LEADER 05432nam 2200673Ia 450 001 9910814949803321 005 20240313042915.0 010 $a1-78539-302-2 010 $a0-8261-9573-3 035 $a(CKB)2670000000242470 035 $a(EBL)1029117 035 $a(OCoLC)811410929 035 $a(SSID)ssj0000719890 035 $a(PQKBManifestationID)12286330 035 $a(PQKBTitleCode)TC0000719890 035 $a(PQKBWorkID)10661217 035 $a(PQKB)11317515 035 $a(MiAaPQ)EBC1029117 035 $a(Au-PeEL)EBL1029117 035 $a(CaPaEBR)ebr10603946 035 $a(CaONFJC)MIL539550 035 $a(OCoLC)815477976 035 $a(EXLCZ)992670000000242470 100 $a20111102d2012 uy 0 101 0 $aeng 135 $aur|n||||||||| 181 $ctxt$2rdacontent 182 $cc$2rdamedia 183 $acr$2rdacarrier 200 10$aAdvanced practice nursing ethics in chronic disease self-management /$fBarbara Klug Redman 205 $a1st ed. 210 $aNew York $cSpringer$d2012 215 $a1 online resource 300 $aDescription based upon print version of record. 311 $a0-8261-9572-5 320 $aIncludes bibliographical references and index. 327 $aCover Page; Advanced Practice Nursing Ethics in Chronic Disease Self-Management; Contents; Abbreviations; Preface; Chapter 1: A Suggested Ethical Framework for Patient Self-Management of Chronic Disease; The Capability Approach; Goals for PSM of Chronic Disease; Concerns for Equity and Protection of Patient Safety; An Ethically Appropriate Model for PSM of Chronic Disease; Reflections on Capability Framework for PSM of Chronic Disease; Summary; Study Questions and Answers; Chapter 2: State of the Science and Best Self-Management Practices by Disease; Arthritis and Musculoskeletal Diseases 327 $aAsthma and Chronic Respiratory DiseasesCancer; Cardiovascular Diseases; Diabetes; Summary; Study Questions and Answers; Chapter 3: Best Practices in Patient Self-Management Preparation and Support; Chronic Care Model; Structured Programs Including Peer Models; Provider-Patient Interaction; Family and Community Support; An Alternative Nursing Model; Summary; Study Questions and Answers; Chapter 4: Changing the Patient's Self; Education as Initiation into Socially Constructed Norms; Beliefs; Motivation; Identity and How to Balance Cultural and Medical Validity; Importance of Dignity 327 $aMoral Conflicts of Patients and FamiliesSummary; Study Questions and Answers; Chapter 5: Morally Valid Measurement Model for Patient Self-Management Decisions; The Decisions: Patient Selection, Safety, Shared decision Making, and Goals Met; Monitoring for Harms as Well as for Benefits in PSM Measurement; Mandatory Range of Instruments Psychometrically Validated for SM; Summary; Study Questions and Answers; Chapter 6: Technologies in Patient Self-Management; Information Health Technologies and PSM Support Systems; Home, Mobile, and Personal Technologies; Ethics in Technology Assessment 327 $aSocial NetworkingPSM as Social Innovation with Embedded Technologies; Summary; Study Questions and Answers; Chapter 7: Paradigmatic Examples of Patient Self-Management Ethics; Shifting Boundaries from Provider Management to PSM (And Back); Contribution of PSM to Decrease of Health Disparities and Poverty; Persons with Debilitating Symptoms but without Medical Diagnosis and/or Treatment Plan; Patients with Comorbidities; Mental Health Recovery Movement; Common Chronic Conditions for Which No Stable PSM Model Exists; Summary; Study Questions and Answers 327 $aChapter 8: Implementing an Ethically Appropriate Model for Patient Self-ManagementUniversal Access to Safe and Effective PSM Education and Support; Guaranteed Threshold of Capabilities Development; Tools for PSM and Decision Support; Necessary Health System Changes; PSM of Chronic Disease in Low-And Middle-Income Countries; What Does All This Have to Do With Bioethics?; Summary; Key Ethical Questions and Answers; Appendix A: Measurement Instruments; Measuring Pain Self-Efficacy (Miles et al., 2011); Partners in Health Scale (PIH); Instrument Description, Administration and Scoring Guidelines 327 $aPsychometric Properties 330 $aThe trend toward patient self-management (PSM) of chronic disease is accelerating at a rapid pace along with the evolution of home-based or mobile technologies to support this care. Yet the development of self-management practice standards and advanced practice nursing support has been haphazard. This book fills a glaring void by addressing, against a backdrop of current best practices in PSM, such questions as: What are appropriate standards of safety in PSM? How can we be assured those standards are met? How does one reach a good prognosis about whether or not patients will be able to practi 606 $aPatient education 606 $aSelf-care, Health 606 $aChronic diseases$xTreatment 615 0$aPatient education. 615 0$aSelf-care, Health. 615 0$aChronic diseases$xTreatment. 676 $a613 676 $a613 700 $aRedman$b Barbara Klug$01677773 801 0$bMiAaPQ 801 1$bMiAaPQ 801 2$bMiAaPQ 906 $aBOOK 912 $a9910814949803321 996 $aAdvanced practice nursing ethics in chronic disease self-management$94068200 997 $aUNINA