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Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies
| Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies |
| Pubbl/distr/stampa | Washington, D.C., : National Academies Press, c2004 |
| Descrizione fisica | 1 online resource (445 p.) |
| Disciplina | 174.2/8 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Pediatrics - Research - Moral and ethical aspects
Human experimentation in medicine |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-280-20871-6
9786610208715 0-309-53125-X |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The necessity and challenges of clinical research involving children -- Regulatory framework for protecting child participants in research -- Defining, interpreting, and applying concepts of risk and benefit in clinical research involving children -- Understanding and agreeing to children's participation in clinical research -- Payments related to children's participation in clinical research -- Regulatory compliance, accreditation, and quality improvement -- Responsible research involving children. |
| Record Nr. | UNINA-9910449796903321 |
| Washington, D.C., : National Academies Press, c2004 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies
| Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies |
| Pubbl/distr/stampa | Washington, D.C., : National Academies Press, c2004 |
| Descrizione fisica | 1 online resource (445 p.) |
| Disciplina | 174.2/8 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Pediatrics - Research - Moral and ethical aspects
Human experimentation in medicine |
| ISBN |
0-309-13338-6
1-280-20871-6 9786610208715 0-309-53125-X |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The necessity and challenges of clinical research involving children -- Regulatory framework for protecting child participants in research -- Defining, interpreting, and applying concepts of risk and benefit in clinical research involving children -- Understanding and agreeing to children's participation in clinical research -- Payments related to children's participation in clinical research -- Regulatory compliance, accreditation, and quality improvement -- Responsible research involving children. |
| Record Nr. | UNINA-9910783150003321 |
| Washington, D.C., : National Academies Press, c2004 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies
| Ethical conduct of clinical research involving children [[electronic resource] /] / Marilyn J. Field and Richard E. Behrman, editors ; Committee on Clinical Research Involving Children, Board on Health Sciences Policy, Institute of Medicine of the National Academies |
| Pubbl/distr/stampa | Washington, D.C., : National Academies Press, c2004 |
| Descrizione fisica | 1 online resource (445 p.) |
| Disciplina | 174.2/8 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Pediatrics - Research - Moral and ethical aspects
Human experimentation in medicine |
| ISBN |
0-309-13338-6
1-280-20871-6 9786610208715 0-309-53125-X |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | The necessity and challenges of clinical research involving children -- Regulatory framework for protecting child participants in research -- Defining, interpreting, and applying concepts of risk and benefit in clinical research involving children -- Understanding and agreeing to children's participation in clinical research -- Payments related to children's participation in clinical research -- Regulatory compliance, accreditation, and quality improvement -- Responsible research involving children. |
| Record Nr. | UNINA-9910809432803321 |
| Washington, D.C., : National Academies Press, c2004 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors
| Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors |
| Pubbl/distr/stampa | Washington, DC, : National Academies Press, c2006 |
| Descrizione fisica | xiv, 772 p |
| Disciplina | 618.3/97 |
| Altri autori (Persone) |
BehrmanRichard E. <1931->
ButlerAdrienne Stith |
| Soggetto topico |
Premature labor
Labor (Obstetrics) - Complications |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-280-84458-2
9786610844586 0-309-65898-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Record Nr. | UNINA-9910454395703321 |
| Washington, DC, : National Academies Press, c2006 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors
| Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Washington, DC, : National Academies Press, c2006 |
| Descrizione fisica | xiv, 772 p |
| Disciplina | 618.3/97 |
| Altri autori (Persone) |
BehrmanRichard E. <1931->
ButlerAdrienne Stith |
| Soggetto topico |
Premature labor
Labor (Obstetrics) - Complications |
| ISBN |
1-280-84458-2
9786610844586 0-309-65898-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | FrontMatter -- Reviewers -- Preface -- Acknowledgments -- Contents -- Summary -- 1 Introduction -- SECTION I--MEASUREMENT -- 2 Measurement of Fetal and Infant Maturity -- Section I--Measurement--Recommendations -- SECTION II--CAUSES OF PRETERM BIRTH -- 3 Behavioral and Psychosocial Contributors to Preterm Birth -- 4 Sociodemographic and Community Factors Contributing to Preterm Birth -- 5 Medical and Pregnancy Conditions Associated with Preterm Birth -- 6 Biological Pathways Leading to Preterm Birth -- 7 Role of Gene-Environment Interactions in Preterm Birth -- 8 The Role of Environmental Toxicants in Preterm Birth -- Section II--Causes of Preterm Birth--Recommendations -- SECTION III--DIAGNOSIS AND TREATMENT OF PRETERM LABOR -- 9 Diagnosis and Treatment of Conditions Leading to Spontaneous Preterm Birth -- Section III--Diagnosis and Treatment of Preterm Labor--Recommendations -- SECTION IV--CONSEQUENCES OF PRETERM BIRTH -- 10 Mortality and Acute Complications in Preterm Infants -- 11 Neurodevelopmental, Health, and Family Outcomes for Infants Born Preterm -- 12 Societal Costs of Preterm Birth -- Section IV--Consequences of Preterm Birth--Recommendations -- SECTION V--RESEARCH AND POLICY -- 13 Barriers to Clinical Research on Preterm Birth and Outcomes for Preterm Infants -- 14 Public Policies Affected by Preterm Birth -- Section V--Research and Policy--Recommendations -- 15 A Research Agenda to Investigate Preterm Birth -- References -- APPENDIXES -- A Data Sources and Methods -- B Prematurity at Birth: Determinants, Consequences, and Geographic Variation -- C A Review of Ethical Issues Involved in Premature Birth -- D A Systematic Review of Costs Associated with Preterm Birth -- E Selected Programs Funding Preterm Birth Research -- F Committee and Staff Biographies -- Index. |
| Record Nr. | UNINA-9910782053603321 |
| Washington, DC, : National Academies Press, c2006 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors
| Preterm birth [[electronic resource] ] : causes, consequences, and prevention / / Committee on Understanding Premature Birth and Assuring Healthy Outcomes, Board on Health Sciences Policy ; Richard E. Behrman, Adrienne Stith Butler, editors |
| Edizione | [1st ed.] |
| Pubbl/distr/stampa | Washington, DC, : National Academies Press, c2006 |
| Descrizione fisica | xiv, 772 p |
| Disciplina | 618.3/97 |
| Altri autori (Persone) |
BehrmanRichard E. <1931->
ButlerAdrienne Stith |
| Soggetto topico |
Premature labor
Labor (Obstetrics) - Complications |
| ISBN |
1-280-84458-2
9786610844586 0-309-65898-5 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | FrontMatter -- Reviewers -- Preface -- Acknowledgments -- Contents -- Summary -- 1 Introduction -- SECTION I--MEASUREMENT -- 2 Measurement of Fetal and Infant Maturity -- Section I--Measurement--Recommendations -- SECTION II--CAUSES OF PRETERM BIRTH -- 3 Behavioral and Psychosocial Contributors to Preterm Birth -- 4 Sociodemographic and Community Factors Contributing to Preterm Birth -- 5 Medical and Pregnancy Conditions Associated with Preterm Birth -- 6 Biological Pathways Leading to Preterm Birth -- 7 Role of Gene-Environment Interactions in Preterm Birth -- 8 The Role of Environmental Toxicants in Preterm Birth -- Section II--Causes of Preterm Birth--Recommendations -- SECTION III--DIAGNOSIS AND TREATMENT OF PRETERM LABOR -- 9 Diagnosis and Treatment of Conditions Leading to Spontaneous Preterm Birth -- Section III--Diagnosis and Treatment of Preterm Labor--Recommendations -- SECTION IV--CONSEQUENCES OF PRETERM BIRTH -- 10 Mortality and Acute Complications in Preterm Infants -- 11 Neurodevelopmental, Health, and Family Outcomes for Infants Born Preterm -- 12 Societal Costs of Preterm Birth -- Section IV--Consequences of Preterm Birth--Recommendations -- SECTION V--RESEARCH AND POLICY -- 13 Barriers to Clinical Research on Preterm Birth and Outcomes for Preterm Infants -- 14 Public Policies Affected by Preterm Birth -- Section V--Research and Policy--Recommendations -- 15 A Research Agenda to Investigate Preterm Birth -- References -- APPENDIXES -- A Data Sources and Methods -- B Prematurity at Birth: Determinants, Consequences, and Geographic Variation -- C A Review of Ethical Issues Involved in Premature Birth -- D A Systematic Review of Costs Associated with Preterm Birth -- E Selected Programs Funding Preterm Birth Research -- F Committee and Staff Biographies -- Index. |
| Record Nr. | UNINA-9910825925703321 |
| Washington, DC, : National Academies Press, c2006 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families : [popular summary] / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
| When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families : [popular summary] / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors |
| Pubbl/distr/stampa | Washington, D.C., : National Academy Press, c2003 |
| Descrizione fisica | 1 online resource (16 p.) |
| Disciplina | 362.1/75/083 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Terminally ill children - Care
Terminally ill children - Family relationships Palliative treatment |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-280-17936-8
9786610179367 0-309-52841-0 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""What is palliative care?""; ""When children need palliative care.""; ""Why it can be hard to get palliative care.""; ""We can give very ill children the palliative care they need.""; ""1. Children should have care that is focused on their needs and the needs of their families.""; ""2. Health plans should make it easier for children and families to get palliative care.""; ""3. Health care professionals should be trained to give palliative care to children.""; ""4. Researchers should find out more about what care works best.""
""We can improve palliative care for very ill children and their families.""""A word to families . . .""; ""We can improve palliative care for very ill children and their families."" |
| Record Nr. | UNINA-9910456034603321 |
| Washington, D.C., : National Academy Press, c2003 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
| When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors |
| Pubbl/distr/stampa | Washington, D.C., : National Academy Press, c2003 |
| Descrizione fisica | 1 online resource (712 p.) |
| Disciplina | 362.1/75/083 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Terminally ill children - Care
Terminally ill children - Family relationships Palliative treatment |
| Soggetto genere / forma | Electronic books. |
| ISBN |
1-280-18370-5
9786610183708 0-309-50215-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Child�s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Life�s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York State�A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index"" |
| Record Nr. | UNINA-9910455988703321 |
| Washington, D.C., : National Academy Press, c2003 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
| When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors |
| Pubbl/distr/stampa | Washington, D.C., : National Academy Press, c2003 |
| Descrizione fisica | 1 online resource (712 p.) |
| Disciplina | 362.1/75/083 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Terminally ill children - Care
Terminally ill children - Family relationships Palliative treatment |
| ISBN |
0-309-16947-X
1-280-18370-5 9786610183708 0-309-50215-2 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Child�s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Life�s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York State�A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index"" |
| Record Nr. | UNINA-9910780133403321 |
| Washington, D.C., : National Academy Press, c2003 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families : [popular summary] / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors
| When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families : [popular summary] / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors |
| Pubbl/distr/stampa | Washington, D.C., : National Academy Press, c2003 |
| Descrizione fisica | 1 online resource (16 p.) |
| Disciplina | 362.1/75/083 |
| Altri autori (Persone) |
FieldMarilyn J (Marilyn Jane)
BehrmanRichard E. <1931-> |
| Soggetto topico |
Terminally ill children - Care
Terminally ill children - Family relationships Palliative treatment |
| ISBN |
1-280-17936-8
9786610179367 0-309-52841-0 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto |
""What is palliative care?""; ""When children need palliative care.""; ""Why it can be hard to get palliative care.""; ""We can give very ill children the palliative care they need.""; ""1. Children should have care that is focused on their needs and the needs of their families.""; ""2. Health plans should make it easier for children and families to get palliative care.""; ""3. Health care professionals should be trained to give palliative care to children.""; ""4. Researchers should find out more about what care works best.""
""We can improve palliative care for very ill children and their families.""""A word to families . . .""; ""We can improve palliative care for very ill children and their families."" |
| Record Nr. | UNINA-9910780401103321 |
| Washington, D.C., : National Academy Press, c2003 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
