The power of two : a twin triumph over cystic fibrosis / / Isabel Stenzel Byrnes & Anabel Stenzel ; designer, cover design, Jennifer Cropp

• Autore: Stenzel Byrnes Isabel <1972->
• Pubblicazione: Columbia, Missouri : , : University of Missouri Press, , 2007; ©2007
• Edizione: Updated and expanded edition.
• Descrizione fisica: 1 online resource (361 p.)
• Disciplina: 362.196/3720092
• Soggetto topico: Cystic fibrosis - Patients - United States; Cystic fibrosis - Patients - Family relationships - United States; Twins - United States
• Persona (resp. second.): StenzelAnabel <1972->; CroppJennifer
• Note generali: Description based upon print version of record.
• Nota di bibliografia: Includes bibliographical references.
• Nota di contenuto: Contents; Acknowledgments; Authors' Note; Introduction; Part 1. The Early Years; Chapter 1. One in 1.8 Billion: Isa; Chapter 2. First Memories: Isa; Chapter 3. Kaiser Visits: Isa; Chapter 4. Culture Clash: Ana; Chapter 5. Becoming Japanese: Ana; Chapter 6. Our German Roots: Ana; Chapter 7. The Flamingos: Isa; Chapter 8. The Word Was Out: Isa; Chapter 9. Interracial Woes: Isa; Chapter 10. Life at Kaiser: Isa; Chapter 11. No Escape: Ana; Chapter 12. Noticing Ryuta: Ana; Chapter 13. Therapy or Die: Ana; Chapter 14. Stanford Twins: Ana; Chapter 15. A Lost Leader: Ana ; Chapter 16. A Day in the Life: AnaChapter 17. Blossoming: Isa; Chapter 18. The Next Generation: Isa; Part 2. The Adult Years; Chapter 19. An Adventure in Japan: Isa; Chapter 20. Homesick in Japan: Ana; Chapter 21. Going Downhill: Ana; Chapter 22. Three's a Crowd: Ana; Chapter 23. A Heavy Burden: Isa; Chapter 24. The Question: Isa; Chapter 25. Another Love Triangle: Ana; Chapter 26. Dying to Work: Ana; Chapter 27. A Marriage Comes Full Circle: Isa; Chapter 28. Giving Back: Isa; Chapter 29. A Day of Intensity: Isa; Chapter 30. Wings of a Butterfly: Ana; Chapter 31. It's My Turn: Isa ; Chapter 32. The Miracle: AnaEpilogue: Isa; Epilogue: Ana; Resources; Recommended Reading
• Sommario/riassunto: For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family's stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford's Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood. Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: "We have an old life--one of growing up with chronic illness--and anew life--one of opportunities and gifts we have never imagined before." In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance-and about the ultimate power of hope.
• Titolo autorizzato: The power of two
• ISBN: 0-8262-7342-4
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Lingua di pubblicazione: Inglese
• Record Nr.: 9910826269403321
• Lo trovi qui: Univ. Federico II