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Governing medical knowledge commons / / Brett M. Frischmann, Michael J. Madison, Katherine Jo Strandburg, editors
| Governing medical knowledge commons / / Brett M. Frischmann, Michael J. Madison, Katherine Jo Strandburg, editors |
| Pubbl/distr/stampa | Cambridge, UK : , : Cambridge University Press, , [2017] |
| Descrizione fisica | 1 online resource (viii, 429 pages) : illustrations |
| Disciplina | 610.285 |
| Collana | Cambridge Studies on Governing Knowledge Commons |
| Soggetto topico |
Medical informatics
Medical informatics - Data processing |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Introduction : Knowledge commons and the road to medical commons -- The knowledge commons framework -- Leviathan in the commons : biomedical data and the state -- Centralization, fragmentation, and replication in the genomic data commons -- Genomic data commons -- Population biobanks' governance: a case study of knowledge commons -- The sentinel initiative as a knowledge commons -- Cancer : from a kingdom to a commons -- The greatest generational impact : the open neuroscience movement as an emerging knowledge commons --Better to give than to receive : an uncommon commons in synthetic-biology -- Governance of biomedical research commons to advance clinical translation : lessons from the mouse model community -- Constructing interdisciplinary collaboration : the oncofertility consortium as an emerging knowledge commons -- The application of user innovation and knowledge commons governance to mental health -- Challenges and opportunities in developing and sharing solutions by patients and caregivers : the story of a knowledge commons for the patient innovation project -- Chronic disease, new thinking and outlaw innovation : patients on the edge in the knowledge commons -- The North American Mitochondrial Disease Consortium : a developing knowledge commons -- The Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) : an emerging knowledge commons -- Conclusion : governing knowledge commons : an appraisal. |
| Record Nr. | UNINA-9910687939503321 |
| Cambridge, UK : , : Cambridge University Press, , [2017] | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Governing privacy in knowledge commons / / edited by Madelyn Rose Sanfilippo, Brett M. Frischmann, Katherine J. Strandburg [[electronic resource]]
| Governing privacy in knowledge commons / / edited by Madelyn Rose Sanfilippo, Brett M. Frischmann, Katherine J. Strandburg [[electronic resource]] |
| Pubbl/distr/stampa | Cambridge : , : Cambridge University Press, , 2021 |
| Descrizione fisica | 1 online resource (xi, 289 pages) : digital, PDF file(s) |
| Disciplina | 342.08/58 |
| Collana | Cambridge studies on governing knowledge commons |
| Soggetto topico |
Privacy, Right of
Secrecy - Law and legislation Data protection - Law and legislation Information networks - Law and legislation Information commons Knowledge management |
| ISBN |
1-108-62057-4
1-108-61764-6 1-108-74997-6 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Personal information as a knowledge commons resources / Madelyn Rose Sanfilippo, Brett Frischmann and Katherine J. Strandburg -- How private individuals maintain privacy and govern their own health data cooperative : MIDATA in Switzerland / Felix Gille and Effy Vayena -- Pooling mental health data with Chatbots Michael Mattioli -- Privacy in practice : a socio-technical integration research (STIR) study of rules-in-use within institutional research / Kyle M. L. Jones and Chase McCoy -- Public Facebook groups for political activism / Madelyn Rose Sanfilippo and Katherine J. Strandburg -- The republic of letters and the origins of scientific knowledge commons knowledge commons / Michael J. Madison -- Privacy and knowledge production across contexts / Brett Frischmann, Katherine Haenschen and Ari Ezra Waldman -- Governing the Internet of everything / Scott J. Shackelford -- Contextual integrity as a gauge for governing knowledge commons / Yan Shvartzshnaider, Madelyn Rose Sanfilippo and Noah Apthorpe -- Designing for the privacy commons / Darakhshan J. Mir. |
| Record Nr. | UNINA-9910585953503321 |
| Cambridge : , : Cambridge University Press, , 2021 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||