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[null,"1.","Record Nr.",null,"UNISA996396129503316"]
[null,null,"Autore",null,"Marshall Stephen <1594?-1655.>"]
[null,null,"Titolo",null,"A sacred panegyrick, or A sermon of thanks-giving, preached to the two Houses of Parliament [[electronic resource] ] : His Excellency the Earl of Essex, the Lord Major, court of alderman, and common councell of the city of London, the reverend Assembly of Divines, and commissioners from the Church of Scotland. Vpon occasion of their solemn feasting, to testifie their thankfullnes to God, and union and concord one with another, after so many designes to divide them, and thereby ruine the Kingdome, Ianuary 18. 1643. By Stephen Marshall, B.D. minister of Gods Word at Finching-field in Essex. Published by order of the Lords and Commons"]
[null,null,"Pubbl/distr/stampa",null,"London, : Printed for Stephen Bowtell, and are to be sold at his shop at the sign of the Bible in Popes-head-alley, 1644"]
[null,null,"Descrizione fisica",null,"[4], 34 p"]
[null,null,"Soggetti",null,"Church and state - Great Britain"]
[{"$nulls":4},"Sermons, English - 17th century"]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,null,"Note generali","Annotation on Thomason copy: \"January. 24. 1643\"."]
[{"$nulls":4},"Reproduction of the original in the British Library."]
[null,null,null,"Sommario/riassunto","eebo-0018"]
[null,"2.","Record Nr.",null,"UNISA996509968103316"]
[null,null,"Autore",null,"Birmingham Karen"]
[null,null,"Titolo",null,"Pioneering Ethics in a Longitudinal Study : The early development of the ALSPAC Ethics and Law Committee"]
[null,null,"Pubbl/distr/stampa",null,"Bristol : , : Policy Press, , 2018"]
[{"$nulls":4},"©2018"]
[null,null,"Edizione",null,"[1st ed.]"]
[null,null,"Descrizione fisica",null,"1 online resource (136)"]
[null,null,"Soggetti",null,"Age groups: children"]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,"Nota di contenuto",null,"Front Matter -- Contents -- List of figures and photographs -- List of abbreviations -- Authors and contributors, with current positions -- Acknowledgements -- Foreword -- Preface -- Introduction -- ALSPAC Ethics and Law Committee: a new concept -- Preliminaries and pioneers: framing the questions -- Informal or casual: an unusual style -- Advisory to independent: a missed opportunity -- Bureaucratic battles: liaison with Local Research Ethics Committees -- Policy development: a case of case law -- Confidentiality and anonymity: a rod for their own backs -- Informed consent: too much information -- Child protection: an observational study? -- Disclosure of individual results: foreseen feedback and incidental findings -- Disclosure of individual results: participants' requests -- Participants' problems: people not policies -- External databases: anonymous linkage -- Beyond policy: a broad remit -- Retention of the Cohort: incentives or inducements -- Commercial collaborations: selling our souls -- Comprehensive oversight: undocumented and unacknowledged -- Influence beyond ALSPAC: extension of expertise -- Conclusions -- Postscript -- Notes -- References -- ALSPAC Steering Committee: founding members -- ALSPAC Ethics and Law Committee members: appointed 1990-2005 -- Letter to participants: further information concerning confidentiality -- Young Mothers paper by Elizabeth Mumford -- The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies -- Index"]
[null,null,null,"Sommario/riassunto","\"Available Open Access under CC-BY-NC licence The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the "]
[{"$nulls":4},"90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee.\n\nThis book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston.\n\nThis will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed.\"\n\n\nThe Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee.\n\nThis book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston.\n\nThis will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed.\""]