LEADER 04578nam 2201045Ia 450 001 9910819110203321 005 20240402031503.0 010 $a0-520-94504-2 024 7 $a10.1525/9780520945043 035 $a(CKB)2550000001039302 035 $a(EBL)1593894 035 $a(OCoLC)834604067 035 $a(SSID)ssj0000836280 035 $a(PQKBManifestationID)11461969 035 $a(PQKBTitleCode)TC0000836280 035 $a(PQKBWorkID)11007787 035 $a(PQKB)10995354 035 $a(MiAaPQ)EBC1593894 035 $a(DE-B1597)519770 035 $a(DE-B1597)9780520945043 035 $a(Au-PeEL)EBL1593894 035 $a(CaPaEBR)ebr10675755 035 $a(EXLCZ)992550000001039302 100 $a20081218d2009 ub 0 101 0 $aeng 135 $aur|n|---||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aUncertain suffering$b[electronic resource] $eracial health care disparities and sickle cell disease /$fCarolyn Moxley Rouse 205 $a1st ed. 210 1$aBerkeley :$cUniversity of California Press,$d[2009] 215 $a1 online resource 300 $a"The George Gund Foundation imprint in African American studies"--P. facing t.p. 311 $a0-520-25912-2 311 $a0-520-25911-4 320 $aIncludes bibliographical references and index. 327 $tFrontmatter --$tContents --$tPreface --$tAcknowledgments --$tIntroduction --$tPart 1. The Questions --$tPart 2. Reforming the System --$tNotes --$tReferences --$tIndex 330 $aOn average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering. 606 $aSickle cell anemia$xPatients$zUnited States 606 $aDiscrimination in medical care$zUnited States 606 $aHealth services accessibility$zUnited States 606 $aMinorities$xMedical care$zUnited States 606 $aRace discrimination$zUnited States 606 $aSocial medicine$zUnited States 610 $aafrican americans. 610 $aambivalence. 610 $aamerican healthcare system. 610 $aanthropology. 610 $ablack americans. 610 $acommunity based health programs. 610 $acultural assumptions. 610 $adisease. 610 $adoctor. 610 $ahealth disparity. 610 $ahealthcare services. 610 $ahealthcare. 610 $ahuman condition. 610 $alife and death. 610 $amedical treatment. 610 $amedicine. 610 $amental suffering. 610 $anational policy. 610 $apain and suffering. 610 $aphysical suffering. 610 $apolitics of racism. 610 $arace in america. 610 $aresource limitations. 610 $asicker. 610 $asickle cell anemia. 610 $asickle cell patients. 610 $asickness. 610 $asymptoms. 610 $aunited states of america. 610 $awealth disparity. 615 0$aSickle cell anemia$xPatients 615 0$aDiscrimination in medical care 615 0$aHealth services accessibility 615 0$aMinorities$xMedical care 615 0$aRace discrimination 615 0$aSocial medicine 676 $a362.196/15270089 700 $aRouse$b Carolyn Moxley$f1965-$01629602 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910819110203321 996 $aUncertain suffering$93967438 997 $aUNINA