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Wiese, Philip McCallion, Mary McCarron, editors 205 $aFirst edition 210 1$aCham :$cSpringer Nature Switzerland AG :$cImprint: Palgrave Macmillan,$d2022. 215 $a1 online resource (xxxiv, 519 pages) $cillustrations (some color) 311 08$aPrint version: Stancliffe, Roger J. End of Life and People with Intellectual and Developmental Disability Cham : Springer International Publishing AG,c2022 9783030986964 320 $aIncludes bibliographical references and index. 327 $aChapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices -- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability -- Chapter 3: Suicide and Autism: A Lifespan Perspective -- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities -- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany -- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care -- Chapter 7: Living and Dying Well with Dementia -- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers -- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19 -- Chapter 10: Accessible Funerals and People with Intellectual Disability -- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability -- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities -- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability -- Chapter 14: The Process of Dying -- Chapter 15: Use of Do-Not-Resuscitate Orders -- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice -- Chapter 17 End-of Life Resources. 330 $a"This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning."--$cPage 4 of cover. 517 3 $aContemporary issues, challenges, experiences and practice 606 $aTerminal care 606 $aPalliative treatment 606 $aPeople with mental disabilities$xDeath 606 $aPeople with mental disabilities$xCare 606 $aTerminal Care$3(DNLM)D013727 606 $aPersons with Intellectual Disabilities$3(DNLM)D019989 606 $aPalliative Care$3(DNLM)D010166 606 $aDevelopmental Disabilities$3(DNLM)D002658 606 $aRight to Health$3(DNLM)D000080564 615 0$aTerminal care. 615 0$aPalliative treatment. 615 0$aPeople with mental disabilities$xDeath. 615 0$aPeople with mental disabilities$xCare. 615 12$aTerminal Care 615 12$aPersons with Intellectual Disabilities. 615 22$aPalliative Care 615 22$aDevelopmental Disabilities 615 22$aRight to Health 676 $a155 676 $a362.3 702 $aStancliffe$b Roger 702 $aWiese$b Michele Y. 702 $aMcCallion$b Philip 702 $aMcCarron$b Mary 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910574864503321 996 $aEnd of life and people with intellectual and developmental disability$92997253 997 $aUNINA 999 $aHealth Sciences