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The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910460777703321 |
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910797490803321 |
|
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce
| The decision trap : genetic education and its social consequences / / Silja Samerski ; with a preface by Barbara Katz Rothman ; english translation by Nancy Joyce |
| Autore | Samerski Silja |
| Pubbl/distr/stampa | Exeter, England : , : Imprint Academic, , 2015 |
| Descrizione fisica | 1 online resource (191 p.) |
| Disciplina | 174.296042 |
| Soggetto topico | Genetic counseling - Decision making |
| ISBN |
1-84540-831-4
1-84540-830-6 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
Cover; Contents; Front matter; Title page; Publisher information; Acknowledgment; Preface to the English Edition by Barbara Katz Rothman; Preface to the German Edition; Body matter; 1. Introduction: Gene as the Basis for Decision Making?; Distancing as a Research Approach; 2. Genetic Education; 2.1. The Gene; 2.2. Educational Campaigns; 2.2.1. Illiterate citizens? A Bremen congress; 2.2.2. The genetic literacy campaign; 2.2.3. Genetic counselling; 2.3. On the History of Genetic Counselling: Genetics as the Foundation of Sociopolitics
2.3.1. The scientific management of hereditary dispositions2.3.2. More effective than coercion: Education and responsibility; 2.3.3. A new goal: The informed decision; 3. "Informed Choice": How Genetic Counsellors Empower their Clients to Attain Self-Determination; 3.1. The Initial Transformation of the Person: The Client as a Gene Carrier; 3.1.1. The genetic person; 3.1.2. The incomprehensible self; 3.1.3. Things in the body; 3.1.3.1. Visual representations as reproductions of reality; 3.1.3.2. Reification through language; 3.1.4. Hidden causes; 3.1.5. Meaningful information 3.1.6. Internal agents3.1.7. Genes as an "illusion"; 3.2. Second Transformation of the Person: Clients as Risk Carriers; 3.2.1. A grave misunderstanding: Risk as diagnosis; 3.2.2. The client as a statistical construct; 3.2.3. The pathogenic effects of physician-attested risks; 3.2.4. Life in irrealis mood; 3.2.5. The genetic risk; 3.2.6. The genetic self; 3.3. The Compulsion to Risk Management: The Decision; 3.3.1. The imperative of the autonomous decision; 3.3.2. The option requiring a decision: The test; 3.3.3. Self-determined helplessness; 3.3.3.1. Obligatory risk management 3.3.3.2. Mobilized helplessness3.3.4. Decision making: The paradox of personal risk assessment; 3.3.4.1. Amniocentesis: An arbitrary test?; 3.3.4.2. Prenatal decision making and economic rationality; 3.4. The Decision Trap; 4 .Conclusion: Disempowering Autonomy; 4.1. The Tyranny of Choice; 4.2. Autonomous Decision Making as Social Technology; 4.3. Conclusion: Now What?; Back matter; Transcription Conventions; Bibliography; Also available |
| Record Nr. | UNINA-9910829137103321 |
|
Samerski Silja
|
||
| Exeter, England : , : Imprint Academic, , 2015 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Health, Culture and Society [[electronic resource] ] : Conceptual Legacies and Contemporary Applications / / by Elizabeth Ettorre, Ellen Annandale, Vanessa M. Hildebrand, Ana Porroche-Escudero, Barbara Katz Rothman
| Health, Culture and Society [[electronic resource] ] : Conceptual Legacies and Contemporary Applications / / by Elizabeth Ettorre, Ellen Annandale, Vanessa M. Hildebrand, Ana Porroche-Escudero, Barbara Katz Rothman |
| Autore | Ettorre Elizabeth |
| Edizione | [1st ed. 2017.] |
| Pubbl/distr/stampa | Cham : , : Springer International Publishing : , : Imprint : Palgrave Macmillan, , 2017 |
| Descrizione fisica | 1 online resource (XVII, 235 p. 3 illus. in color.) |
| Disciplina | 306.461 |
| Soggetto topico |
Medical anthropology
Cultural studies Social medicine Feminist anthropology Medical Anthropology Cultural Studies Medical Sociology Feminist Anthropology |
| ISBN | 3-319-60786-3 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Chapter 1: Setting the Scene by Elizabeth Ettorre, Ellen Annandale, Vanessa M. Hildebrand, and Ana Porroche-Escudero -- Chapter 2: Society differentiation & globalisation by Ellen Annandale -- Chapter 3: Self, normativity & embodiment by Elizabeth Ettorre -- Chapter 4: Production Reproduction & Consumption by Ellen Annandale -- Chapter 5: Kinship, Blood and Alliances by Ana Porroche-Escudero -- Chapter 6: Power, Control & Surveillance by Elizabeth Ettorre -- Chapter 7: Gift-giving, Reciprocity and Exchange by Vanessa M. Hildebrand -- Chapter 8: Afterword by Barbara Katz Rothman. |
| Record Nr. | UNINA-9910252698403321 |
|
Ettorre Elizabeth
|
||
| Cham : , : Springer International Publishing : , : Imprint : Palgrave Macmillan, , 2017 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||