LEADER 03317nam 2200625Ia 450 001 9910965717903321 005 20251116141103.0 010 $a0-309-17159-8 010 $a0-309-51381-2 035 $a(CKB)110986584753174 035 $a(SSID)ssj0000177349 035 $a(PQKBManifestationID)11156202 035 $a(PQKBTitleCode)TC0000177349 035 $a(PQKBWorkID)10215911 035 $a(PQKB)10637915 035 $a(MiAaPQ)EBC3375521 035 $a(Au-PeEL)EBL3375521 035 $a(CaPaEBR)ebr10038802 035 $a(OCoLC)923257016 035 $a(BIP)53854202 035 $a(BIP)6775010 035 $a(EXLCZ)99110986584753174 100 $a20010924d2000 uy 0 101 0 $aeng 135 $aurcn||||||||| 181 $ctxt 182 $cc 183 $acr 200 00$aImproving access to and confidentiality of research data $ereport of a workshop /$fChristopher Mackie and Norman Bradburn, editors 205 $a1st ed. 210 $aWashington, DC $cNational Academy Press$dc2000 215 $axii, 62 p. $cill 225 1 $aCompass series 300 $aBibliographic Level Mode of Issuance: Monograph 311 08$a0-309-07180-1 320 $aIncludes bibliographical references (p. 51-52). 327 $aFront Matter -- Acknowledgments -- Contents -- Preface -- 1 Introduction -- 2 The Data Access, Confidentiality Tradeoff -- 3 Ethical and Legal Requirements Associated with Data Dissemination -- 4 Alternative Approaches for Limiting Disclosure Risks and Facilitating Data Access -- 5 Current Agency and Organization Practices -- References and Bibliography -- APPENDIX A Workshop Participants -- APPENDIX B Workshop Agenda. 330 $aImproving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risks-both absolute and relative-created by researchers and research data, as well as by other data users and other types of data. 410 0$aCompass series. 606 $aMedical records 606 $aMedical ethics 615 0$aMedical records. 615 0$aMedical ethics. 676 $a651.5/04261 701 $aMackie$b Christopher D$0613931 701 $aBradburn$b Norman M$0119048 712 02$aNational Research Council (U.S.).$bCommittee on National Statistics. 712 02$aNational Research Council (U.S.).$bCommission on Behavioral and Social Sciences and Education. 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910965717903321 996 $aImproving access to and confidentiality of research data$94475108 997 $aUNINA