LEADER 04080nam 2200637Ia 450 001 9910960836303321 005 20251017110023.0 010 $a1-280-17936-8 010 $a9786610179367 010 $a0-309-52841-0 035 $a(CKB)111087027009004 035 $a(EBL)3375883 035 $a(SSID)ssj0000270943 035 $a(PQKBManifestationID)11217865 035 $a(PQKBTitleCode)TC0000270943 035 $a(PQKBWorkID)10262405 035 $a(PQKB)11742895 035 $a(MiAaPQ)EBC3375883 035 $a(Au-PeEL)EBL3375883 035 $a(CaPaEBR)ebr10049189 035 $a(CaONFJC)MIL17936 035 $a(OCoLC)923259546 035 $a(DNLM)1153998 035 $a(BIP)12806772 035 $a(EXLCZ)99111087027009004 100 $a20020906d2003 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 00$aWhen children die $eimproving palliative and end-of-life care for children and their families : [popular summary] /$fCommittee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors 205 $a1st ed. 210 $aWashington, D.C. $cNational Academy Press$dc2003 215 $a1 online resource (16 p.) 300 $a"This document is a brief summary of the Institute of Medicine report entitled "When Children Die: Improving Palliative and End-of-Life Care for Children"." -- p.ii 311 08$a0-309-09076-8 327 $a""What is palliative care?""; ""When children need palliative care.""; ""Why it can be hard to get palliative care.""; ""We can give very ill children the palliative care they need.""; ""1. Children should have care that is focused on their needs and the needs of their families.""; ""2. Health plans should make it easier for children and families to get palliative care.""; ""3. Health care professionals should be trained to give palliative care to children.""; ""4. Researchers should find out more about what care works best."" 327 $a""We can improve palliative care for very ill children and their families.""""A word to families . . .""; ""We can improve palliative care for very ill children and their families."" 330 $aThis document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years. 606 $aTerminally ill children$xCare 606 $aTerminally ill children$xFamily relationships 606 $aPalliative treatment 615 0$aTerminally ill children$xCare. 615 0$aTerminally ill children$xFamily relationships. 615 0$aPalliative treatment. 676 $a362.1/75/083 701 $aField$b Marilyn J$g(Marilyn Jane)$01804195 701 $aBehrman$b Richard E.$f1931-$0630342 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910960836303321 996 $aWhen children die$94364943 997 $aUNINA