LEADER 03875nam 2200661 450 001 9910824892303321 005 20230803021659.0 010 $a0-300-18429-8 024 7 $a10.12987/9780300184297 035 $a(CKB)2550000001115078 035 $a(EBL)3421280 035 $a(SSID)ssj0000984946 035 $a(PQKBManifestationID)12363745 035 $a(PQKBTitleCode)TC0000984946 035 $a(PQKBWorkID)11017085 035 $a(PQKB)11707318 035 $a(MiAaPQ)EBC3421280 035 $a(DE-B1597)485796 035 $a(OCoLC)857769518 035 $a(DE-B1597)9780300184297 035 $a(Au-PeEL)EBL3421280 035 $a(CaPaEBR)ebr10756474 035 $a(CaONFJC)MIL515380 035 $a(EXLCZ)992550000001115078 100 $a20130204d2013 uy| 0 101 0 $aeng 135 $aurun#---uuuuu 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aRaising Henry $ea memoir of motherhood, disability, & discovery /$fRachel Adams 210 1$aNew Haven :$cYale University Press,$d[2013] 215 $a1 online resource (352 p.) 300 $aDescription based upon print version of record. 311 0 $a0-300-18000-4 311 0 $a1-299-84129-5 320 $aIncludes bibliographical references. 327 $tFront matter --$tContents --$tAcknowledgments --$tPrelude --$tArrival --$tMy Favorite Freak --$tThe Phantom Nephew --$tLearning Curve --$tChristmas --$tThe Feeding Tube --$tThe Nursing Circle --$tWhat Peggy Did --$tAiming High Enough --$tEarly Intervention --$tChoices --$tVisiting The Front Lines --$tCake --$tBrothers --$tInclusion --$tA Simple Place --$tFinding A Voice --$tThe Girl Down The Street --$tSurprised By Disability --$tTransition --$tAlways Something --$tEpilogue --$tSelected Bibliography 330 $aRachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget. 517 3 $aRaising Henry :$ea memoir of motherhood, disability, and discovery 606 $aDown syndrome$xPatients$zUnited States$vBiography 606 $aDevelopmentally disabled children$zUnited States$vBiography 606 $aParents of developmentally disabled children$zUnited States$vBiography 606 $aMothers and sons$zUnited States$vBiography 615 0$aDown syndrome$xPatients 615 0$aDevelopmentally disabled children 615 0$aParents of developmentally disabled children 615 0$aMothers and sons 676 $a618.92/8588420092 676 $aB 700 $aAdams$b Rachel$f1968-$01708194 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910824892303321 996 $aRaising Henry$94097040 997 $aUNINA