care;Tillie Curran, Ruth Sayers and Barry Percy-Smith -- 32. Being a Speech and Language Therapist: between support and oppression;Anat Greenstein -- 33. “You say .. I hear”: epistemic gaps in Practitioner-parent/carer talk; Nick Hodge and Katherine Runswick-Cole -- 34. Disabled Children in Out-of-Home Care: issues and challenges for practice; Berni Kelly, Sandra Dowling and Karen Winter -- 35. Easy Targets: Seen and not heard - The silencing and invisibility of disabled children and parents in post-reform Aotearoa New Zealand; Rod Wills -- 36. Family Voices in Teacher Education; Peggy Gallagher, Cheryl Rhodes and Karen Young Lewis -- 37. Rights not needs: changing the legal model for special educational needs; Debbie Sayers -- Concluding Thoughts and Future Directions; Kirsty Liddiard, Tillie Curran and Katherine Runswick-Cole. .
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The Palgrave Handbook of Disabled Children’s Childhood Studies / / edited by Katherine Runswick-Cole, Tillie Curran, Kirsty Liddiard
