Genetic privacy [[electronic resource] ] : an evaluation of the ethical and legal landscape / / edited by Terry Sheung-Hung Kaan, Calvin Wai-Loon Ho

• Pubblicazione: London, : Imperial College Press, 2013
• Descrizione fisica: 1 online resource (412 p.)
• Disciplina: 174.2/96042
• Soggetto topico: Medical genetics - Law and legislation; Medical records - Access control; Genetic engineering - Law and legislation
• Soggetto genere / forma: Electronic books.
• Altri autori: HoCalvin Wai-Loon
• Note generali: Description based upon print version of record.
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan -- Can data protection secure personal privacy? / Onora O'Neill -- Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho -- Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen -- Socio-political discourses on genetic privacy in Japan / Kenji Matsui -- Genetic privacy : a challenge to genetic testing in China / Chunshui Wang -- Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan -- Privacy, rights, and biomedical data collections / Benjamin Capps -- Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir -- What - if anything - is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell -- Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White -- The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol -- Privacy matters in nicotine addiction / Yvette van der Eijk -- Human genomics and privacy / Oi Lian Kon.
• Sommario/riassunto: Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to present a wide range of expert opinion in which the notion of privacy is examined from many perspectives, in different contexts and imperatives, and in different societies, with the hope of advancing an understanding of privacy through the examination and critique of some of its evolving component concep
• Titolo autorizzato: Genetic privacy
• ISBN: 1-78326-306-7
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Lingua di pubblicazione: Inglese
• Record Nr.: 9910452262303321
• Lo trovi qui: Univ. Federico II