LEADER 03588nam 2200685Ia 450 001 9910452474803321 005 20210908232751.0 010 $a0-520-94504-2 024 7 $a10.1525/9780520945043 035 $a(CKB)2550000001039302 035 $a(EBL)1593894 035 $a(OCoLC)834604067 035 $a(SSID)ssj0000836280 035 $a(PQKBManifestationID)11461969 035 $a(PQKBTitleCode)TC0000836280 035 $a(PQKBWorkID)11007787 035 $a(PQKB)10995354 035 $a(MiAaPQ)EBC1593894 035 $a(DE-B1597)519770 035 $a(DE-B1597)9780520945043 035 $a(Au-PeEL)EBL1593894 035 $a(CaPaEBR)ebr10675755 035 $a(EXLCZ)992550000001039302 100 $a20081218d2009 ub 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aUncertain suffering$b[electronic resource] $eracial health care disparities and sickle cell disease /$fCarolyn Moxley Rouse 210 1$aBerkeley :$cUniversity of California Press,$d[2009] 215 $a1 online resource 300 $a"The George Gund Foundation imprint in African American studies"--P. facing t.p. 311 $a0-520-25912-2 311 $a0-520-25911-4 320 $aIncludes bibliographical references and index. 327 $tFrontmatter --$tContents --$tPreface --$tAcknowledgments --$tIntroduction --$tPart 1. The Questions --$tPart 2. Reforming the System --$tNotes --$tReferences --$tIndex 330 $aOn average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering. 606 $aSickle cell anemia$xPatients$zUnited States 606 $aDiscrimination in medical care$zUnited States 606 $aHealth services accessibility$zUnited States 606 $aMinorities$xMedical care$zUnited States 606 $aRace discrimination$zUnited States 606 $aSocial medicine$zUnited States 608 $aElectronic books. 615 0$aSickle cell anemia$xPatients 615 0$aDiscrimination in medical care 615 0$aHealth services accessibility 615 0$aMinorities$xMedical care 615 0$aRace discrimination 615 0$aSocial medicine 676 $a362.196/15270089 700 $aRouse$b Carolyn Moxley$f1965-$01032796 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910452474803321 996 $aUncertain suffering$92466091 997 $aUNINA LEADER 01125nam a2200277 i 4500 001 991002616009707536 008 040616s1988 it 000 0 ita 020 $a8885913091 035 $ab1295004x-39ule_inst 040 $aBiblioteca Interfacoltà$bita 082 04$a070.50945632 100 1 $aBlasio, Maria Grazia$0487026 245 10$aCum gratia et privilegio :$bprogrammi editoriali e politica pontificia, Roma, 1487-1527 /$cMaria Grazia Blasio 260 $aRoma :$bRoam nel Rinascimento,$c1988 300 $a107 p. ;$c18 cm. 440 0$aR.R. inedita ;$v2 650 4$aEditoria$zRoma$y1480-1530 650 4$aCensura ecclesiastica$zRoma$y1480-1530 907 $a.b1295004x$b02-04-14$c16-06-04 912 $a991002616009707536 945 $aLE002 070.5 BLA 945 $aLE002 Bibl. IX C 7$g1$i2002000369598$lle002$op$pE3.88$q-$rl$s- $t0$u0$v0$w0$x0$y.i13540609$z16-06-04 945 $aLE019 A 723$g1$i2019000083904$lle019$o-$pE0.00$q-$rl$s- $t0$u0$v0$w0$x0$y.i15431411$z05-07-12 996 $aCum gratia et privilegio$9281201 997 $aUNISALENTO 998 $ale002$ale019$b16-06-04$cm$da $e-$fita$git $h0$i1 LEADER 01112nam0 22002771i 450 001 UON00220750 005 20231205103413.652 010 $a04-650-5992-9 100 $a20030730d1995 |0itac50 ba 101 $aeng 102 $aUS 105 $a|||| ||||| 200 1 $a Postethnic America$eBeyond multiculturalism$fDavid A. Hollinger 210 $aNew York$cBasic Books$d1995. XII$d210 p. ; 22 cm. 606 $aMulticulturalismo$3UONC042853$2FI 606 $aSTATI UNITI$xRelazioni etniche$xSaggi$3UONC036715$2FI 620 $aUS$dNew York$3UONL000050 676 $a305.800973$cStratificazione sociale. Gruppi razziali, etnici. Stati Uniti$v21 700 1$aHOLLINGER$bDavid A.$3UONV133770$0605633 712 $aBasic Books Publishers$3UONV266584$4650 801 $aIT$bSOL$c20250919$gRICA 899 $aSIBA - SISTEMA BIBLIOTECARIO DI ATENEO$2UONSI 912 $aUON00220750 950 $aSIBA - SISTEMA BIBLIOTECARIO DI ATENEO$dSI B E 0253 $eSI SC 35213 5 0253 $sBuono 996 $aPostethnic America$91121789 997 $aUNIOR