Challenges and opportunities in using residual newborn screening samples for translational research [[electronic resource] ] : workshop summary / / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies
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| Titolo: |
Challenges and opportunities in using residual newborn screening samples for translational research [[electronic resource] ] : workshop summary / / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies
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| Pubblicazione: | Washington, D.C., : National Academies Press, 2010 |
| Descrizione fisica: | 1 online resource (85 p.) |
| Disciplina: | 618.9 |
| Soggetto topico: | Genetic disorders - Diagnosis |
| Newborn infants - Diseases - Diagnosis | |
| Altri autori: |
OlsonSteve <1956->
BergerAdam C
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| Note generali: | Description based upon print version of record. |
| Nota di bibliografia: | Includes bibliographical references. |
| Nota di contenuto: | ""Front Matter""; ""Reviewers""; ""Acknowledgments""; ""Contents""; ""Abbreviations and Acronyms""; ""1 Introduction""; ""2 Newborn Screening as a Public Health Program""; ""3 Uses of Residual Newborn Screening Samples in Research""; ""4 Concerns About the Use of Residual Newborn Screening Samples""; ""5 Review and Consent in the Use of Residual Newborn Screening Samples""; ""6 Parental and Public Education""; ""7 Workshop Overview and Wrap-Up""; ""References""; ""Appendix A: Workshop Agenda""; ""Appendix B: Speaker Biographical Sketches"" |
| Sommario/riassunto: | "Newborn screening samples are used to test more than 4 million infants each year for life-threatening diseases that are treatable if found at birth. These specimens also represent a potentially invaluable resource for public health and biomedical research. The IOM held a workshop to examine issues surrounding the use of residual specimens for translational research." |
| Titolo autorizzato: | Challenges and opportunities in using residual newborn screening samples for translational research |
| ISBN: | 0-309-17713-8 |
| 1-282-91713-7 | |
| 9786612917134 | |
| 0-309-15955-5 | |
| Formato: | Materiale a stampa  |
| Livello bibliografico | Monografia |
| Lingua di pubblicazione: | Inglese |
| Record Nr.: | 9910791776703321 |
| Lo trovi qui: | Univ. Federico II |
| Opac: | Controlla la disponibilità qui |