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[null,"1.","Record Nr.",null,"UNINA9910455988703321"]
[null,null,"Titolo",null,"When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors"]
[null,null,"Pubbl/distr/stampa",null,"Washington, D.C., : National Academy Press, c2003"]
[null,null,"ISBN",null,"1-280-18370-5"]
[{"$nulls":4},"9786610183708"]
[{"$nulls":4},"0-309-50215-2"]
[null,null,"Descrizione fisica",null,"1 online resource (712 p.)"]
[null,null,"Disciplina",null,"362.1/75/083"]
[null,null,"Soggetti",null,"Terminally ill children - Care"]
[{"$nulls":4},"Terminally ill children - Family relationships"]
[{"$nulls":4},"Palliative treatment"]
[{"$nulls":4},"Electronic books."]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,null,"Note generali","Description based upon print version of record."]
[null,null,null,"Nota di bibliografia","Includes bibliographical references and index."]
[null,null,"Nota di contenuto",null,"\"\"Front Matter\"\"; \"\"Contents\"\"; \"\"Preface\"\"; \"\"Acknowledgments\"\"; \"\"Reviewers\"\"; \"\"Summary\"\"; \"\"Introduction\"\"; \"\"Patterns of Childhood Death in America\"\"; \"\"Pathways to a Childâ€?s Death\"\"; \"\"Communication, Goal Setting, and Care Planning\"\"; \"\"Care and Caring from Diagnosis Through Death and Bereavement\"\"; \"\"Providing, Organizing, and Improving Care\"\"; \"\"Financing of Palliative and End-of-Life Care for Children and Their Families\"\"; \"\"Ethical and Legal Issues\"\"; \"\"Educating Health Care Professionals\"\"; \"\"Directions for Research\"\"; \"\"References\"\"; \"\"Appendix A Study Origins and Activities\"\""]
[{"$nulls":4},"\"\"Appendix B Prognostication Scores\"\"\"\"Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents\"\"; \"\"Appendix D Cultural Dimensions of Care at Lifeâ€?s End for Children and Their Families\"\"; \"\"Appendix E Bereavement Experiences after the Death of a Child\"\"; \"\"Appendix F End-of-Life Care in Emergency Medical Services for Children\"\"; \"\"Appendix G Education in Pediatric Palliative Care\"\"; \"\"Appendix H Progress in Pediatric Palliative Care in New York Stateâ€?A Demonstration Project\"\"; \"\"Appendix I Committee Biographical Statements\"\"; \"\"Index\"\""]