Info
- Utilizzare la checkbox di selezione a fianco di ciascun documento per attivare le funzionalità di stampa, invio email, download nei formati disponibili del (i) record.
Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910458020103321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.]
| Achieving justice in genomic translation [[electronic resource] ] : re-thinking the pathway to benefit / / edited by Wylie Burke ... [et al.] |
| Pubbl/distr/stampa | Oxford ; ; New York, : Oxford University Press, 2011 |
| Descrizione fisica | 1 online resource (223 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | BurkeWylie |
| Soggetto topico |
Human genetics - Research - Moral and ethical aspects
Genomics - Research - Moral and ethical aspects Genetic screening - Moral and ethical aspects |
| ISBN |
1-283-42793-1
9786613427939 0-19-990974-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. |
| Record Nr. | UNINA-9910781943703321 |
| Oxford ; ; New York, : Oxford University Press, 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic privacy [[electronic resource] ] : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho
| Genetic privacy [[electronic resource] ] : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho |
| Pubbl/distr/stampa | London, : Imperial College Press, 2013 |
| Descrizione fisica | 1 online resource (412 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | HoCalvin Wai-Loon |
| Soggetto topico |
Medical genetics - Law and legislation
Medical records - Access control Genetic engineering - Law and legislation |
| Soggetto genere / forma | Electronic books. |
| ISBN | 1-78326-306-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon. |
| Record Nr. | UNINA-9910452262303321 |
| London, : Imperial College Press, 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic privacy : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, Singapore
| Genetic privacy : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, Singapore |
| Pubbl/distr/stampa | London, : Imperial College Press, 2013 |
| Descrizione fisica | 1 online resource (xiii, 397 pages) |
| Disciplina | 174.2/96042 |
| Collana | Gale eBooks |
| Soggetto topico |
Genetic disorders
Medical ethics |
| ISBN | 1-78326-306-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon. |
| Record Nr. | UNINA-9910779989903321 |
| London, : Imperial College Press, 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic privacy : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, Singapore
| Genetic privacy : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho, National University of Singapore, Singapore |
| Pubbl/distr/stampa | London, : Imperial College Press, 2013 |
| Descrizione fisica | 1 online resource (xiii, 397 pages) |
| Disciplina | 174.2/96042 |
| Collana | Gale eBooks |
| Soggetto topico |
Genetic disorders
Medical ethics |
| ISBN | 1-78326-306-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon. |
| Record Nr. | UNINA-9910814425403321 |
| London, : Imperial College Press, 2013 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic screening of newborns [[electronic resource] ] : an ethical inquiry / / Carlos Valverde, editor
| Genetic screening of newborns [[electronic resource] ] : an ethical inquiry / / Carlos Valverde, editor |
| Pubbl/distr/stampa | New York, : Nova Science Publishers, c2010 |
| Descrizione fisica | 1 online resource (161 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | ValverdeCarlos <1952-> |
| Collana | Genetics--research and issues series |
| Soggetto topico |
Newborn infants - Abnormalities - Diagnosis - Moral and ethical aspects
Genetic screening - Moral and ethical aspects |
| Soggetto genere / forma | Electronic books. |
| ISBN | 1-61324-627-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The changing moral focus of newborn screening: an ethical analysis by the president's council on bioethics / President's Council on Bioethics -- Genetic exceptionalism: genetic information and public policy / Amanda K. Sarata -- Genetic testing: scientific background for policymakers / Amanda K. Sarata. |
| Record Nr. | UNINA-9910458001903321 |
| New York, : Nova Science Publishers, c2010 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic screening of newborns [[electronic resource] ] : an ethical inquiry / / Carlos Valverde, editor
| Genetic screening of newborns [[electronic resource] ] : an ethical inquiry / / Carlos Valverde, editor |
| Pubbl/distr/stampa | New York, : Nova Science Publishers, c2010 |
| Descrizione fisica | 1 online resource (161 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | ValverdeCarlos <1952-> |
| Collana | Genetics--research and issues series |
| Soggetto topico |
Newborn infants - Abnormalities - Diagnosis - Moral and ethical aspects
Genetic screening - Moral and ethical aspects |
| ISBN | 1-61324-627-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The changing moral focus of newborn screening: an ethical analysis by the president's council on bioethics / President's Council on Bioethics -- Genetic exceptionalism: genetic information and public policy / Amanda K. Sarata -- Genetic testing: scientific background for policymakers / Amanda K. Sarata. |
| Record Nr. | UNINA-9910781851103321 |
| New York, : Nova Science Publishers, c2010 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic screening of newborns : an ethical inquiry / / Carlos Valverde, editor
| Genetic screening of newborns : an ethical inquiry / / Carlos Valverde, editor |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | New York, : Nova Science Publishers, c2010 |
| Descrizione fisica | 1 online resource (161 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) | ValverdeCarlos <1952-> |
| Collana | Genetics--research and issues series |
| Soggetto topico |
Newborn infants - Abnormalities - Diagnosis - Moral and ethical aspects
Genetic screening - Moral and ethical aspects |
| ISBN | 1-61324-627-7 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The changing moral focus of newborn screening: an ethical analysis by the president's council on bioethics / President's Council on Bioethics -- Genetic exceptionalism: genetic information and public policy / Amanda K. Sarata -- Genetic testing: scientific background for policymakers / Amanda K. Sarata. |
| Record Nr. | UNINA-9910957114303321 |
| New York, : Nova Science Publishers, c2010 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic testing : accounts of autonomy, responsibility and blame / / Michael Arribas-Ayllon, Srikant Sarangi and Angus Clarke
| Genetic testing : accounts of autonomy, responsibility and blame / / Michael Arribas-Ayllon, Srikant Sarangi and Angus Clarke |
| Autore | Arribas-Ayllon Michael |
| Pubbl/distr/stampa | Abingdon, Oxon : , : Routledge, , 2011 |
| Descrizione fisica | 1 online resource (219 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) |
ClarkeAngus <1954->
SarangiSrikant <1956-> |
| Collana | Genetics and society |
| Soggetto topico |
Genetic screening - Moral and ethical aspects
Medical genetics |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-283-45813-6
9786613458131 1-134-02629-3 0-203-89138-4 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Front Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index |
| Record Nr. | UNINA-9910461302003321 |
Arribas-Ayllon Michael
|
||
| Abingdon, Oxon : , : Routledge, , 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Genetic testing : accounts of autonomy, responsibility and blame / / Michael Arribas-Ayllon, Srikant Sarangi and Angus Clarke
| Genetic testing : accounts of autonomy, responsibility and blame / / Michael Arribas-Ayllon, Srikant Sarangi and Angus Clarke |
| Autore | Arribas-Ayllon Michael |
| Pubbl/distr/stampa | Abingdon, Oxon : , : Routledge, , 2011 |
| Descrizione fisica | 1 online resource (219 p.) |
| Disciplina | 174.2/96042 |
| Altri autori (Persone) |
ClarkeAngus <1954->
SarangiSrikant <1956-> |
| Collana | Genetics and society |
| Soggetto topico |
Genetic screening - Moral and ethical aspects
Medical genetics |
| ISBN |
1-134-02628-5
1-283-45813-6 9786613458131 1-134-02629-3 0-203-89138-4 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Front Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index |
| Record Nr. | UNINA-9910790476903321 |
|
Arribas-Ayllon Michael
|
||
| Abingdon, Oxon : , : Routledge, , 2011 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
