LEADER 04663nam 2200625Ia 450 001 9910959919303321 005 20251017110111.0 010 $a0-309-25953-3 010 $a1-283-63624-7 010 $a0-309-25507-4 035 $a(CKB)2670000000241233 035 $a(EBL)3379005 035 $a(SSID)ssj0000733699 035 $a(PQKBManifestationID)12278696 035 $a(PQKBTitleCode)TC0000733699 035 $a(PQKBWorkID)10715382 035 $a(PQKB)11133115 035 $a(MiAaPQ)EBC3379005 035 $a(Au-PeEL)EBL3379005 035 $a(CaPaEBR)ebr10594230 035 $a(CaONFJC)MIL394870 035 $a(OCoLC)798259648 035 $a(DNLM)1582842 035 $a(BIP)40018697 035 $a(BIP)38954493 035 $a(EXLCZ)992670000000241233 100 $a20120423d2012 uy 0 101 0 $aeng 135 $aurcn||||||||| 181 $ctxt 182 $cc 183 $acr 200 10$aEpilepsy across the spectrum $epromoting health and understanding /$fCommittee on the Public Health Dimensions of the Epilepsies, Board on Health Sciences Policy, Institute of Medicine of the National Academies ; Mary Jane England ... [et al.], editors 205 $a1st ed. 210 $aWashington, D.C. $cNational Academies Press$dc2012 215 $a1 online resource (569 p.) 300 $aDescription based upon print version of record. 311 08$a0-309-25506-6 320 $aIncludes bibliographical references. 327 $a""Front Matter""; ""Reviewers""; ""Preface""; ""Acknowledgments""; ""Contents""; ""Tables, Figures, and Boxes""; ""Acronyms""; ""Summary""; ""1 Introduction""; ""2 Surveillance, Measurement, and Data Collection""; ""3 Epidemiology and Prevention""; ""4 Health Care: Quality, Access, and Value""; ""5 Health Professional Education""; ""6 Quality of Life and Community Resources""; ""7 Educating People with Epilepsy and Their Families""; ""8 Public Education and Awareness""; ""9 Next Steps and Recommendations""; ""Appendix A: Workshop Agendas""; ""Appendix B: IOM Data-Gathering Effort"" 327 $a""Appendix C: Data on Specialized Epilepsy Centers: Report to the Institute of Medicine's Committee on the Public Health Dimensions of the Epilepsies""""Appendix D: Health Professionals Who Care for People with Epilepsy: Possible Roles and Relevant Boards and Organizations""; ""Appendix E: Committee Biographies"" 330 $aAlthough epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource. 606 $aEpilepsy$zUnited States 606 $aHealth education$zUnited States 615 0$aEpilepsy 615 0$aHealth education 676 $a362.19685/3 701 $aEngland$b Mary Jane$f1938-$01851806 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910959919303321 996 $aEpilepsy across the spectrum$94446117 997 $aUNINA