LEADER 04934nam 22007093 450 001 9910915999203321 005 20230629230418.0 010 $a0-309-28714-6 010 $a0-309-28712-X 035 $a(MiAaPQ)EBC29599032 035 $a(Au-PeEL)EBL29599032 035 $a(CKB)24739003400041 035 $a(BIP)084426642 035 $a(EXLCZ)9924739003400041 100 $a20220827d2023 uy 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aBuilding Data Capacity for Patient-Centered Outcomes Research $ePriorities for the Next Decade 205 $a1st ed. 210 1$aWashington, D.C. :$cNational Academies Press,$d2023. 210 4$dİ2022. 215 $a1 online resource (369 pages) 311 08$aPrint version: National Academies of Sciences, Engineering, and Medicine Building Data Capacity for Patient-Centered Outcomes Research Washington, D.C. : National Academies Press,c2023 9780309287111 327 $aIntro -- FrontMatter -- Acknowledgments -- Contents -- Boxes, Figures, and Tables -- Summary -- 1 Committee Charge and Process -- 2 Background on the PCOR Data Infrastructure and Office of the Secretary PCOR Trust Fund -- 3 Priority Areas for the PCOR Data Infrastructure -- Appendix A: Biographical Sketches of Committee Members -- Appendix B: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 1-Looking Ahead at Data Needs -- Appendix C: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 2-Data Standards, Methods, and Policy -- Appendix D: Building Data Capacity for Patient-Centered Outcomes Research: Interim Report 3-A Comprehensive Ecosystem for PCOR -- Appendix E: Office of the Secretary PCOR Trust Fund Project Portfolio. 330 8 $aThe Office of the Assistant Secretary for Planning and Evaluation (ASPE), in partnership with other agencies and divisions of the United States Department of Health and Human Services, coordinates a portfolio of projects that build data capacity for conducting patient-centered outcomes research (PCOR). PCOR focuses on producing scientific evidence on the effectiveness of prevention and treatment options to inform the health care decisions of patients, families, and health care providers, taking into consideration the preferences, values, and questions patients face when making health care choices.ASPE asked the National Academies to appoint a consensus study committee to identify issues critical to the continued development of the data infrastructure for PCOR. Building Data Capacity for Patient-Centered Outcomes Research contains findings and conclusions in the areas that could benefit from being prioritized as part of ASPE's work, and offers input on strengthening the overall framework for building the data infrastructure over the coming years. The committee authoring this report also issued three interim reports, which summarized discussions from three workshops, and are included as appendices in the final report. 606 $aOutcome assessment (Medical care)$xResearch$xData processing 606 $aPatient-centered health care$xResearch$xData processing 606 $aMedical care$2fast$3(OCoLC)fst01013753 607 $aUnited States$2fast 610 $aInformation Technology 610 $aMedical Care 610 $aComputers 610 $aMedical 615 0$aOutcome assessment (Medical care)$xResearch$xData processing. 615 0$aPatient-centered health care$xResearch$xData processing. 615 7$aMedical care. 676 $a610.696 700 $aNational Academies of Sciences$b Engineering, and Medicine$01596851 701 $aSciences$b Division on Engineering and Physical$01651736 701 $aDivision$b Health and Medicine$01740532 701 $aEducation$b Division of Behavioral and Social Sciences and$01731314 701 $aBoard$b Computer Science and Telecommunications$01741557 701 $aServices$b Board on Health Care$01741456 701 $aStatistics$b Committee on National$01741555 701 $a2030$b Committee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to$01778170 712 02$aDivision on Engineering and Physical Sciences, 712 02$aHealth and Medicine Division, 712 02$aDivision of Behavioral and Social Sciences and Education, 712 02$aComputer Science and Telecommunications Board, 712 02$aBoard on Health Care Services, 712 02$aCommittee on National Statistics, 712 02$aCommittee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to 2030, 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910915999203321 996 $aBuilding Data Capacity for Patient-Centered Outcomes Research$94300817 997 $aUNINA