LEADER 05419oam 22006734a 450 001 9910463931403321 005 20210915044216.0 010 $a0-8014-5541-3 024 7 $a10.7591/9780801455421 035 $a(CKB)2670000000607345 035 $a(SSID)ssj0001461638 035 $a(PQKBManifestationID)11819414 035 $a(PQKBTitleCode)TC0001461638 035 $a(PQKBWorkID)11479550 035 $a(PQKB)10883571 035 $a(MiAaPQ)EBC3138714 035 $a(OCoLC)1080551568 035 $a(MdBmJHUP)muse58332 035 $a(DE-B1597)480044 035 $a(OCoLC)905903123 035 $a(OCoLC)911212910 035 $a(OCoLC)984662313 035 $a(DE-B1597)9780801455421 035 $a(Au-PeEL)EBL3138714 035 $a(CaPaEBR)ebr11034367 035 $a(CaONFJC)MIL760260 035 $a(OCoLC)922998667 035 $a(EXLCZ)992670000000607345 100 $a20140826d2015 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt 182 $cc 183 $acr 200 10$aVoices in the Band$eA Doctor, Her Patients, and How the Outlook on AIDS Care Changed from Doomed to Hopeful /$fSusan C. Ball 210 1$aLondon :$cILR Press, an imprint of Cornell University Press,$d2015. 210 4$dİ2015. 215 $a1 online resource (266 pages) 225 0 $aThe culture and politics of health care work 300 $aBibliographic Level Mode of Issuance: Monograph 311 $a0-8014-5362-3 311 $a0-8014-5542-1 320 $aIncludes bibliographical references and index. 327 $a1992: Beginning -- 1992: So much to learn -- 1992: No easy answers and little to offer -- 1994: Too many drugs, no medication -- 1994: Being mindful of the subtext -- 1994: Weekend on call -- 1994: Christmas -- 1995: Another support group -- 1995: Mothers and children -- 1995: Decisions and revisions -- 1995: Colleagues and families -- 1995: So many stories and some new faces -- 1996: Some hope in the despair -- 1996: Hit early, hit hard -- 1997: Amazing changes -- 1999: Despite our best intentions -- 1999: Coping with a different paradigm -- 2000: Going home. 330 $a"I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980's continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could."-from the Introduction In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients. Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990's and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease. 410 0$aCulture and politics of health care work. 606 $aAIDS (Disease)$xPatients$zNew York (State)$zNew York 606 $aAIDS (Disease)$zNew York (State)$zNew York$xHistory 608 $aElectronic books. 615 0$aAIDS (Disease)$xPatients 615 0$aAIDS (Disease)$xHistory. 676 $a362.19697/920097471 700 $aBall$b Susan C.$f1957-$01024668 801 0$bMdBmJHUP 801 1$bMdBmJHUP 906 $aBOOK 912 $a9910463931403321 996 $aVoices in the Band$92435505 997 $aUNINA LEADER 01307nam a2200301 i 4500 001 991001764409707536 008 030908s2003 enk 001 0 eng 020 $a0754634264 035 $ab12193756-39ule_inst 040 $aFac. 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