LEADER 04102nam 22006373u 450 001 9910955593503321 005 20251117070557.0 010 $a1-4529-4981-6 035 $a(CKB)3710000000553947 035 $a(EBL)4391845 035 $a(SSID)ssj0001619464 035 $a(PQKBManifestationID)16349731 035 $a(PQKBTitleCode)TC0001619464 035 $a(PQKBWorkID)14922641 035 $a(PQKB)10174500 035 $a(MiAaPQ)EBC4391845 035 $a(EXLCZ)993710000000553947 100 $a20160215d2015|||| u|| | 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aMultiple autisms $espectrums of advocacy and genomic science /$fJennifer S. Singh 205 $a1st ed. 210 $aMinneapolis $cUniversity of Minnesota Press$d2015 215 $a1 online resource (302 p.) 300 $aDescription based upon print version of record. 311 08$a0-8166-9831-7 327 $aCover; Contents; Abbreviations; Preface; Introduction: Multiple Ways of Viewing Autism; 1 Defining, Counting, Contesting: Changes in Diagnosis, Prevalence, and Advocacy; 2 Parent Advocacy and the Rise of Autism Genetics Research; 3 No Single Gene for Autism: The Emergence of Genomic Styles of Thought; 4 Simplex Families, Complex Exchanges: Why Parents Participate in an Autism Genomic Database; 5 Living with Autism: Perspectives of Adults on the Spectrum; Conclusion: A Spectrum of Knowledge Production; Acknowledgments; Appendix: Methods; Notes; Bibliography; Index; A; B; C; D; E; F; G; H; I; J 327 $aKL; M; N; O; P; Q; R; S; T; U; V; W 330 $aIs there a gene for autism? Despite a billion-dollar, twenty-year effort to find out-and the more elusive the answer, the greater the search seems to become-no single autism gene has been identified. In Multiple Autisms, Jennifer S. Singh sets out to discover how autism emerged as a genetic disorder and how this affects those who study autism and those who live with it. This is the first sustained analysis of the practices, politics, and meaning of autism genetics from a scientific, cultural, and social perspective.In 2004, when Singh began her research, the prevalence of autism was reported as 1 in 150 children. Ten years later, the number had jumped to 1 in 100, with the disorder five times more common in boys than in girls. Meanwhile the diagnosis changed to "autistic spectrum disorders," and investigations began to focus more on genomics than genetics, less on single genes than on hundreds of interacting genes. Multiple Autisms charts this shift and its consequences through nine years of ethnographic observations, analysis of scientific and related literatures, and morethan seventy interviews with autism scientists, parents of children with autism, and people on the autism spectrum. The book maps out the social history of parental activism in autism genetics, the scientific optimism about finding a gene for autism and the subsequent failure, and the cost in personal and social terms of viewing and translating autism through a genomic lens. How is genetic information useful to people living with autism? By considering this question alongside the scientific and social issues that autism research raises, Singh's work shows us the true reach and implications of a genomic gaze. 606 $aAutism$xResearch 606 $aGenetics$xResearch 606 $aAutism 606 $aAutistic Disorder 606 $aAutism Spectrum Disorder 606 $aPsychiatry 606 $aBiological Science Disciplines 615 0$aAutism$xResearch. 615 0$aGenetics$xResearch. 615 0$aAutism. 615 2$aAutistic Disorder. 615 2$aAutism Spectrum Disorder. 615 2$aPsychiatry. 615 2$aBiological Science Disciplines. 676 $a616.85/882 700 $aSingh$b Jennifer S$01881500 712 02$aProject Muse, 801 0$bAU-PeEL 801 1$bAU-PeEL 801 2$bAU-PeEL 906 $aBOOK 912 $a9910955593503321 996 $aMultiple autisms$94496118 997 $aUNINA