LEADER 02865nam 2200673 450 001 9910825576503321 005 20230803031117.0 010 $a0-309-26877-X 010 $a0-309-26875-3 035 $a(CKB)2670000000410491 035 $a(EBL)3379266 035 $a(SSID)ssj0000997902 035 $a(PQKBManifestationID)11608788 035 $a(PQKBTitleCode)TC0000997902 035 $a(PQKBWorkID)11002679 035 $a(PQKB)11627460 035 $a(MiAaPQ)EBC3379266 035 $a(Au-PeEL)EBL3379266 035 $a(CaPaEBR)ebr10863923 035 $a(OCoLC)851693450 035 $a(EXLCZ)992670000000410491 100 $a20131120h20132013 uy| 0 101 0 $aeng 135 $aurcnu|||||||| 181 $ctxt 182 $cc 183 $acr 200 10$aSharing clinical research data $eworkshop summary /$fSteve Olson and Autumn S. Downey, Rapporteurs, Forum on Drug Discovery, Development, and Translation, Forum on Neuroscience and Nervous System Disorders, National Cancer Policy Forum, Roundtable on Translating Genomic-Based Research for Health, Board on Health Science Policy, Board on Health Care Services, Institute of Medicine of the National Academies 210 1$aWashington, District of Columbia :$cThe National Academies Press,$d[2013] 210 4$dİ2013 215 $a1 online resource (134 p.) 300 $aDescription based upon print version of record. 311 $a0-309-26874-5 320 $aIncludes bibliographical references (pages 81-84). 327 $aThe benefits of data sharing -- Barriers to data sharing -- Models of data sharing -- Standardization to enhance data sharing -- Changing the culture of research -- Final reflections on sharing clinical research data. 606 $aMedical informatics$zUnited States$vCongresses 606 $aClinical trials$zUnited States$vCongresses 606 $aBiology$xResearch$zUnited States$vCongresses 606 $aMedicine$xResearch$zUnited States$vCongresses 615 0$aMedical informatics 615 0$aClinical trials 615 0$aBiology$xResearch 615 0$aMedicine$xResearch 676 $a610.72 700 $aOlson$b Steve$f1956-$0488724 702 $aOlson$b Steve$f1956- 702 $aDowney$b Autumn S. 712 02$aInstitute of Medicine (U.S.).$bForum on Neuroscience and Nervous System Disorders, 712 02$aNational Cancer Policy Forum (U.S.), 712 02$aInstitute of Medicine (U.S.).$bRoundtable on Translating Genomic-Based Research for Health, 712 02$aInstitute of Medicine (U.S.).$bBoard on Health Sciences Policy, 712 02$aInstitute of Medicine (U.S.).$bBoard on Health Care Services, 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910825576503321 996 $aSharing clinical research data$93947475 997 $aUNINA