LEADER 03615nam 2200769 a 450 001 9910963790603321 005 20251017110134.0 010 $a9786612083570 010 $a9780309141376 010 $a0309141370 010 $a9781282083578 010 $a1282083570 010 $a9780309125000 010 $a0309125006 035 $a(CKB)1000000000785688 035 $a(OCoLC)311551818 035 $a(CaPaEBR)ebrary10286189 035 $a(SSID)ssj0000111114 035 $a(PQKBManifestationID)11137777 035 $a(PQKBTitleCode)TC0000111114 035 $a(PQKBWorkID)10074960 035 $a(PQKB)11082618 035 $a(Au-PeEL)EBL3378462 035 $a(CaPaEBR)ebr10286189 035 $a(CaONFJC)MIL208357 035 $a(OCoLC)923279883 035 $a(MiAaPQ)EBC3378462 035 $a(Perlego)4734456 035 $a(DNLM)1494468 035 $a(BIP)26705020 035 $a(EXLCZ)991000000000785688 100 $a20090126d2009 uy 0 101 0 $aeng 135 $aurcn||||||||| 181 $ctxt 182 $cc 183 $acr 200 00$aBeyond the HIPAA privacy rule $eenhancing privacy, improving health through research /$fSharyl J. Nass, Laura A. Levit, and Lawrence O. Gostin, editors ; Committee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule, Board on Health Sciences Policy, Board on Health Care Services 205 $a1st ed. 210 $aWashington, D.C. $cNational Academies Press$dc2009 215 $a1 online resource (334 p.) 300 $aBibliographic Level Mode of Issuance: Monograph 311 08$a9780309124997 311 08$a0309124999 320 $aIncludes bibliographical references. 327 $aIntroduction -- The value and importance of health information privacy -- The value, importance, and oversight of health research -- HIPAA, the privacy rule, and its application to health research -- Effect of the HIPAA privacy rule on health research -- A new framework for protecting privacy in health research. 330 $aIn the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research. 606 $aMedical records$xAccess control$zUnited States 606 $aHealth$xResearch$zUnited States 606 $aPrivacy, Right of$zUnited States 615 0$aMedical records$xAccess control 615 0$aHealth$xResearch 615 0$aPrivacy, Right of 676 $a651.5/04261 701 $aNass$b Sharyl J$0857626 701 $aLevit$b Laura A$01810851 701 $aGostin$b Lawrence O$g(Lawrence Ogalthorpe)$0884710 712 02$aInstitute of Medicine (U.S.).$bCommittee on Health Research and the Privacy of Health Information, the HIPAA Privacy Rule. 712 02$aInstitute of Medicine (U.S.).$bBoard on Health Care Services. 712 02$aInstitute of Medicine (U.S.).$bBoard on Health Sciences Policy. 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910963790603321 996 $aBeyond the HIPAA privacy rule$94363386 997 $aUNINA