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The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910460777703321 |
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910797490803321 |
|
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910829137103321 |
|
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Epigenetics and Responsibility : Ethical Perspectives / / ed. by Emma Moormann, Anna Smajdor, Daniela Cutas
| Epigenetics and Responsibility : Ethical Perspectives / / ed. by Emma Moormann, Anna Smajdor, Daniela Cutas |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Bristol : , : Bristol University Press, , [2024] |
| Descrizione fisica | 1 online resource (192 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | SCIENCE / Philosophy & Social Aspects |
| ISBN | 1-5292-2544-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNISA-996580170903316 |
| Bristol : , : Bristol University Press, , [2024] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. di Salerno | ||
| ||
Epigenetics and Responsibility : Ethical Perspectives / / ed. by Emma Moormann, Anna Smajdor, Daniela Cutas
| Epigenetics and Responsibility : Ethical Perspectives / / ed. by Emma Moormann, Anna Smajdor, Daniela Cutas |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Bristol : , : Bristol University Press, , [2024] |
| Descrizione fisica | 1 online resource (192 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | SCIENCE / Philosophy & Social Aspects |
| ISBN | 1-5292-2544-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910768480603321 |
| Bristol : , : Bristol University Press, , [2024] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
New Genetics, New Identities / / edited by Helen Greenslade, Peter Glasner, Paul Atkinson
| New Genetics, New Identities / / edited by Helen Greenslade, Peter Glasner, Paul Atkinson |
| Pubbl/distr/stampa | Hoboken : , : Taylor & Francis, , 2007 |
| Descrizione fisica | 1 online resource (xii, 196 pages) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetics - Moral and ethical aspects |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | 1. Introduction: New Genetic Identities? 2. Genetic Advocacy Groups, Science and Biovalue: Creating Political Economies of Hope 3. Patients as Public in Ethics Debates: Interpreting the Role of Patient Organizations in Democracy 4. From 'Scraps and Fragments' to 'Whole Organisms': Molecular Biology, Clinical Research and Post Genomic Bodies 5. Fashioning Flesh: Inclusion, Exclusivity and the Potential of Genomics 6. Mapping Origins: Race and Relatedness in Population Genetics and Genetic Gnealogy 7. The Moral and Sentimental Work of the Clinic: The Case of Genetic Syndromes 8. Medical Classification and the Experience of Genetic Haemochromatosis 9. Towards an Anatomy of Public Engagement with Medical Genetics 10. Genetics, Gender and Reproductive Technologies in Latin America 11. Genomics, Social Formations and Subjectivity. |
| Record Nr. | UNINA-9910476809403321 |
| Hoboken : , : Taylor & Francis, , 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
New genetics, new social formations / edited by Peter Glasner, Paul Atkinson and Helen Greenslade
| New genetics, new social formations / edited by Peter Glasner, Paul Atkinson and Helen Greenslade |
| Pubbl/distr/stampa | London : Routledge, 2007 |
| Descrizione fisica | 290 p. : tav. ; 20 cm |
| Disciplina | 174.296042 |
| Soggetto non controllato |
Ingegneria genetica - Aspetti etici
Genetica - Aspetti sociali Bioetica |
| ISBN | 978-0-415-39323-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-990009281280403321 |
| London : Routledge, 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
New genetics, new social formations / / edited by Peter Glasner, Paul Atkinson and Helen Greenslade
| New genetics, new social formations / / edited by Peter Glasner, Paul Atkinson and Helen Greenslade |
| Pubbl/distr/stampa | New York, N.Y. : , : Routledge, , 2007 |
| Descrizione fisica | 1 online resource (305 p.) |
| Disciplina | 174.296042 |
| Altri autori (Persone) |
AtkinsonPaul
GlasnerPeter E GreensladeHelen |
| Collana | Genetics and Society |
| Soggetto topico |
Medical genetics - Social aspects
Genetic engineering - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-134-16257-X
1-134-16258-8 1-280-71047-0 9786610710478 0-203-96289-3 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Book Cover; Half-Title; Series-Title; Title; Copyright; Contents; Illustrations; Contributors; Acknowledgements; 1. Introduction: New genetics, new social formations; 2. British public attitudes to agricultural biotechnology and the 2003 GM Nation? public debate: Distrust, ambivalence and risk; 3. The UK stem cell bank: Creating safe stem cell lines and public support?; 4. Public biotechnology inquiries: From rationality to reflexivity; 5. The precautionary principle on trial: The construction and transformation of the precautionary principle in the UK court context
6. The social construction of the biotech industry7. Biopiracy and the bioeconomy; 8. Identifying John Moore: Narratives of persona in patent law relating to inventions of human origin; 9. Sampling policies of isolates of historical interest: The social and historical formation of research populations in the People's Republic of China and the Republic of China; 10. The making of scientific knowledge in the anthropological perspective: Case studies from the French scientific community; 11. Genomics and the transformation of knowledge: The bioinformatics challenge 12. Science, media and society: The framing of bioethical debates around embryonic stem cell research between 2000 and 200513. 'Natural forces': The regulation and discourse of genomics and advanced medical technologies in Israel; 14. Survival of the gene?: 21st-century visions from genomics, proteomics and the new biology; Index |
| Record Nr. | UNINA-9910348219903321 |
| New York, N.Y. : , : Routledge, , 2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||