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Medical and care compunetics 4 [[electronic resource] /] / edited by Lodewijk Bos and Bernd Blobel
| Medical and care compunetics 4 [[electronic resource] /] / edited by Lodewijk Bos and Bernd Blobel |
| Pubbl/distr/stampa | Amsterdam ; ; Washington, DC, : IOS Press, c2007 |
| Descrizione fisica | 1 online resource (332 p.) |
| Disciplina | 610.285 |
| Altri autori (Persone) |
BosLodewijk
BlobelBernd |
| Collana | Studies in health technology and informatics |
| Soggetto topico |
Medical informatics
Telecommunication in medicine Medical telematics |
| ISBN |
1-280-93491-3
9786610934911 1-4294-9231-7 1-60750-250-X 600-00-0482-6 1-4337-0869-8 |
| Formato | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Title page; Preface; Board Lists; Contents; Keynotes; EHR and Record Access; Digital Homecare; Behavioral Compunetics; The Paradigm Change Challenge Towards Personal Health; Round Table on the Responsibility Shift from Doctor to Patient; Author Index |
| Record Nr. | UNINA-9910784254403321 |
| Amsterdam ; ; Washington, DC, : IOS Press, c2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Medical and care compunetics 4 [[electronic resource] /] / edited by Lodewijk Bos and Bernd Blobel
| Medical and care compunetics 4 [[electronic resource] /] / edited by Lodewijk Bos and Bernd Blobel |
| Pubbl/distr/stampa | Amsterdam ; ; Washington, DC, : IOS Press, c2007 |
| Descrizione fisica | 1 online resource (332 p.) |
| Disciplina | 610.285 |
| Altri autori (Persone) |
BosLodewijk
BlobelBernd |
| Collana | Studies in health technology and informatics |
| Soggetto topico |
Medical informatics
Telecommunication in medicine Medical telematics |
| ISBN |
1-280-93491-3
9786610934911 1-4294-9231-7 1-60750-250-X 600-00-0482-6 1-4337-0869-8 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Title page; Preface; Board Lists; Contents; Keynotes; EHR and Record Access; Digital Homecare; Behavioral Compunetics; The Paradigm Change Challenge Towards Personal Health; Round Table on the Responsibility Shift from Doctor to Patient; Author Index |
| Record Nr. | UNINA-9910818722003321 |
| Amsterdam ; ; Washington, DC, : IOS Press, c2007 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
Rare diseases in the age of Health 2.0 / / Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell, editors
| Rare diseases in the age of Health 2.0 / / Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell, editors |
| Edizione | [1st ed. 2014.] |
| Pubbl/distr/stampa | Heidelberg [Germany] : , : Springer, , 2014 |
| Descrizione fisica | 1 online resource (xxxiii, 292 pages) : illustrations (chiefly color) |
| Disciplina | 338.473621 |
| Collana | Communications in Medical and Care Compunetics |
| Soggetto topico |
Rare diseases
Medical informatics |
| ISBN | 3-642-38643-1 |
| Formato | Materiale a stampa |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione | eng |
| Nota di contenuto | Part I: Rare and Orphan Diseases -- Why R&D into Rare Diseases Matter -- Vignette: Autoimmune Polyendocrine Syndrome Type I (APS 1) -- Rare Diseases: How Genomics has Transformed Thinking, Diagnoses and Hope for Affected Families -- Vignette: A Giant of a Man: Simon Ibell (MPS II) -- Innovative Funding Models for Rare Diseases -- Rare Diseases: The Medical and the Disability Perspectives in the Age of 2.0 -- Vignette: Taking Control of Thalassemia -- Industry Perspectives on Orphan Drug Development -- Part II: Health 2.0 -- Health 2.0: The Power of the Internet to Raise Awareness of Rare Diseases -- Vignette: Living with NOMID: Michael’s Story -- Health 2.0 and Information Literacy for Rare and Orphan Diseases -- Social Media and Engaging with Health Providers -- Vignette: Hope–Overcoming Fabry -- Empowering the Rare Disease Community: Thirty Years of Progress -- Part III: Patient Perspectives and Empowerment Issues -- The Role of Social Media in Healthcare: Experiences of a Crohn’s Disease Patient -- Vignette: The Blessings and Curse of Diagnosis: Myasthenia Gravis -- Noah’s Hope: Family Experiences of Batten Disease -- Using Technology to Share Information: Experiences of Oesophagus Atresia (OA) and Tracheaoesophageal Fistel (TOF) -- Vignette: MPSIIIA (Sanfilippo) -- The Empowered Patient in the Health System of the Future -- Vignette: The Journey of a Lifetime -- Personalized Medicine: A Cautionary Tale or Instructional Epic -- Part IV: Closing Gaps: Promising Research and Future Considerations -- Managing Communication for People with Amyotrophic Lateral Sclerosis: The Role of the Brain-Computer Interface -- Vignette: The Wilderness -- Opportunities and Challenges for Supporting People with Vascular Dementia Through the Use of Common Web 2.0 Services -- Vignette: Recessive Dystrophic Epidermolysis Bullosa (RDEB): Sibling Experiences -- Health Policies for Orphan Diseases: International Comparison of Regulatory, Reimbursement and Health Services Policies -- Vignette: Route 125 (October 2009) -- Rare Diseases Challenges and Opportunities -- Epilogue. |
| Record Nr. | UNINA-9910299734703321 |
| Heidelberg [Germany] : , : Springer, , 2014 | ||
| Materiale a stampa | ||
| Lo trovi qui: Univ. Federico II | ||
| ||
