Resource sharing in biomedical research [[electronic resource] /] / Committee on Resource Sharing in Biomedical Research, Division of Health Sciences Policy, Institute of Medicine ; Kenneth I. Berns, Enriqueta C. Bond, and Frederick J. Manning, editors |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1996 |
Descrizione fisica | viii, 96 p. : ill |
Disciplina | 610/.7/2073 |
Altri autori (Persone) |
BernsKenneth I. <1938->
BondEnriqueta C ManningFrederick J |
Soggetto topico |
Medicine - Research - United States
Medical research personnel - United States |
Soggetto genere / forma | Electronic books. |
ISBN |
1-280-19202-X
9786610192021 0-309-58965-7 0-585-15464-3 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Record Nr. | UNINA-9910456040203321 |
Washington, D.C., : National Academy Press, 1996 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Resource sharing in biomedical research [[electronic resource] /] / Committee on Resource Sharing in Biomedical Research, Division of Health Sciences Policy, Institute of Medicine ; Kenneth I. Berns, Enriqueta C. Bond, and Frederick J. Manning, editors |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1996 |
Descrizione fisica | viii, 96 p. : ill |
Disciplina | 610/.7/2073 |
Altri autori (Persone) |
BernsKenneth I. <1938->
BondEnriqueta C ManningFrederick J |
Soggetto topico |
Medicine - Research - United States
Medical research personnel - United States |
ISBN |
1-280-19202-X
9786610192021 0-309-58965-7 0-585-15464-3 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Record Nr. | UNINA-9910778671203321 |
Washington, D.C., : National Academy Press, 1996 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Resource sharing in biomedical research / / Committee on Resource Sharing in Biomedical Research, Division of Health Sciences Policy, Institute of Medicine ; Kenneth I. Berns, Enriqueta C. Bond, and Frederick J. Manning, editors |
Edizione | [1st ed.] |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1996 |
Descrizione fisica | viii, 96 p. : ill |
Disciplina | 610/.7/2073 |
Altri autori (Persone) |
BernsKenneth I. <1938-2024.>
BondEnriqueta C ManningFrederick J |
Soggetto topico |
Medicine - Research - United States
Medical research personnel - United States |
ISBN |
1-280-19202-X
9786610192021 0-309-58965-7 0-585-15464-3 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto |
Intro -- Copyright -- Preface -- Contents -- Executive Summary -- CASE STUDIES -- The American Type Culture Collection -- The Multinational Coordinated Arabidopsis Thaliana Genome Research Project -- The Jackson Laboratory -- The Washington Regional Primate Research Center -- The Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source -- The Human Genome Center at Lawrence Livermore National Laboratory -- CONCLUSIONS AND RECOMMENDATIONS -- Features of Successful Resource Sharing -- Strong Scientific Leadership in Agencies and the Research Community -- Adequate Core Funding -- Marketing and Advertising -- Clear Guidelines about Ownership and Access -- User Fees -- Clear Policies for Retaining and Discarding Data and Material -- Quality Control -- Well-Defined Policies for Function of Research and Service at the Facility -- Sophisticated Information Retrieval and Transfer Systems -- Issues and Problems -- One Uniform Policy on Resource Sharing is Not Possible -- Incentives and Rewards for Resource Sharing are Not Fully Developed -- Methods for Enforcing Existing Policies on Resource Sharing are Inadequate -- There are Many Private and Public Stakeholders in Any Major Resource Sharing Attempt, Often with Conflicting Goals -- Who Pays and What Do They Pay for? -- Regulatory Requirements and Documentation Can Be Unnecessarily Complex and Burdensome -- Education of Scientists Covers Neither the Ethos of Sharing Nor Intellectual and Tangible Property Issues -- Resource Sharing Can Have National and International Implications -- There is a Gap in Leadership -- Partnerships in Resource Sharing May Be Unequal -- Monopolies Can Be Good or Bad -- RECOMMENDATIONS -- 1 Introduction -- COMPETITION FOR FUNDS -- INCENTIVES FOR SCIENTISTS -- NATIONALISM -- METHODS AND GOALS OF THIS STUDY -- A Member Survey -- The Committee.
The Workshop -- The Report and Its Recommendations -- REFERENCES -- 2 The American Type Culture Collection -- GENERAL FACILITIES -- PROGRAMS -- Collection, Research, and Services Program -- Professional Services Program -- Education Services Program -- Information Services Program -- OWNERSHIP AND ACCESS ISSUES -- COST ISSUES -- OTHER ISSUES AND PROBLEMS -- 3 The Multinational Coordinated Arabidopsis Thaliana Genome Research Project -- PROJECT ELEMENTS -- OWNERSHIP AND ACCESS ISSUES -- COST ISSUES -- OTHER ISSUES AND PROBLEMS -- 4 The Jackson Laboratory -- ANIMAL RESOURCE PROGRAMS -- Production, Sale, Derivation, and Maintenance of Mice -- Preservation -- Derivation -- Surgery -- Bioinformatics -- OWNERSHIP AND ACCESS ISSUES -- COST ISSUES -- OTHER ISSUES AND PROBLEMS -- 5 The Washington Regional Primate Research Center -- FACILITIES AND PROGRAMS -- OWNERSHIP AND ACCESS ISSUES -- COST ISSUES -- OTHER ISSUES AND PROBLEMS -- 6 The Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source -- USER FACILITIES FOR PROTEIN CRYSTALLOGRAPHY AT SYNCHROTRONS -- THE MACCHESS RESEARCH RESOURCE -- Core Research Projects -- Collaborative Research Projects -- User Research Projects (Service) -- Training and Dissemination -- Workshops and Symposia -- Training Videos -- CHESS Newsletter -- MacCHESS World Wide Web (WWW) Home Page -- OWNERSHIP AND ACCESS ISSUES -- COST ISSUES -- OTHER ISSUES AND PROBLEMS -- 7 The Human Genome Center: Lawrence Livermore National Laboratory -- LAWRENCE LIVERMORE NATIONAL LABORATORY -- HUMAN GENOME CENTER -- Instrumentation and Technology -- Information -- Biological Materials -- Chromosome 19-Specific Cosmids -- Image Consortium cDNA Clones -- OWNERSHIP AND ACCESS ISSUES -- SUMMARY OF ISSUES AND PROBLEMS -- 8 Conclusions and Recommendations -- FEATURES OF SUCCESSFUL RESOURCE SHARING. Strong Scientific Leadership in Agencies and the Research Community -- Adequate Core Funding -- Marketing and Advertising -- Clear Guidelines about Ownership and Access -- User Fees -- Clear Policies for Retaining and Discarding Data and Material -- Quality Control -- Well-Defined Policies for Function of Research and Service at the Facility -- Sophisticated Information Retrieval and Transfer Systems -- ISSUES AND PROBLEMS -- One Uniform Policy on Resource Sharing is Not Possible -- Incentives and Rewards for Resource Sharing are Not Fully Developed -- Sharing Requires Incentives, Not Disincentives -- The Importance of Material and Data Assets Changes Over Time -- Technologies and Needs are Evolving Very Rapidly -- New Definitions of "Publication" May Have to Evolve to Keep Pace with the New Electronic Information Systems -- Methods for Enforcing Existing Policies on Sharing are Inadequate -- There are Many Private and Public Stakeholders in any Major Resource Sharing Attempt, Often With Conflicting Goals -- Who Pays and What Do They Pay for? -- Regulatory Requirements and Documentation Can Be Unnecessarily Complex and Burdensome -- Education of Scientists Covers Neither the Ethos of Sharing Nor Intellectual and Tangible Property Issues -- Resource Sharing Can Have National and International Implications -- There is a Gap in Leadership -- Partnerships in Sharing Resources May Be Unequal -- Monopolies Can Be Good or Bad -- RECOMMENDATIONS -- Appendix A Workshop on Resource Sharing in Biomedical Research -- Appendix B Acronyms. |
Record Nr. | UNINA-9910812206803321 |
Washington, D.C., : National Academy Press, 1996 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
The responsible conduct of research in the health sciences [[electronic resource] ] : report of a study / / by a Committee on the Responsible Conduct of Research, Institute of Medicine, Division of Health Sciences Policy |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1989 |
Descrizione fisica | vii, 97 p |
Altri autori (Persone) | RubensteinArthur H. <1937-> |
Collana | Publication IOM |
Soggetto topico |
Medicine - Research - United States
Fraud in science |
Soggetto genere / forma | Electronic books. |
ISBN |
1-280-18639-9
9786610186396 0-309-56462-X |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Record Nr. | UNINA-9910455825403321 |
Washington, D.C., : National Academy Press, 1989 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
The responsible conduct of research in the health sciences [[electronic resource] ] : report of a study / / by a Committee on the Responsible Conduct of Research, Institute of Medicine, Division of Health Sciences Policy |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1989 |
Descrizione fisica | vii, 97 p |
Altri autori (Persone) | RubensteinArthur H. <1937-> |
Collana | Publication IOM |
Soggetto topico |
Medicine - Research - United States
Fraud in science |
ISBN |
1-280-18639-9
9786610186396 0-309-56462-X |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Record Nr. | UNINA-9910778760203321 |
Washington, D.C., : National Academy Press, 1989 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
The responsible conduct of research in the health sciences : report of a study / / by a Committee on the Responsible Conduct of Research, Institute of Medicine, Division of Health Sciences Policy |
Edizione | [1st ed.] |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1989 |
Descrizione fisica | vii, 97 p |
Disciplina | 174.28 |
Altri autori (Persone) | RubensteinArthur H. <1937-> |
Collana | Publication IOM |
Soggetto topico |
Medicine - Research - United States
Fraud in science |
ISBN |
1-280-18639-9
9786610186396 0-309-56462-X |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto |
THE RESPONSIBLE CONDUCT OF RESEARCH IN THE HEALTH SCIENCES -- Copyright -- PREFACE -- Contents -- CHAPTER 1 SUMMARY -- PURPOSE OF THE STUDY AND APPROACH -- ASSUMPTIONS AND FINDINGS -- RECOMMENDATIONS -- Recommendations for the National Institutes of Health -- Recommendations for Universities and Other Research Centers -- Recommendations for Professional and Scientific Organizations and Journals -- CHAPTER 2 HISTORY -- PROFESSIONAL AND UNIVERSITY EFFORTS -- GOVERNMENT EFFORTS -- OBSERVATIONS -- CHAPTER 3 THE WORKSHOP -- KEY ISSUES -- The Organization of the Research Unit -- Data Retention and Sharing -- Education, Training, and Mentorship -- Authorship Practices -- Institutional Oversight -- The Effects of Commercialism on the Integrity of Academic Research -- CHAPTER 4 ANALYSIS -- ASSUMPTIONS AND FINDINGS -- CHAPTER 5 RECOMMENDATIONS -- RECOMMENDATIONS FOR THE NATIONAL INSTITUTES OF HEALTH -- RECOMMENDATION FOR UNIVERSITIES AND OTHER RESEARCH CENTERS -- RECOMMENDATIONS FOR PROFESSIONAL AND SCIENTIFIC ORGANIZATIONS AND JOURNALS -- REFERENCES -- BIBLIOGRAPHY -- APPENDIXES -- APPENDIX A -- Agenda -- APPENDIX B -- PARTICIPANTS -- APPENDIX C -- PANEL 1 -- GOOD LABORATORY PRACTICE GUIDELINES AND THE USE OF AUDITS -- PEER REVIEW -- Peer Review Within the Research Unit -- Peer Review Within the Department -- Review of the Department by Outside Peers -- Review of Published Work by Peers -- SHARING DATA, METHODS, AND REAGENTS -- Raw Data -- Access to Methods and Reagents -- Training and Supervisory Practices -- INSTITUTIONAL OVERSIGHT -- PANEL 2 -- THE DIVERSE NATURE OF CLINICAL RESEARCH -- THE ADEQUACY OF RESEARCH TRAINING -- MONITORING -- PANEL 3 -- TRAINING AND MENTORING -- THE HANDLING, STORAGE, AND MAINTENANCE OF DATA -- THE MEANING AND RESPONSIBILITY OF AUTHORSHIP -- SCIENTIFIC ACCOMPLISHMENT AND THE INSTITUTIONAL REWARD SYSTEM.
PROCEDURAL REVIEW OF ALLEGED IMPROPRIETIES -- PANEL 4 -- THE NEED FOR EXPOSURE TO THE ETHICS OF SCIENCE -- GUIDELINES FOR TRAINEES AND MENTORS -- The Responsibilities of Mentors -- Expectations and Responsibilities of Students and Trainees -- A RESEARCH AGENDA FOR INSTRUCTION IN THE ETHICS AND STANDARDS OF RESEARCH -- DETECTING AND REPORTING ERRORS AND MISCONDUCT -- THE ROLE OF PROFESSIONAL SOCIETIES -- PANEL 5 -- APPOINTMENT -- ADVANCEMENT -- ASSURANCES -- AREAS FOR FURTHER STUDY -- PANEL 6 -- REPETITIVE PUBLICATION -- SUPERNUMERARY AUTHORSHIP -- INSTITUTIONAL RESPONSIBILITIES -- PEER REVIEW -- DOCUMENTATION OF REPORTED RESEARCH RESULTS -- RESPONSES TO FRAUD, RETRACTIONS, AND CORRECTIONS -- FREQUENCY OF FRAUD AND OTHER MISCONDUCT -- THE ROLE OF GOVERNMENT -- PRESSURES TO PUBLISH. |
Record Nr. | UNINA-9910812042903321 |
Washington, D.C., : National Academy Press, 1989 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Serving science and society in the new millennium [[electronic resource] /] / U.S. Department of Energy, National Research Council |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1998 |
Descrizione fisica | 1 online resource (156 p.) |
Disciplina | 610/.72073 |
Soggetto topico |
Medicine - Research - United States
Biotechnology - Research - United States Life sciences - Research - United States |
Soggetto genere / forma | Electronic books. |
ISBN |
1-282-08187-X
9786612081873 0-309-52513-6 0-585-14934-8 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto |
""Front Matter""; ""Preface""; ""Contents""; ""Welcome""; ""A Celebration of 50 Years of Health and Environmental Research""; ""The Biological and Environmental Research Program at 50""; ""Keynote Address: Impact of Biotechnology and Environmental Research on Science and Society in the 21st Century""; ""Part I Enabling Research for Science and Technology: Biotechnology""; ""Biotechnology and the Human Genome Project""; ""Part II Biotechnology for a Healthy Citizenry""; ""Biologic Imaging: From Mouse Genome to Human Disease""
""Health-Effects Research at the Crossroads: Molecular-Based Tools for Biologic Dosimetry and Individual Susceptibility""""Part III Protecting the Environment""; ""Atmospheric Carbon Dioxide: Contemporary Budget, Historical Context, and Implications for the Future""; ""Restoring the Environment Via Bioremediation and Molecular Sciences: Prospects for Better Understanding and New Science-Based Solutions""; ""Science Policy and Society: Current Challenges, Future Priorities""; ""Part V Biological and Environmental Research Program Recognition Awards"" |
Record Nr. | UNINA-9910455838903321 |
Washington, D.C., : National Academy Press, 1998 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Serving science and society in the new millennium [[electronic resource] /] / U.S. Department of Energy, National Research Council |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1998 |
Descrizione fisica | 1 online resource (156 p.) |
Disciplina | 610/.72073 |
Soggetto topico |
Medicine - Research - United States
Biotechnology - Research - United States Life sciences - Research - United States |
ISBN |
0-309-18494-0
1-282-08187-X 9786612081873 0-309-52513-6 0-585-14934-8 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto |
""Front Matter""; ""Preface""; ""Contents""; ""Welcome""; ""A Celebration of 50 Years of Health and Environmental Research""; ""The Biological and Environmental Research Program at 50""; ""Keynote Address: Impact of Biotechnology and Environmental Research on Science and Society in the 21st Century""; ""Part I Enabling Research for Science and Technology: Biotechnology""; ""Biotechnology and the Human Genome Project""; ""Part II Biotechnology for a Healthy Citizenry""; ""Biologic Imaging: From Mouse Genome to Human Disease""
""Health-Effects Research at the Crossroads: Molecular-Based Tools for Biologic Dosimetry and Individual Susceptibility""""Part III Protecting the Environment""; ""Atmospheric Carbon Dioxide: Contemporary Budget, Historical Context, and Implications for the Future""; ""Restoring the Environment Via Bioremediation and Molecular Sciences: Prospects for Better Understanding and New Science-Based Solutions""; ""Science Policy and Society: Current Challenges, Future Priorities""; ""Part V Biological and Environmental Research Program Recognition Awards"" |
Record Nr. | UNINA-9910778760503321 |
Washington, D.C., : National Academy Press, 1998 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Serving science and society in the new millennium / / U.S. Department of Energy, National Research Council |
Edizione | [1st ed.] |
Pubbl/distr/stampa | Washington, D.C., : National Academy Press, 1998 |
Descrizione fisica | 1 online resource (156 p.) |
Disciplina | 610/.72073 |
Soggetto topico |
Medicine - Research - United States
Biotechnology - Research - United States Life sciences - Research - United States |
ISBN |
0-309-18494-0
1-282-08187-X 9786612081873 0-309-52513-6 0-585-14934-8 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto |
""Front Matter""; ""Preface""; ""Contents""; ""Welcome""; ""A Celebration of 50 Years of Health and Environmental Research""; ""The Biological and Environmental Research Program at 50""; ""Keynote Address: Impact of Biotechnology and Environmental Research on Science and Society in the 21st Century""; ""Part I Enabling Research for Science and Technology: Biotechnology""; ""Biotechnology and the Human Genome Project""; ""Part II Biotechnology for a Healthy Citizenry""; ""Biologic Imaging: From Mouse Genome to Human Disease""
""Health-Effects Research at the Crossroads: Molecular-Based Tools for Biologic Dosimetry and Individual Susceptibility""""Part III Protecting the Environment""; ""Atmospheric Carbon Dioxide: Contemporary Budget, Historical Context, and Implications for the Future""; ""Restoring the Environment Via Bioremediation and Molecular Sciences: Prospects for Better Understanding and New Science-Based Solutions""; ""Science Policy and Society: Current Challenges, Future Priorities""; ""Part V Biological and Environmental Research Program Recognition Awards"" |
Record Nr. | UNINA-9910817018503321 |
Washington, D.C., : National Academy Press, 1998 | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|
Sharing clinical research data : workshop summary / / Steve Olson and Autumn S. Downey, Rapporteurs, Forum on Drug Discovery, Development, and Translation, Forum on Neuroscience and Nervous System Disorders, National Cancer Policy Forum, Roundtable on Translating Genomic-Based Research for Health, Board on Health Science Policy, Board on Health Care Services, Institute of Medicine of the National Academies |
Autore | Olson Steve <1956-> |
Pubbl/distr/stampa | Washington, District of Columbia : , : The National Academies Press, , [2013] |
Descrizione fisica | 1 online resource (134 p.) |
Disciplina | 610.72 |
Soggetto topico |
Medical informatics - United States
Clinical trials - United States Biology - Research - United States Medicine - Research - United States |
ISBN |
0-309-26877-X
0-309-26875-3 |
Formato | Materiale a stampa ![]() |
Livello bibliografico | Monografia |
Lingua di pubblicazione | eng |
Nota di contenuto | The benefits of data sharing -- Barriers to data sharing -- Models of data sharing -- Standardization to enhance data sharing -- Changing the culture of research -- Final reflections on sharing clinical research data. |
Record Nr. | UNINA-9910787304203321 |
Olson Steve <1956->
![]() |
||
Washington, District of Columbia : , : The National Academies Press, , [2013] | ||
![]() | ||
Lo trovi qui: Univ. Federico II | ||
|