Managing chronicity in unequal states : ethnographic perspectives on caring / / edited by Laura Montesi and Melania Calestani

• Pubblicazione: London, England : , : UCL Press, , [2021]; ©2021
• Edizione: 1st ed.
• Descrizione fisica: 1 online resource (248 pages)
• Disciplina: 362.1
• Soggetto topico: Chronic diseases - Social aspects; Chronically ill - Social conditions
• Persona (resp. second.): MontesiLaura; CalestaniMelania
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: Cover -- Half Title -- Series Information -- Title Page -- Copyright Page -- Contents -- List of contributors -- Foreword -- References -- Acknowledgements -- Introduction -- Defining and defying chronicity -- Care and the politics of deservingness -- Structure of the book -- Concluding remarks -- Notes -- References -- 1 A house of cards: Chronicity, care packages and a 'good life' -- Background -- Methods -- Theoretical framework: Temporality, ethics and care -- Clarissa's struggle and the house of cards -- Temporal/spatial reconfiguration: a discussion -- Relationality: a discussion -- Conclusion -- Notes -- References -- 2 (Un)Deservingness and disregard: Chronicity, hospice and possibilities for care on the American periphery -- Deserving and undeserving of care -- (Un)Deservingness, attention and disregard -- Shaping a landscape of care through disregard -- Disregarded costs and the disappearance of medical equipment -- Claims to deservingness and bureaucratic mechanisms of disregard -- Durable medical equipment 'within reach' -- Snowbirds -- 'The only way to be heard': Inaudibility and absent complaints -- Ms Donovan -- Conclusion -- Notes -- References -- 3 Publicly privatised: Relative care support and the neoliberal reform in Finland -- Introduction -- Two facets of privatisation in the care system -- Relative caregivers in Archipelago Town and municipal support -- Families, relatives and caregiving practices in Archipelago Town -- Struggling with closed doors -- The professionalism of relative care -- The difference between relative caregivers and care workers -- Conclusion -- Notes -- References -- 4 The 'hassle' of 'good' care in dementia: Negotiating relatedness in the navigation of bureaucratic systems of support -- Introduction -- 'Official' paperwork -- The fuss and trust of relatedness. ; 'Getting it all sorted': (Mis)adventures in bureaucratic hassle -- The state as a bad relative -- Conclusion -- References -- 5 Assemblages of care around albinism: Kin-based networks and (in)dependence in contemporary Tanzania -- Introduction -- Multiple assemblages of care around people with albinism -- The reduction of institutional care and the 'NGOisation' of the nation state -- Kin-based care and humanitarian discourses in Ilula: Florentina's experiences -- (In)dependence in Dar es Salaam: Daudi's self-care, care for and care about others -- Conclusion -- Note -- References -- 6 Alcoholism and evangelical healing in Indigenous Mexico: Chronicity and care at the margins of the state -- From comorbidity to syndemics of alcoholism and marginality -- Five centuries of alcoholisation -- Drinking at the margins -- Care for whom? Drinking patterns and the possibility of care -- Medical (un)care: Governmental health providers -- Evangelicals and alcohol: Healing within the community -- Conclusions -- Acknowledgements -- Notes -- References -- 7 When 'care' leads to 'chronicity': Exploring the changing contours of care of homeless people living on the streets in India -- Homelessness, mental health care and chronicity -- Street beats: Differentiating the 'homeless' and the 'homeless mentally ill' -- Medicines and employment as the mainstays of 'care' -- Chronic illness or chronic suffering? Medical, social and experiential understandings of homelessness -- Caregiver-social worker alliance: 'Chronicity' as the ground for care -- Conclusion -- Notes -- References -- 8 'My body is my laboratory': Care experiments among persons who use drugs in Downtown Montreal -- Fieldwork and research strategy -- Research participants' background, public policies and deservingness -- Street-level psychiatric drug circulation -- Para-pharmacologists. ; Caring for oneself: Practices of psychiatric drug use -- Downing from a high -- Managing withdrawal -- Detoxing from drug use -- Medicating mental health problems -- Caring for others: The moral value of psychiatric medication -- Deservingness, chronicity and care: Final reflections -- Acknowledgements -- Notes -- References -- 9 'These doctors don't believe in PANS': Confronting uncertainty and a collapsing model of medical care -- Introduction -- A brief description of PANS -- Ethnographic research -- Making sense of the unknown -- Uncertainties, incompetence or a problem of medicine? -- A collapsing model of medical care, inadequate social welfare and family destruction -- Conclusion: Diagnoses as uncertainty, chronicity and hope for the future -- Notes -- References -- 10 Chronic living in zombieland: Care in between survival and death -- Introduction -- Living in chronicity -- living with affordances -- The pharmaceutical embrace -- Judicialising the suffering body -- Final remarks -- Notes -- References -- Afterword -- Cartographies of chronicity -- Waymarking entanglements -- Making and unmaking of worlds: 'Becoming' with chronicity -- References -- Index -- Back Cover.
• Sommario/riassunto: Managing Chronicity in Unequal States investigates how people live with chronic conditions in different contexts around the world, where judgements on human worth have long-lasting effects on people's wellbeing.
• Titolo autorizzato: Managing chronicity in unequal states
• ISBN: 1-80008-031-X
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Lingua di pubblicazione: Inglese
• Record Nr.: 9910774786303321
• Lo trovi qui: Univ. Federico II