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Impact of consumer health informatics applications
| Impact of consumer health informatics applications |
| Pubbl/distr/stampa | [Place of publication not identified], : U S Dept of Health and Human Services Public Health Service Agency for Healthcare Research and Q, 2009 |
| Descrizione fisica | 1 online resource (xi, 111 p.) |
| Disciplina | 362.1 |
| Collana | Evidence report/technology assessment Impact of consumer health informatics applications |
| Soggetto topico |
Medical informatics - Care
Communication in medicine Patients Medical Informatics Human Rights Health Education Information Science Social Control, Formal Education, Nonprofessional Sociology Health Care Economics and Organizations Education Delivery of Health Care Social Sciences Consumer Advocacy Consumer Health Information Medical Informatics Applications Medicine Health & Biological Sciences Medical & Biomedical Informatics |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910703262703321 |
| [Place of publication not identified], : U S Dept of Health and Human Services Public Health Service Agency for Healthcare Research and Q, 2009 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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Rare diseases in the age of Health 2.0 / / Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell, editors
| Rare diseases in the age of Health 2.0 / / Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell, editors |
| Edizione | [1st ed. 2014.] |
| Pubbl/distr/stampa | Heidelberg [Germany] : , : Springer, , 2014 |
| Descrizione fisica | 1 online resource (xxxiii, 292 pages) : illustrations (chiefly color) |
| Disciplina | 338.473621 |
| Collana | Communications in Medical and Care Compunetics |
| Soggetto topico |
Rare diseases
Medical informatics |
| ISBN | 3-642-38643-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Part I: Rare and Orphan Diseases -- Why R&D into Rare Diseases Matter -- Vignette: Autoimmune Polyendocrine Syndrome Type I (APS 1) -- Rare Diseases: How Genomics has Transformed Thinking, Diagnoses and Hope for Affected Families -- Vignette: A Giant of a Man: Simon Ibell (MPS II) -- Innovative Funding Models for Rare Diseases -- Rare Diseases: The Medical and the Disability Perspectives in the Age of 2.0 -- Vignette: Taking Control of Thalassemia -- Industry Perspectives on Orphan Drug Development -- Part II: Health 2.0 -- Health 2.0: The Power of the Internet to Raise Awareness of Rare Diseases -- Vignette: Living with NOMID: Michael’s Story -- Health 2.0 and Information Literacy for Rare and Orphan Diseases -- Social Media and Engaging with Health Providers -- Vignette: Hope–Overcoming Fabry -- Empowering the Rare Disease Community: Thirty Years of Progress -- Part III: Patient Perspectives and Empowerment Issues -- The Role of Social Media in Healthcare: Experiences of a Crohn’s Disease Patient -- Vignette: The Blessings and Curse of Diagnosis: Myasthenia Gravis -- Noah’s Hope: Family Experiences of Batten Disease -- Using Technology to Share Information: Experiences of Oesophagus Atresia (OA) and Tracheaoesophageal Fistel (TOF) -- Vignette: MPSIIIA (Sanfilippo) -- The Empowered Patient in the Health System of the Future -- Vignette: The Journey of a Lifetime -- Personalized Medicine: A Cautionary Tale or Instructional Epic -- Part IV: Closing Gaps: Promising Research and Future Considerations -- Managing Communication for People with Amyotrophic Lateral Sclerosis: The Role of the Brain-Computer Interface -- Vignette: The Wilderness -- Opportunities and Challenges for Supporting People with Vascular Dementia Through the Use of Common Web 2.0 Services -- Vignette: Recessive Dystrophic Epidermolysis Bullosa (RDEB): Sibling Experiences -- Health Policies for Orphan Diseases: International Comparison of Regulatory, Reimbursement and Health Services Policies -- Vignette: Route 125 (October 2009) -- Rare Diseases Challenges and Opportunities -- Epilogue. |
| Record Nr. | UNINA-9910299734703321 |
| Heidelberg [Germany] : , : Springer, , 2014 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
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