LEADER 03922nam 2200625Ia 450 001 9910827325703321 005 20230418173126.0 010 $a1-280-44143-7 010 $a9786610441433 010 $a0-19-802372-3 010 $a1-4237-3755-5 035 $a(CKB)1000000000028645 035 $a(EBL)3051926 035 $a(OCoLC)922952643 035 $a(SSID)ssj0000173137 035 $a(PQKBManifestationID)11169769 035 $a(PQKBTitleCode)TC0000173137 035 $a(PQKBWorkID)10165098 035 $a(PQKB)11360338 035 $a(Au-PeEL)EBL3051926 035 $a(CaPaEBR)ebr10087199 035 $a(CaONFJC)MIL44143 035 $a(MiAaPQ)EBC3051926 035 $a(EXLCZ)991000000000028645 100 $a19931216d1993 uy 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 00$aHospice care for children /$feditors, Ann Armstrong-Dailey, Sarah Zarbock Goltzer 210 1$aNew York :$cOxford University Press,$d1993. 215 $a1 online resource (xvi, 294 pages) $cillustrations 300 $aDescription based upon print version of record. 311 0 $a0-19-507312-6 320 $aIncludes bibliographical references and index. 327 $a""Contents""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Control""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence""; ""4. Neonatal Death""; ""5. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""6. Family Dynamics""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""; ""9. Lessons in Grief: A Practical Look at School Programs""; ""10. Role of the Primary Physician""; ""11. Staff Support"" 327 $a""12. The Volunteer Component"" ""III: Appendix""; ""An Early Model of Care""; ""A Home Care Program""; ""Palliative Care in an Inpatient Hospital Setting""; ""Children's Literature on Death""; ""Additional Resources""; ""Index"" 330 $aChildren with life-threatening and terminal illnesses - and their families - require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents and community service volunteers 606 $aTerminally ill children$xCare 606 $aHospice care 606 $aTerminally ill children$xFamily relationships 615 0$aTerminally ill children$xCare. 615 0$aHospice care. 615 0$aTerminally ill children$xFamily relationships. 676 $a362.1/756/083 701 $aArmstrong-Dailey$b Ann$01658101 701 $aZarbock$b Sarah F$01658102 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910827325703321 996 $aHospice care for children$94011910 997 $aUNINA