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[null,"1.","Record Nr.",null,"UNINA9910300212703321"]
[null,null,"Autore",null,"Minor Jessica"]
[null,null,"Titolo",null,"Informed Consent in Predictive Genetic Testing : A Revised Model / / by Jessica Minor"]
[null,null,"Pubbl/distr/stampa",null,"Cham : , : Springer International Publishing : , : Imprint : Springer, , 2015"]
[null,null,"ISBN",null,"3-319-17416-9"]
[null,null,"Edizione",null,"[1st ed. 2015.]"]
[null,null,"Descrizione fisica",null,"1 online resource (237 p.)"]
[null,null,"Disciplina",null,"599935"]
[{"$nulls":4},"610"]
[{"$nulls":4},"611.01816"]
[{"$nulls":4},"613"]
[{"$nulls":4},"616.89"]
[{"$nulls":4},"616.8914"]
[null,null,"Soggetti",null,"Maternal and child health services"]
[{"$nulls":4},"Psychotherapy"]
[{"$nulls":4},"Counseling"]
[{"$nulls":4},"Human genetics"]
[{"$nulls":4},"Clinical health psychology"]
[{"$nulls":4},"Maternal and Child Health"]
[{"$nulls":4},"Psychotherapy and Counseling"]
[{"$nulls":4},"Human Genetics"]
[{"$nulls":4},"Health Psychology"]
[null,null,"Lingua di pubblicazione",null,"Inglese"]
[null,null,"Formato",null,"Materiale a stampa"]
[null,null,null,"Livello bibliografico","Monografia"]
[null,null,null,"Note generali","Description based upon print version of record."]
[null,null,null,"Nota di bibliografia","Includes bibliographical references and index."]
[null,null,"Nota di contenuto",null,"Introduction -- Predictive Genetic Testing -- The History and Components of Informed Consent -- Revised Model of Informed Consent -- Application of the Revised Model -- Conclusion."]
[null,null,null,"Sommario/riassunto","This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced "]
[{"$nulls":4},"patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource.   Included in the coverage:   The science behind PGT. Understanding genetic risks and probability. The history of informed consent. Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety. Applications of the model in DTC and pleiotropic genetic testing. Implementation of the revised model, and assessing its effectiveness.   A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals."]