LEADER 03684nam 2200613Ia 450 001 9910829095803321 005 20200520144314.0 010 $a0-292-74466-8 024 7 $a10.7560/744653 035 $a(CKB)3170000000060196 035 $a(EBL)3443672 035 $a(SSID)ssj0001036509 035 $a(PQKBManifestationID)11575438 035 $a(PQKBTitleCode)TC0001036509 035 $a(PQKBWorkID)11041870 035 $a(PQKB)10505315 035 $a(MiAaPQ)EBC3443672 035 $a(OCoLC)841909727 035 $a(MdBmJHUP)muse25091 035 $a(Au-PeEL)EBL3443672 035 $a(CaPaEBR)ebr10689946 035 $a(DE-B1597)587263 035 $a(DE-B1597)9780292744660 035 $a(EXLCZ)993170000000060196 100 $a20121024d2013 ub 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt 182 $cc 183 $acr 200 10$aLiving with lupus $ewomen and chronic illness in Ecuador /$fby Ann Miles 205 $a1st ed. 210 $aAustin $cUniversity of Texas Press$d2013 215 $a1 online resource (205 p.) 225 0 $aLouann Atkins Temple women & culture series ;$vbook thirty 300 $aDescription based upon print version of record. 311 $a0-292-74465-X 320 $aIncludes bibliographical references and index. 327 $a""Contents""; ""Acknowledgments""; ""1. Introduction""; ""2. Cuenca, Lupus, and Chronic Illness""; ""3. Health Care in Ecuador""; ""4. Liminality""; ""5. Loss""; ""6. Suffering""; ""7. Transformation""; ""8. Living with Lupus""; ""Notes""; ""References""; ""Index"" 330 $aOnce associated only with the wealthy and privileged in Latin America, lifelong illnesses are now emerging among a wider cross section of the population as an unfortunate consequence of growing urbanization and increased life expectancy. One of these diseases is the chronic autoimmune disorder lupus erythematosus. Difficult to diagnose and harder still to effectively manage, lupus challenges the very foundations of women?s lives, their real and imagined futures, and their carefully constructed gendered identities. While the illness is validated by medical science, it is poorly understood by women, their families, and their communities, which creates multiple tensions as women attempt to make sense of an unpredictable, expensive, and culturally suspect medically managed illness. Living with Lupus vividly chronicles the struggles of Ecuadorian women as they come to terms with the experience of debilitating chronic illness. Drawing on years of ethnographic research, Ann Miles sensitively portrays the experiences and stories of Ecuadorian women who suffer with the intractable and stigmatizing disease. She uses in-depth case histories, rich in ethnographic detail, to explore not only how chronic illness can tear at the seams of women?s precarious lives, but also how meanings are reconfigured when a biomedical illness category moves across a cultural landscape. One of the few books that deals with the meanings and experiences of chronic illness in the developing world, Living with Lupus contributes to our understanding of a significant global health transition. 410 0$aLouann Atkins Temple Women & Culture Series 606 $aSystemic lupus erythematosus$zEcuador 606 $aWomen$xDiseases$zEcuador 615 0$aSystemic lupus erythematosus 615 0$aWomen$xDiseases 676 $a362.1967/72009866 700 $aMiles$b Ann$g(Ann M.)$01604293 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910829095803321 996 $aLiving with lupus$93929068 997 $aUNINA