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101 0 $aeng
135   $aur|n|---|||||
181   $ctxt
182   $cc
183   $acr
200 00$aAchieving justice in genomic translation $ere-thinking the pathway to benefit /$fedited by Wylie Burke ... [et al.]
205   $a1st ed.
210   $aOxford ;$aNew York $cOxford University Press$d2011
215   $a1 online resource (223 p.)
300   $aDescription based upon print version of record.
311   $a0-19-539038-5 
320   $aIncludes bibliographical references and index.
327   $aAchieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.
330   $aThis book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce
606   $aHuman genetics$xResearch$xMoral and ethical aspects
606   $aGenomics$xResearch$xMoral and ethical aspects
606   $aGenetic screening$xMoral and ethical aspects
615  0$aHuman genetics$xResearch$xMoral and ethical aspects.
615  0$aGenomics$xResearch$xMoral and ethical aspects.
615  0$aGenetic screening$xMoral and ethical aspects.
676   $a174.2/96042
701   $aBurke$b Wylie$01705165
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801  1$bMiAaPQ
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906   $aBOOK
912   $a9910828217803321
996   $aAchieving justice in genomic translation$94091668
997   $aUNINA