LEADER 04168nam 22006015 450 001 9910954065003321 005 20230126220314.0 010 $a9780226345192 010 $a022634519X 024 7 $a10.7208/9780226345192 035 $a(CKB)3790000000534784 035 $a(StDuBDS)EDZ0001816558 035 $a(MiAaPQ)EBC4942174 035 $a(DE-B1597)524548 035 $a(OCoLC)1015215535 035 $a(DE-B1597)9780226345192 035 $a(Perlego)1852026 035 $a(EXLCZ)993790000000534784 100 $a20191022d2017 uy 0 101 0 $aeng 135 $aur||||||||||| 181 $ctxt$2rdacontent 181 $csti$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 14$aThe postgenomic condition $eethics, justice, and knowledge after the genome /$fJenny Reardon 210 1$aChicago :$cUniversity of Chicago Press,$d[2017] 210 4$dİ2017 215 $a1 online resource $cillustrations 311 08$a9780226510453 311 08$a022651045X 311 08$a9780226344553 311 08$a022634455X 320 $aIncludes bibliographical references and index. 327 $tFrontmatter --$tContents --$t1. The Postgenomic Condition: An Introduction --$t2. The Information of Life or the Life of Information? --$t3. Inclusion: Can Genomics Be Antiracist? --$t4. Who Represents the Human Genome? What Is the Human Genome? --$t5. Genomics for the People or the Rise of the Machines? --$t6. Genomics for the 98 Percent? --$t7. The Genomic Open 2.0: The Public v. The Public --$t8. Life on Third: Knowledge and Justice after the Genome --$tEpilogue --$tAcknowledgments --$tNotes --$tBibliography --$tIndex 330 $aNow that we have sequenced the human genome, what does it mean? In The Postgenomic Condition, Jenny Reardon critically examines the decade after the Human Genome Project, and the fundamental questions about meaning, value and justice this landmark achievement left in its wake. Drawing on more than a decade of research-in molecular biology labs, commercial startups, governmental agencies, and civic spaces-Reardon demonstrates how the extensive efforts to transform genomics from high tech informatics practiced by a few to meaningful knowledge beneficial to all exposed the limits of long-cherished liberal modes of knowing and governing life. Those in the American South challenged the value of being included in genomics when no hospital served their community. Ethicists and lawyers charged with overseeing Scottish DNA and data questioned how to develop a system of ownership for these resources when their capacity to create things of value-new personalized treatments-remained largely unrealized. Molecular biologists who pioneered genomics asked whether their practices of thinking could survive the deluge of data produced by the growing power of sequencing machines. While the media is filled with grand visions of precision medicine, The Postgenomic Condition shares these actual challenges of the scientists, entrepreneurs, policy makers, bioethicists, lawyers, and patient advocates who sought to leverage liberal democratic practices to render genomic data a new source of meaning and value for interpreting and caring for life. It brings into rich empirical focus the resulting hard on-the-ground questions about how to know and live on a depleted but data-rich, interconnected yet fractured planet, where technoscience garners significant resources, but deeper questions of knowledge and justice urgently demand attention. 606 $aHuman genome$xResearch$zUnited States$xHistory 606 $aGenomics$xMoral and ethical aspects 606 $aGenomics$xSocial aspects 606 $aSociogenomics 615 0$aHuman genome$xResearch$xHistory. 615 0$aGenomics$xMoral and ethical aspects. 615 0$aGenomics$xSocial aspects. 615 0$aSociogenomics. 676 $a611.01816 686 $aCC 7264$qSEPA$2rvk 700 $aReardon$b Jenny$f1972-$0978191 801 0$bDE-B1597 801 1$bDE-B1597 906 $aBOOK 912 $a9910954065003321 996 $aThe postgenomic condition$94355399 997 $aUNINA