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[null,"1.","Record Nr.",null,"UNINA9910480634803321"]
[null,null,"Titolo",null,"Handbook of perinatal and neonatal palliative care : a guide for nurses, physicians, and other health professionals / / Rana Limbo, Charlotte Wool, Brian S. Carter, editors"]
[null,null,"Pubbl/distr/stampa",null,"New York, New York : , : Springer Publishing Company, , [2020]"]
[{"$nulls":4},"©2020"]
[null,null,"ISBN",null,"0-8261-3842-X"]
[null,null,"Descrizione fisica",null,"1 online resource (xxiv, 440 pages)"]
[null,null,"Disciplina",null,"616.029"]
[null,null,"Soggetti",null,"Terminally ill children - Care"]
[{"$nulls":4},"Palliative treatment"]
[{"$nulls":4},"Newborn infants - Medical care"]
[{"$nulls":4},"Neonatology"]
[{"$nulls":4},"Perinatology"]
[{"$nulls":4},"Palliative Care"]
[{"$nulls":4},"Infant Health"]
[{"$nulls":4},"Perinatal Care"]
[{"$nulls":4},"Grief"]
[{"$nulls":4},"Electronic books."]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,null,"Nota di bibliografia","Includes bibliographical references and index."]
[null,null,"Nota di contenuto",null,"Understanding palliative care. Advancing palliative care to perinatal and neonatal settings / Charlotte Wool and Beth Perry Black ; Neonatal and perinatal palliative care services and programs / Steven R. Leuthner and Emilie Lamberg Jones ; Creating seamlessness in palliative care services / Sara Muñoz-Blanco, Sue Huff, Renee D. Boss, and Christy Torkildson -- Caring for the whole family in palliative care. Comfort in perinatal and neonatal palliative care: an innovative plan of care focused on relational elements / Elvira Parravicini and Francis T. McCarthy ; Suspending judgment: being with and knowing the family / Terri Major-Kincade, Leslie L. Harris, and Stacy C. Smith ; Helping siblings connect, relate, and say goodbye / Meghaan R. Nguyen ; Barriers to referring patients for perinatal palliative care / Barthélémy Tosello and Marie-Ange Einaudi -- Planning and decision-making. Communicating devastating news / Steven R. Leuthner, Renee D. Boss, and Brian S. "]
[{"$nulls":4},"Carter ; Grief and memories begin with diagnosis / Rana Limbo and Marie A. Walter ; Anticipatory guidance: birth and advance care planning / Jessica T. Fry, Natalia Henner, and Andrea Caruso ; Difficulty in predicting survival: genetics and genetic counseling / Martha Dudek and Rebecca D. Carter ; \"Compatible with love\": qualitative analysis of decision-making rationale of parents who continue pregnancy affected by a life-limiting fetal condition / Jesse Wool and Charlotte Wool ; Perinatal regoaling in the face of serious illness: hopeful thinking, good-parent beliefs, and uncertainty / Douglas L. Hill, Jackelyn Y. Boyden, Christ Feudtner, and David A. Munson ; Building and sustaining relationships during pregnancy / Amy Kuebelbeck -- Physical aspects of palliative care: diagnosis, treatment, and outcomes. Attending to pain and suffering in palliative care / Marc-Antoine Marquis and Antaione Payot ; Managing pain and discomfort in the mother / Steven D. Waldman, Melissa Liddle, Reid A. Waldman, and Kelley L. Sharp ; Perinatal palliative care in the context of fetal or neonatal surgery / David A. Munson ; Palliative care at the time of unexpected premature delivery / Lezlie H. Andersen, Bethany D. Kaemingk, and Christopher A. Collura ; Compassionate extubation and withdrawal of life-sustaining therapies / Jennifer S. Linebarger and Meghan Tracewski -- Supporting families and care providers through the nuances of palliative care. Lactation and breastfeeding in the context of perinatal palliative care / Diane L. Spatz and Joanna C. M. Cole ; Ten ethical principles for neonatal palliative care / Franco A. Carnevale, Jacqueline van Wijlen, and Brian S. Carter ; Spirituality: the effects of another's pain and suffering on care providers / Darryl I. Owens and Hadley Kifner ; Assessing perinatal grief intensity in the palliative care setting / Marianne H. Hutti and Lela A. Baker ; Strategies to honor professional well-being in perinatal and neonatal care / Kathie Kobler."]
[null,null,null,"Sommario/riassunto","\"The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidence based reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words.\""]
[null,"2.","Record Nr.",null,"UNINA9910785621003321"]
[null,null,"Autore",null,"Van Manen Max"]
[null,null,"Titolo",null,"Researching lived experience : human science for an action sensitive pedagogy / / Max Van Manen"]
[null,null,"Pubbl/distr/stampa",null,"[Albany, N.Y.] : , : State University of New York Press, , 1990"]
[{"$nulls":4},"©1990"]
[null,null,"ISBN",null,"1-4384-2269-5"]
[null,null,"Descrizione fisica",null,"1 online resource (x, 202 pages)"]
[null,null,"Collana",null,"SUNY series in the philosophy of education"]
[null,null,"Disciplina",null,"370/.7/8"]
[null,null,"Soggetti",null,"Education - Research"]
[{"$nulls":4},"Hermeneutics - Research"]
[{"$nulls":4},"Phenomenology - Research"]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,null,"Nota di bibliografia","Includes bibliographical references (p. [189]-196) and index."]
[null,null,"Nota di contenuto",null,"\"\"Table of Contents\"\"; \"\"Preface \"\"; \"\"1 Human Science \"\"; \"\"Introduction \"\"; \"\"Why Do Human Science Research? \"\"; \"\"What Is a Hermeneutic Phenomenological Human Science?\"\"; \"\"What Does it Mean to Be Rational? \"\"; \"\"What a Human Science Cannot Do \"\"; \"\"Description or Interpretation? \"\"; \"\"Research â€? Procedures, Techniques, and Methods \"\"; \"\"Methodical Structure of Human Science Research \"\"; \"\"2 Turning to the Nature of Lived Experience \"\"; \"\"The Nature of Lived Experience \"\"; \"\"Orienting to the Phenomenon \"\"; \"\"Formulating the Phenomenological Question \"\""]
[{"$nulls":4},"\"\"Explicating Assumptions and Pre-understandings \"\" \"\"3 Investigating Experience as We Live It \"\"; \"\"The Nature of Data (datum: thing given or granted) \"\"; \"\"Using Personal Experience as a Starting Point \"\"; \"\"Tracing Etymological Sources \"\"; \"\"Searching Idiomatic Phrases \"\"; \"\"Obtaining Experiential Descriptions from Others \"\"; \"\"Protocol Writing (lived-experience descriptions\"\"; \"\"Interviewing (the personal life story) \"\"; \"\"Observing (the experiential anecdote) \"\"; \"\"Experiential Descriptions in Literature \"\"; \"\"Biography as a Resource for Experiential Material \"\""]
[{"$nulls":4},"\"\"Diaries, Journals, and Logs as Sources of Lived Experiences\"\" \"\"Art as a Source of Lived Experience \"\"; \"\"Consulting Phenomenological Literature \"\"; \"\"4 Hermeneutic Phenomenological Reflection \"\"; \"\"Conducting Thematic Analysis \"\"; \"\"Situations\"\"; \"\"Seeking Meaning \"\"; \"\"What Is a Theme? \"\"; \"\"The Pedagogy of Theme \"\"; \"\"Uncovering Thematic Aspects \"\"; \"\"Isolating Thematic Statements \"\"; \"\"Composing Linguistic "]
[{"$nulls":4},"'fransformations \"\"; \"\"Gleaning Thematic Descriptions from Artistic Sources \"\"; \"\"Interpretation through Conversation \"\"; \"\"Collaborative Analysis: The Research Seminar/Group \"\""]
[{"$nulls":4},"\"\"Lifeworld Existentials as Guides to Reflection \"\" \"\"Determining Incidental and Essential Themes \"\"; \"\"5 Hermeneutic Phenomenological Writing \"\"; \"\"Attending to the Speaking of Language \"\"; \"\"Silence: the Limits and Power of Language \"\"; \"\"Anecdote as a Methodological Device \"\"; \"\"The Value of Anecdotal Narrative \"\"; \"\"Varying the Examples \"\"; \"\"Writing Mediates Reflection and Action \"\"; \"\"To Write is to Measure Our Thoughtfulness \"\"; \"\"Writing Exercises the Ability to See \"\"; \"\"To Write is to Show Something \"\"; \"\"To Write is to Rewrite \"\"; \"\"6 Maintaining a Strong and Oriented Relation \"\""]
[{"$nulls":4},"\"\"The Relation Between Research/Writing and Pedagogy \"\" \"\"On the Ineffability of Pedagogy \"\"; \"\"\"\"Seeing\"\" Pedagogy \"\"; \"\"The Pedagogic Practice of Textuality \"\"; \"\"Human Science as Critically Oriented Action Research \"\"; \"\"Action Sensitive Knowledge Leads to Pedagogic Competence \"\"; \"\"7 Balancing the Research Context by Considering Parts and Whole \"\"; \"\"The Research Proposal \"\"; \"\"Effects and Ethics of Human Science Research \"\"; \"\"Plan and Context of a Research Project \"\"; \"\"Working the Text \"\"; \"\"Glossary\"\"; \"\"Bibliography\"\"; \"\"Index \"\""]