LEADER 03418nam 22006011 450 001 9911109699403321 005 20241226111243.0 010 $a9789353287665 010 $a9353287669 010 $a9789352807758 010 $a9352807758 010 $a9789352807765 010 $a9352807766 035 $a(CKB)4100000005879483 035 $a(MiAaPQ)EBC5494715 035 $a(Au-PeEL)EBL5494715 035 $a(CaPaEBR)ebr11601700 035 $a(OCoLC)1049567926 035 $a(CaToSAGE)SAGE000009117 035 $a265765 035 $a(EXLCZ)994100000005879483 100 $a20200124e20182018 fy| 0 101 0 $aeng 135 $aur||||||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aDisability and care work $estate, society and invisible lives /$fUpali Chakravarti 205 $a1st edition. 210 1$aLos Angeles, CA :$cSAGE Publications, Inc.,$d2018. 215 $a1 online resource (220 pages) $cillustrations 311 08$a9789353880620 311 08$a9353880629 311 08$a9789352807741 311 08$a935280774X 320 $aIncludes bibliographical references and index. 327 $aCover -- Sage historypage -- Halftitle page -- Marketing page -- Fulltitle page -- Copyright page -- CONTENTS -- LIST OF ABBREVIATIONS -- PREFACE -- ACKNOWLEDGEMENTS -- Part 1 -- 1 Introduction -- 2 Framing Disability -- Part 2 -- 3 Making Sense of the Narratives I -- 4 Making Sense of the Narratives II -- 5 Making Sense of the Narratives III -- Part 3 -- 6 State, Society and Disability in India -- 7 The Welfare State as Paternalistic Caregiver -- 8 Conclusion -- APPENDIX -- BIBLIOGRAPHY -- ABOUT THE AUTHOR -- INDEX. 330 8 $aDisability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society. 606 $aPeople with disabilities$xCare 606 $aPeople with disabilities$xSocial conditions 606 $aDisabilities$xSocial aspects 615 0$aPeople with disabilities$xCare. 615 0$aPeople with disabilities$xSocial conditions. 615 0$aDisabilities$xSocial aspects. 676 $a362.4/048 700 $aChakravarti$b Upali$01965586 801 0$bCaToSAGE 801 1$bCaToSAGE 801 2$bUtOrBLW 906 $aBOOK 912 $a9911109699403321 996 $aDisability and care work$94729315 997 $aUNINA