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[null,"1.","Record Nr.",null,"UNINA9910965442603321"]
[null,null,"Autore",null,"National Academies of Sciences Engineering, and Medicine"]
[null,null,"Titolo",null,"Building Data Capacity for Patient-Centered Outcomes Research : Priorities for the Next Decade"]
[null,null,"Pubbl/distr/stampa",null,"Washington, D.C. : , : National Academies Press, , 2023"]
[{"$nulls":4},"©2022"]
[null,null,"ISBN",null,"9780309287142"]
[{"$nulls":4},"0309287146"]
[{"$nulls":4},"9780309287128"]
[{"$nulls":4},"030928712X"]
[null,null,"Edizione",null,"[1st ed.]"]
[null,null,"Descrizione fisica",null,"1 online resource (369 pages)"]
[null,null,"Disciplina",null,"610.696"]
[null,null,"Soggetti",null,"Outcome assessment (Medical care) - Research - Data processing"]
[{"$nulls":4},"Patient-centered health care - Research - Data processing"]
[{"$nulls":4},"Medical care"]
[{"$nulls":4},"United States"]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,"Nota di contenuto",null,"Intro -- FrontMatter -- Acknowledgments -- Contents -- Boxes, Figures, and Tables -- Summary -- 1 Committee Charge and Process -- 2 Background on the PCOR Data Infrastructure and Office of the Secretary PCOR Trust Fund -- 3 Priority Areas for the PCOR Data Infrastructure -- Appendix A: Biographical Sketches of Committee Members -- Appendix B: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 1-Looking Ahead at Data Needs -- Appendix C: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 2-Data Standards, Methods, and Policy -- Appendix D: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 3-A Comprehensive Ecosystem for PCOR -- Appendix E: Office of the Secretary PCOR Trust Fund Project Portfolio."]
[null,null,null,"Sommario/riassunto","The Office of the Assistant Secretary for Planning and Evaluation (ASPE), in partnership with other agencies and divisions of the United States Department of Health and Human Services, coordinates a portfolio of projects that build data capacity for conducting patient-centered outcomes research (PCOR). PCOR focuses on producing scientific evidence on the effectiveness of prevention and treatment options to "]
[{"$nulls":4},"inform the health care decisions of patients, families, and health care providers, taking into consideration the preferences, values, and questions patients face when making health care choices.ASPE asked the National Academies to appoint a consensus study committee to identify issues critical to the continued development of the data infrastructure for PCOR. Building Data Capacity for Patient-Centered Outcomes Research contains findings and conclusions in the areas that could benefit from being prioritized as part of ASPE's work, and offers input on strengthening the overall framework for building the data infrastructure over the coming years. The committee authoring this report also issued three interim reports, which summarized discussions from three workshops, and are included as appendices in the final report."]